Happy to get some good news today! TEE (ECHO) came back showing no "vegetation" which means no infection there! Praise God!
Sugical biopsy turned into disc removal since the entire disc was infected. Neuro-surgeon said the procedure went well, he was especially happy to find it has not spread to the spinal cord. He had a rough time in recovery with pain management but finally made it back up to his room around 8PM. He has staples in his neck, is in a soft collar, has a drain tube and must stay on his back at 20 degrees. He continues to be in alot of pain so please pray this will diminish quickly.
Other than 2 more neuro scans, I believe the major stuff is over. Hopefully they will now begin to get answers as to what type of infection we're dealing with and get him started on the most effective antibiotics.
I'm sure there is more to report, but oh so tired this evening; I'll try to catch up tomorrow.
Thanks for your contined prayers!
Tuesday, January 17, 2012
Monday, January 16, 2012
Monday 1/16/2012
So thankful for an extra day off, allowing me to be with my hubby without using up one of my days from work...each and every one of them will be much-needed whenever he comes home.
Last night's dose of Ativan helped tremendously as it pretty much knocked him out for most of the night unfortunately, the pain in his back was still there with a vengeance this morning.
TEE (specialized ECHO) was performed today; isotopes were injected to begin Gallium scan tomorrow, and physical therapy came to show Ron some things to work on to help with lower back issues and to bring him a walker...at times, spasms hit so hard it renders his legs pretty much useless, just about brings him to his knees, thus the walker to help with mobility/stability and keep him safe. Will also give me peace of mind; there were a couple of times he really scared me when the pain hit--he was going down fast and I wasn't sure I could do anything to help him.
Dr. A spoke with IR and they deferred biopsy to neuro. Neurosurgeon met with us late this afternoon and plan was put in place to perform procedure late tomorrow afternoon. They are unable to do a needle biopsy therefore Dr. W will make an incision in the front of his neck, move the esophagus out of the way and take bone and tissue samples from C6&7 along with dura from in between these vertebrae.
I know we can count on each of you to continue to pray. Specifically to petition the Father on Ron's behalf to reveal the exact bacteria we are dealing with in order to target the antibiotics to cover those.
Hope to hear results from TEE tomorrow.
Much love, Christie
"When you go through deep waters, I will be with you. When you go through rivers of difficulty, you will not drown....Do not be afraid, for I am with you." Isaiah 43:2&5 NLT
“Faith is taking the first step even when you can't see the whole staircase.”
― Martin Luther King Jr.
Last night's dose of Ativan helped tremendously as it pretty much knocked him out for most of the night unfortunately, the pain in his back was still there with a vengeance this morning.
TEE (specialized ECHO) was performed today; isotopes were injected to begin Gallium scan tomorrow, and physical therapy came to show Ron some things to work on to help with lower back issues and to bring him a walker...at times, spasms hit so hard it renders his legs pretty much useless, just about brings him to his knees, thus the walker to help with mobility/stability and keep him safe. Will also give me peace of mind; there were a couple of times he really scared me when the pain hit--he was going down fast and I wasn't sure I could do anything to help him.
Dr. A spoke with IR and they deferred biopsy to neuro. Neurosurgeon met with us late this afternoon and plan was put in place to perform procedure late tomorrow afternoon. They are unable to do a needle biopsy therefore Dr. W will make an incision in the front of his neck, move the esophagus out of the way and take bone and tissue samples from C6&7 along with dura from in between these vertebrae.
I know we can count on each of you to continue to pray. Specifically to petition the Father on Ron's behalf to reveal the exact bacteria we are dealing with in order to target the antibiotics to cover those.
Hope to hear results from TEE tomorrow.
Much love, Christie
"When you go through deep waters, I will be with you. When you go through rivers of difficulty, you will not drown....Do not be afraid, for I am with you." Isaiah 43:2&5 NLT
“Faith is taking the first step even when you can't see the whole staircase.”
― Martin Luther King Jr.
Sunday, January 15, 2012
Sunday's update from Presby!
Praise God! Yesterday's MRI of lumbar region revealed there is no infection in the lower back!!!
The muscles are locking up and spasming due to over compensation for upper back issues from infection which intensifies bulging disc (we've known he has for a while) along with some arthritis in this area.
What will be done about the tremendous lower back pain? He will be given Ativan at night which has properties of a muscle relaxant and should help him to really relax and get better sleep, too. PT has also been called in to work with him.
Tomorrow will be a very busy day. They will begin the Gallium scan series; perform the specialized ECHO (TEE) and they will be talking with the head of IR to see if he can do biopsy or if it will need to be done by a neurosurgeon. Once all of these tests/procedures are complete and cultures grow, they will know what antibiotic to use to target the specific bacteria.
Though Osteomyelitis (infection in the bone) is a serious condition, Ron's doctors feel confident it is very treatable. When asked why they are so confident, they gave several reasons: there is no involvement of the spinal cord; the results of the lumbar MRI show no indication it has traveled; he has no decline in health otherwise; and there has been no elevation in white blood count or temp.
What concerns them is how to prevent future bloodstream infections. Plans are to amp up sterile conditions of everything to be introduced through PICC, be more proactive with frequently scheduled specialized blood tests to try to catch anything that might be brewing and for us to be even more vigilant when flushing, injecting Lovenox, introducing additives to TPN and hooking up to PICC.
Please continue to pray whenever we come to mind!
Christie
"The Lord will guide you continually..." Isaih 58:11 NLT
Faith does not concern itself with the entire journey. One step is enough. That first step is all that is needed. Breathe a prayer for courage to fill your legs, as well as your heart, as you face the unknown, the unexpected....Put your hand into the hand of God. He gives the calmness and serenity of heart and soul.
Do not limit the limitless God! With Him face the new trail and follow on unafraid, for you walk not alone!
Selected entries from Streams in the Desert 2
The muscles are locking up and spasming due to over compensation for upper back issues from infection which intensifies bulging disc (we've known he has for a while) along with some arthritis in this area.
What will be done about the tremendous lower back pain? He will be given Ativan at night which has properties of a muscle relaxant and should help him to really relax and get better sleep, too. PT has also been called in to work with him.
Tomorrow will be a very busy day. They will begin the Gallium scan series; perform the specialized ECHO (TEE) and they will be talking with the head of IR to see if he can do biopsy or if it will need to be done by a neurosurgeon. Once all of these tests/procedures are complete and cultures grow, they will know what antibiotic to use to target the specific bacteria.
Though Osteomyelitis (infection in the bone) is a serious condition, Ron's doctors feel confident it is very treatable. When asked why they are so confident, they gave several reasons: there is no involvement of the spinal cord; the results of the lumbar MRI show no indication it has traveled; he has no decline in health otherwise; and there has been no elevation in white blood count or temp.
What concerns them is how to prevent future bloodstream infections. Plans are to amp up sterile conditions of everything to be introduced through PICC, be more proactive with frequently scheduled specialized blood tests to try to catch anything that might be brewing and for us to be even more vigilant when flushing, injecting Lovenox, introducing additives to TPN and hooking up to PICC.
Please continue to pray whenever we come to mind!
Christie
"The Lord will guide you continually..." Isaih 58:11 NLT
Faith does not concern itself with the entire journey. One step is enough. That first step is all that is needed. Breathe a prayer for courage to fill your legs, as well as your heart, as you face the unknown, the unexpected....Put your hand into the hand of God. He gives the calmness and serenity of heart and soul.
Do not limit the limitless God! With Him face the new trail and follow on unafraid, for you walk not alone!
Selected entries from Streams in the Desert 2
Saturday, January 14, 2012
Busy day here at Presby!
Ron was seen by Dr. H (infectious disease) first thing this morning, and we now have a better idea of what to expect over the next few days.
He had an MRI of his lumbar (lower back) this afternoon since he has been experiencing tremendous pain in this region the last few days as well.
Orders have been placed for a needle guided biopsy of the C6-C7 on Monday (waiting until Monday to allow Lovenox -blood thinner- to get out of his system). If they are unable to get an adequate sample to grow cultures this way, then he will have to have a neuro surgeon go in to obtain samples by taking a small piece of the bone.
Infections like this travel through the bloodstream and can also end up in the heart causing endocarditis (inflammation of the inside lining of the heart chambers and heart valves); they will do a specialized ECHO of the heart called a TEE (trans-esophageal echo cardiogram) where they go down through the esophagus to get an "inside view". Again, waiting til Monday, allowing Lovenox to get out of system.
A Gallium scan (specific type of nuclear scan) is also on the agenda. For this test, they inject him with isotopes, which focuses in on any areas of inflammation in the body. He will undergo this scan once a day for 3 days. They may possibly start this procedure today.
So, what causes an infection like this to get into the spine you ask?
Well, three of the ways to get an infection into your bloodstream is if you have a PICC line, have had an endoscopy or dental work. Check, check and check! He's had all three of these things in the last 4-6 weeks!
Ron asked the Infectious disease doc how affirmative the MRI was in showing the infection, that they weren't just seeing some little thing and assuming it was infection. His reply was that Ron's MRI was "pretty impressive - very definitive in showing infection.
He also says Ron will be on big gun IV antibiotics for 6-12 weeks and they will repeat scans in 3-6 months and again in a year to make sure everything has cleared up.
Whew....what a day! It all sounds pretty scary but everyone seems to feel confident that things are headed in the right direction. I must say, I'm especially glad to finally have some results and direction.
I know you are faithfully lifting him to the Father; know that we are so very grateful for your petitions on his behalf!
Love, Christie
"...this happened that the work of God might be displayed..." John 9:3 NIV
He had an MRI of his lumbar (lower back) this afternoon since he has been experiencing tremendous pain in this region the last few days as well.
Orders have been placed for a needle guided biopsy of the C6-C7 on Monday (waiting until Monday to allow Lovenox -blood thinner- to get out of his system). If they are unable to get an adequate sample to grow cultures this way, then he will have to have a neuro surgeon go in to obtain samples by taking a small piece of the bone.
Infections like this travel through the bloodstream and can also end up in the heart causing endocarditis (inflammation of the inside lining of the heart chambers and heart valves); they will do a specialized ECHO of the heart called a TEE (trans-esophageal echo cardiogram) where they go down through the esophagus to get an "inside view". Again, waiting til Monday, allowing Lovenox to get out of system.
A Gallium scan (specific type of nuclear scan) is also on the agenda. For this test, they inject him with isotopes, which focuses in on any areas of inflammation in the body. He will undergo this scan once a day for 3 days. They may possibly start this procedure today.
So, what causes an infection like this to get into the spine you ask?
Well, three of the ways to get an infection into your bloodstream is if you have a PICC line, have had an endoscopy or dental work. Check, check and check! He's had all three of these things in the last 4-6 weeks!
Ron asked the Infectious disease doc how affirmative the MRI was in showing the infection, that they weren't just seeing some little thing and assuming it was infection. His reply was that Ron's MRI was "pretty impressive - very definitive in showing infection.
He also says Ron will be on big gun IV antibiotics for 6-12 weeks and they will repeat scans in 3-6 months and again in a year to make sure everything has cleared up.
Whew....what a day! It all sounds pretty scary but everyone seems to feel confident that things are headed in the right direction. I must say, I'm especially glad to finally have some results and direction.
I know you are faithfully lifting him to the Father; know that we are so very grateful for your petitions on his behalf!
Love, Christie
"...this happened that the work of God might be displayed..." John 9:3 NIV
Beautiful weekend to spend at ... Presby?!?
After a week full of doctor visits, labs, IR, x-rays, MRI and a whole lot of pain, we made our 3rd trip to Presby this evening -- this time to be admitted.
Ron's MRI yesterday revealed he has an infection in his spine, specifically the bones of C6 & C7. Not good. One of the ramifications of being on long-term TPN is the fact a PICC line is an openning to allow bacteria to slip in.
Please pray as he undergoes many more blood draws, xrays, EKG, cultures and possibly a biopsy, that they will be able to determine exactly what kind of infection, which will give them the knowledge to treat with the specific antibiotic needed. He will have to be on high-dose IV antibiotics for about 6 weeks; most likely inpatient about a week and then I'll be taught to administer his IV meds at home.
I'll try to keep you posted as more as learned.
Love, Christie
My Deliverer is coming - my Deliverer is standing by
He will never break His promise - He has written it upon the sky
My Deliverer is coming - my Deliverer is standing by
I will never doubt His promise though I doubt my heart, I doubt my eyes
-- Rich Mullins
Ron's MRI yesterday revealed he has an infection in his spine, specifically the bones of C6 & C7. Not good. One of the ramifications of being on long-term TPN is the fact a PICC line is an openning to allow bacteria to slip in.
Please pray as he undergoes many more blood draws, xrays, EKG, cultures and possibly a biopsy, that they will be able to determine exactly what kind of infection, which will give them the knowledge to treat with the specific antibiotic needed. He will have to be on high-dose IV antibiotics for about 6 weeks; most likely inpatient about a week and then I'll be taught to administer his IV meds at home.
I'll try to keep you posted as more as learned.
Love, Christie
My Deliverer is coming - my Deliverer is standing by
He will never break His promise - He has written it upon the sky
My Deliverer is coming - my Deliverer is standing by
I will never doubt His promise though I doubt my heart, I doubt my eyes
-- Rich Mullins
Saturday, January 7, 2012
New Year, same old story
Hello, all~
We've been on an up and down roller coaster ride over the last couple weeks...some really good days; and some really bad ones which culminated in a trip to the ER.
I know things are not good when I text the hubby after work to remind him it's my exercise day so I'll be home late and he replies with a text telling me he's having some weird unexplained pain. I change plans and head straight home to assess the situation. Blood pressure was good, no temp, however, complaints of pain in left chest, shoulder, neck, arm and back set off alarms. So I suggest we make a trip to the ER which he agrees is a good idea...now that really screams RED ALERT! I grab our hospital back and other necessities and off we go to Presby.
As I'm driving I comment we're about to come to the exit for HEB, and if he's in a lot of pain we could go there instead and then, if needed, be transported to Presby; which he agrees would be a good idea! Lord, have mercy! Let me tell you, the fastest way to be seen by a doctor in an ER is to go in complaining of pain in upper left chest, shoulder, neck, back and arm!!!! He was headed to the designated trauma room before I even had a chance to park and get inside!
He was immediately hooked up for an EKG and bloodwork was drawn. EKG looked okay so they did a chest xray, which also looked fine and showed PICC continues to have good placement. Because of his complicated history, they ordered a CT to check out the arteries leading to his heart and lungs...which looked fine and labs returned as unremarkable. After 5 hours of testing and waiting, the doctor's best guess was that it is something musculoskeletal and discharged us with pain meds and instructions to come back if it gets worse.
His pain continued to remain awful, however, the discouragement was even worse. Why the continued medical issues, God; can't we just get one little break here???
He had similar issues with this sort of pain (not quite as intense) in mid-November when manufacturers decided to stop making one of the components needed to formulate TPN for his particular needs. His pH balance and other levels got all out of whack which caused his body to try to meet his nutritional needs by drawing from his muscles and joints leading to severe, random pain. So, we begin to think maybe this is all TPN related again. ER faxed labs and all other test results to doctor covering for Dr. A, who is out of town, to compare with results from his normal weekly labs which were drawn on Tuesday. Unfortunately(?), there was no marked difference to account for what's going on so we're still at a loss.
Side note here: That morning I read from my perpetual calendar "The peace of God will guard your hearts" I felt led to claim that verse for us for that day; little knowing I was praying that God would literally/physically guard Ron's heart from damage! Once again, He always goes before us!
As I was driving the next day, I passed a sign on a church that I pass every day, that read "Behold the Lamb of God, who takes away the sin of the world." (John 1:29) As I read it I thought, we typically don't think on this verse much, unless it's Christmas or Easter; those times when we are more focused on the life story of Christ. We think more on Christ's birth, John the Baptist declaring Jesus as the Son of God, we think about His arrest, trial, death, burial & resurrection. Then this quiet voice whispered, 'but what does it mean to you today?' Well, let's see - to look at; gaze upon. I was being reminded that despite this last little bump in the road, no matter what my life circumstance, I am to keep my eyes on Christ.
When I looked up the definition of behold I read:
to observe, look at, see.
synonyms: regard, gaze upon, view; watch; discern
Word origin: "give regard to, hold in view," also "to keep hold of, to belong to,"
Father, as I "behold the Lamb", may I do so with faith, as I put my hope and trust in You.
Please pray for my sweet guy. Pray pain will subside, his spirit will be encouraged and somehow, we will be able to figure out what's causing these recurring bouts of pain.
We've been on an up and down roller coaster ride over the last couple weeks...some really good days; and some really bad ones which culminated in a trip to the ER.
I know things are not good when I text the hubby after work to remind him it's my exercise day so I'll be home late and he replies with a text telling me he's having some weird unexplained pain. I change plans and head straight home to assess the situation. Blood pressure was good, no temp, however, complaints of pain in left chest, shoulder, neck, arm and back set off alarms. So I suggest we make a trip to the ER which he agrees is a good idea...now that really screams RED ALERT! I grab our hospital back and other necessities and off we go to Presby.
As I'm driving I comment we're about to come to the exit for HEB, and if he's in a lot of pain we could go there instead and then, if needed, be transported to Presby; which he agrees would be a good idea! Lord, have mercy! Let me tell you, the fastest way to be seen by a doctor in an ER is to go in complaining of pain in upper left chest, shoulder, neck, back and arm!!!! He was headed to the designated trauma room before I even had a chance to park and get inside!
He was immediately hooked up for an EKG and bloodwork was drawn. EKG looked okay so they did a chest xray, which also looked fine and showed PICC continues to have good placement. Because of his complicated history, they ordered a CT to check out the arteries leading to his heart and lungs...which looked fine and labs returned as unremarkable. After 5 hours of testing and waiting, the doctor's best guess was that it is something musculoskeletal and discharged us with pain meds and instructions to come back if it gets worse.
His pain continued to remain awful, however, the discouragement was even worse. Why the continued medical issues, God; can't we just get one little break here???
He had similar issues with this sort of pain (not quite as intense) in mid-November when manufacturers decided to stop making one of the components needed to formulate TPN for his particular needs. His pH balance and other levels got all out of whack which caused his body to try to meet his nutritional needs by drawing from his muscles and joints leading to severe, random pain. So, we begin to think maybe this is all TPN related again. ER faxed labs and all other test results to doctor covering for Dr. A, who is out of town, to compare with results from his normal weekly labs which were drawn on Tuesday. Unfortunately(?), there was no marked difference to account for what's going on so we're still at a loss.
Side note here: That morning I read from my perpetual calendar "The peace of God will guard your hearts" I felt led to claim that verse for us for that day; little knowing I was praying that God would literally/physically guard Ron's heart from damage! Once again, He always goes before us!
As I was driving the next day, I passed a sign on a church that I pass every day, that read "Behold the Lamb of God, who takes away the sin of the world." (John 1:29) As I read it I thought, we typically don't think on this verse much, unless it's Christmas or Easter; those times when we are more focused on the life story of Christ. We think more on Christ's birth, John the Baptist declaring Jesus as the Son of God, we think about His arrest, trial, death, burial & resurrection. Then this quiet voice whispered, 'but what does it mean to you today?' Well, let's see - to look at; gaze upon. I was being reminded that despite this last little bump in the road, no matter what my life circumstance, I am to keep my eyes on Christ.
When I looked up the definition of behold I read:
to observe, look at, see.
synonyms: regard, gaze upon, view; watch; discern
Word origin: "give regard to, hold in view," also "to keep hold of, to belong to,"
Father, as I "behold the Lamb", may I do so with faith, as I put my hope and trust in You.
Please pray for my sweet guy. Pray pain will subside, his spirit will be encouraged and somehow, we will be able to figure out what's causing these recurring bouts of pain.
Wednesday, December 14, 2011
WOW...
In the wee hours of the morning, 4 years ago today, we said goodbye to our wonderful team of caregivers at Harris HEB and were introduced to the incredible doctors, nurses & staff of Presbyterian Hospital. We continue to be blessed by them!
Check out our post from that day:
http://nordellnotes.blogspot.com/2007/12/transfer-update.html
Or better yet, check out all of December 2007 and be reminded of God's incredible grace!
http://nordellnotes.blogspot.com/2007_12_01_archive.html
Check out our post from that day:
http://nordellnotes.blogspot.com/2007/12/transfer-update.html
Or better yet, check out all of December 2007 and be reminded of God's incredible grace!
http://nordellnotes.blogspot.com/2007_12_01_archive.html
Sunday, October 23, 2011
Weekend in Tyler
Fun-filled family weekend spent in Tyler celebrating the marriage of Josh & Jen! Eating, canoeing on the lake, eating, hiking, eating, playing cards, catching up with family, and did I mention eating? Thank you Green Acres Baptist Camp for the lovely accomodations; even though the lake is way down, it was still a beautiful place to hang out!
Jen, you are a wonderful new addition to our family! ♥
Jen, you are a wonderful new addition to our family! ♥
Sunday, October 9, 2011
Four years
hankful for the many doctors, PA's, nurses, techs, radiologists, transporters and all other medical personnel who have been a major part of our journey.
Special shout out to Dr. A, Presby M6West, IR & 3rd floor ICU, as well as Harris HEB ICU. Not to mention our fabulous family, friends, church family and even complete strangers who have cared for us, encouraged us, supported us financially...we are incredibly blessed.
As our journey continues, so does His faithfulness!
"This miracle will bring great honor to the Lord's name; it will be an everlasting sign of His power and love." Isaiah 55:13b
Special shout out to Dr. A, Presby M6West, IR & 3rd floor ICU, as well as Harris HEB ICU. Not to mention our fabulous family, friends, church family and even complete strangers who have cared for us, encouraged us, supported us financially...we are incredibly blessed.
As our journey continues, so does His faithfulness!
"This miracle will bring great honor to the Lord's name; it will be an everlasting sign of His power and love." Isaiah 55:13b
Monday, August 1, 2011
Happy Anniversary!
Praising God for an early morning peaceful homegoing for Ron's 92 year old Mom. Happy 66th anniversary, Mom & Dad--what a glorious way to celebrate by being reunited in Heaven!
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