First off, thanks for giving us some space. Some need to be surrounded by people when they are going through a crisis and others need to be alone. Ron and I both fall in the latter category. It's difficult for us to have to be interacting with other people when we just need the quiet to allow God to help us process and speak to our hearts.
We believe God has called us to total transparency, so, here goes....
As we were sitting in the recovery bay hearing Dr. M's results we were quite shell-shocked and honestly felt we'd been handed a death sentence. I told Ron several times as we were driving home "I'm ready for Jesus to return, NOW!" The whole time my head kept screaming "I can't do this anymore!!!!" But, then, I was reminded no matter what the news, our faith in Christ had not changed ~ He is the same yesterday, today and tomorrow!
It was a long day, Ron did alot of sleeping and I confess I spent a good deal of time pacing, praying, calling out to God to give us some hope here! Last night as we processed through we had some good discussions and Ron remarked "I'm not sure how to deal with this yet. I feel we are in limbo and once we know exactly what we're looking at long term, we'll be able to deal with it. Just like when Aaron had his accident, we knew we would take the "new Aaron" however he was and go from there. Once we find out what the new me looks like, we'll learn to live with it, one day at a time. Our anthem has always been "enough for today" and that has not changed!"
We welcome any questions/comments you may have; if we don't know the answer (and most likely we don't!) we'll pass them on to Dr. A and Dr. S. Some of our questions are:
Are adhesions in one particular area or all the way down?
If the adhesions are removed will the intestines function as normal again?
Are there signs that the intestines are indeed trying to function?
TPN what are the long-term effects? Can you live on it forever?
Quality of life? Will there ever be some sense of normalcy with life and eating.
Why did he seem to do well for a while on eating and now this? Adhesions just continued to “scar down?”
Is surgery even an option?
Will surgery to remove adhesions just cause more adhesions?
We were asked by others: does this mean that doctors could realistically remove the adhesions? Don't know yet, Dr. Shires had said earlier he didn't feel surgery was an option, but since we've seemingly run out of any other options I don't know what his thoughts will be now.
And:
can they somehow "suck out" the stagnant liquid that is already in the GI tract? does this mean that the tpn is a lifetime option if the adhesions cannot be removed?Don't know the answer to this, I would think they'd have told us if there was, but I'm passing this question on.
I'm sure there is more I forgot to pass on but I wanted to get this out before I headed to work. I know many of you are anxious to hear how we're doing; on the whole I'd say pretty well, I'll steal a line from a great hymn (thanks for the reminder, Lisa)....no matter what, "It is well with my (our) soul(s)".
Yes, Louise, we agree God is able and He will provide a way!
Christie
Great song God has used to minister to me:
You Never Let Go
Matt Redman
http://www.youtube.com/watch?v=y83-vMeWc9E&feature=PlayList&p=B4F0FC5EFF7A9BF1&playnext=1&index=37
(it's on my playlist at the bottom of the blog)
Even though I walk through the valley of the shadow of death
Your perfect love is casting out fear
And even when I'm caught in the middle of the storms of this life
I won't turn back
I know you are near
And I will fear no evil
For my God is with me
And if my God is with me
Whom then shall I fear?
Whom then shall I fear?
(Chorus:)
Oh no, You never let go
Through the calm and through the storm
Oh no, You never let go
In every high and every low
Oh no, You never let go
Lord, You never let go of me
And I can see a light that is coming for the heart that holds on
A glorious light beyond all compare
And there will be an end to these troubles
But until that day comes
We'll live to know You here on the earth
(Chorus)
Yes, I can see a light that is coming for the heart that holds on
And there will be an end to these troubles
But until that day comes
Still I will praise You, still I will praise You
(Chorus 2x's)
1 comment:
You have been faithful and continue to be. You make your Father's heart proud.
Thank you for allowing us the honor to journey and pray with you.
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