Saturday, November 13, 2010

Aye yi yi....

....my unique guy!!!!!

We're spending another weekend pretty much home-bound. Ron again began experiencing symptoms of dehydration Wednesday. Despite another increase of fluid in TPN, his kidney function was back in the unacceptable zone; along with being dizzy/light headed. As of Friday, he was back on lactated ringers; which he had only been off of about 10 days. Yet we are so very thankful we are able to manage this at home. The IV is a bit of a nuisance since it must be infused as a gravity drip as opposed to going through a pump and being stored in a backpack like his TPN. And since he only has the single lumen PICC, this means he has his lovely IV pole to drag around with him for 4+ hours a day. Unfortunately, for now, he only has a small window of time each afternoon when he is not connected to either TPN or IV. Ella and Mila are fascinated with the wheels on the IV pole and Mila has especially become aware of the IV line coming out of Papa's arm. Neither of them have attempted to pull on it but are becoming curious about it.

In consultation with Dr. A, we've gone over and over what has changed in the last 6 weeks to cause this to repeatedly be happening. The only variable we can come up with is the introduction of a new medication around that time. This medication has never shown in clinical trials to act as a diuretic, but in Ron's case that seems to be what is taking place. It's causing his body to not hold on to the fluid it needs, leading him to become dehydrated. This medication was discontinued as of Thursday and he will have blood drawn again on Monday. Typically, the kidney function looks good while on the daily IV bolus; it's about a week later that the downward spiral begins.

Your prayers are coveted as we seek a resolution to this latest craziness!

Much love,
Christie

"As for me, I look to the Lord for His help. I wait confidently for God to save me, and my God will certainly hear me." Micah 7:7 NLT

Sunday, November 7, 2010

What a ride!

Oh My Word! These last few weeks have been crazy! I've wanted to send out an update but Ron's kept me so busy, I feel I'm meeting myself coming and going!

You all know about Ron's battle with dehydration the first to mid part of October. Well, two weeks later he started exhibiting symptoms again. This time the dehydration was worse and definitely affecting his kidney function, leaving us once again in the battle to keep him out of the hospital. Dr. A further increased the fluid level in his TPN and this time placed him on IV lactated ringers for 7 days.

Nurse Nordell prepping IV!


Poor guy, on top of feeling puny when he's dehydrated; he's also pretty much home-bound. We have to be more aware of his fluid intake and output, keep things fairly low key and he is not allowed to drive or leave the house alone (even for a walk).

Unfortunately, he got a little worse before he got better with a real scare Monday when his weekend labs came back much worse requiring STAT labs done Monday after work. Upon returning from the lab, I mowed the yard, repacked my hospital bag and took a shower anticipating a call telling us to head to Presby. Praise God, Dr. A's 7:30 PM call was to tell us the fluids had finally kicked in and his lab results were markedly better.

Though things were a little crazy, we were able to enjoy a fun weekend with out of town family. It was especially nice for Ron to have so many sporting events going on to keep him occupied and have his brothers here to share it with him since he really couldn't get out.

But what's really made it bearable, has been the time his sweet girls have come over to entertain him! Mila and Ella are almost 9 months old and growing like crazy!!! Ella is full out crawling and can get anywhere she wants in a hurry! Mila is scooching and is a champ at getting into a sitting position totally unassisted, and they are both pulling up on everything! They are SO MUCH FUN! And absolutely adorable, as well!

Big girls! E, left; M, right


M in walker, E crawling underneath


So cute it's scary! E, left; M, right


Mila unhappy about sharing HER Papa!


Good news throughout all of this is that when he went for his scheduled check up with his hematologist/oncologist; his coagulation level continues to remain stable. Thank you, Father!!!!

So there ya have it!
Christie

"My prayer is not that You take them out of the world but that You protect them from the evil one." John 17:15

Thursday, November 4, 2010

Remembering - Pray FERVENTLY, Believing!

Sunday, November 4, 2007 is forever etched on our hearts. This was the title to our e-mail update sent out November 5. We've come a long way, yet still so far to go.

If you'd like to reflect on God's faithfulness with us, read the following link:

http://nordellnotes.blogspot.com/2007/11/pray-ferventlybelieving.html


And check out this great music video that really speaks to me (or if you'd rather, the words are below)
http://www.youtube.com/watch?v=mfWAG-bnttQ&feature=related

BEFORE THE MORNING LYRICS - JOSH WILSON
Do you wonder why you have to,
feel the things that hurt you,
if there's a God who loves you,
where is He now?

Maybe, there are things you can't see
and all those things are happening
to bring a better ending
some day, some how, you'll see, you'll see

Chorus:
Would you dare, would you dare, to believe,
that you still have a reason to sing,
'cause the pain that you've been feeling,
can't compare to the joy that's coming

so hold on, you got to wait for the light
press on, just fight the good fight
because the pain you've been feeling,
it's just the dark before the morning

My friend, you know how this all ends
and you know where you're going,
you just don't know how you get there
so just say a prayer.
and hold on, cause there's good for those who love God,
life is not a snapshot, it might take a little time,
but you'll see the bigger picture

Would you dare, would you dare, to believe,
that you still have a reason to sing,
'cause the pain that you've been feeling,
can't compare to the joy that's coming

so hold on, you got to wait for the light
press on, just fight the good fight
because the pain that you've been feeling,
it's just the dark before the morning
yeah, yeah,
before the morning,
yeah, yeah

Once you feel the way of glory,
all your pain will fade to memory
once you feel the way of glory,
all your pain will fade to memory
memory, memory, yeah

Would you dare, would you dare, to believe,
that you still have a reason to sing,
'cause the pain that you've been feeling,
can't compare to the joy that's coming

Would you dare, would you dare, to believe,
that you still have a reason to sing,
'cause the pain that you've been feeling,
can't compare to the joy that's coming

com'n, you got to wait for the light
press on, just fight the good fight
because the pain you've been feeling,
it's just the hurt before the healing
the pain you've been feeling,
just the dark before the morning
before the morning, yeah, yeah
before the morning

It's here!!! Ron tells his story

Love it when my hubby shares!. Though a very condensed version, Ron eloquently shared with our youth group a few weeks ago. Below are his th...