In the wee hours of the morning, 4 years ago today, we said goodbye to our wonderful team of caregivers at Harris HEB and were introduced to the incredible doctors, nurses & staff of Presbyterian Hospital. We continue to be blessed by them!
Check out our post from that day:
http://nordellnotes.blogspot.com/2007/12/transfer-update.html
Or better yet, check out all of December 2007 and be reminded of God's incredible grace!
http://nordellnotes.blogspot.com/2007_12_01_archive.html
Wednesday, December 14, 2011
Sunday, October 23, 2011
Weekend in Tyler
Fun-filled family weekend spent in Tyler celebrating the marriage of Josh & Jen! Eating, canoeing on the lake, eating, hiking, eating, playing cards, catching up with family, and did I mention eating? Thank you Green Acres Baptist Camp for the lovely accomodations; even though the lake is way down, it was still a beautiful place to hang out!
Jen, you are a wonderful new addition to our family! ♥
Jen, you are a wonderful new addition to our family! ♥
Sunday, October 9, 2011
Four years
hankful for the many doctors, PA's, nurses, techs, radiologists, transporters and all other medical personnel who have been a major part of our journey.
Special shout out to Dr. A, Presby M6West, IR & 3rd floor ICU, as well as Harris HEB ICU. Not to mention our fabulous family, friends, church family and even complete strangers who have cared for us, encouraged us, supported us financially...we are incredibly blessed.
As our journey continues, so does His faithfulness!
"This miracle will bring great honor to the Lord's name; it will be an everlasting sign of His power and love." Isaiah 55:13b
Special shout out to Dr. A, Presby M6West, IR & 3rd floor ICU, as well as Harris HEB ICU. Not to mention our fabulous family, friends, church family and even complete strangers who have cared for us, encouraged us, supported us financially...we are incredibly blessed.
As our journey continues, so does His faithfulness!
"This miracle will bring great honor to the Lord's name; it will be an everlasting sign of His power and love." Isaiah 55:13b
Monday, August 1, 2011
Happy Anniversary!
Praising God for an early morning peaceful homegoing for Ron's 92 year old Mom. Happy 66th anniversary, Mom & Dad--what a glorious way to celebrate by being reunited in Heaven!
Sunday, July 31, 2011
Mom Nordell
Mom's health is declining. She is under the care of hospice 24/7 and all things seem to indicate she will not rally. She has stopped eating; refusing any food or liquid intake, as well as her medications for the last 4 days. She seems to be comfortable; sleeping peacefully pretty much around the clock.
Please pray for a peaceful, painfree homegoing.
Please pray for a peaceful, painfree homegoing.
Sunday, July 24, 2011
Summertime, and the living is....
EXPENSIVE!!!
Holy Cow...the last few weeks we've been shelling out money like you'd think we had it!
We've known for several years that we needed to replace our kitchen appliances, so we've been diligently trying to save for this venture. New cooktop, oven and over the range microwave were ordered last week, to be delivered on Friday. Being that our appliances are as old as our home (30+ years), we knew going in there would be some work involved in installing the new wall oven. We opted to have the oven installed by the appliance store, since it would require more work than we could handle. Wednesday night, we set to work removing the old cooktop and microwave, as well as removing all the dishes, pots and pans in the cabinets/drawers surrounding in anticipation of the work to come; with Aaron agreeing to help put the new ones in.
Removal was a breeze and the excitement was building. Ahh, finally, a cooktop that we didn't have to worry about the burners falling off while cooking; and an oven that keeps an even temperature thereby avoiding over or undercooked food; and a microwave within easy reach instead of having to be on tiptoes to reach!!!! YIPPEE!!!
Guys came out Thursday to take measurements to make sure everything would fit properly and see what all needed to be done to install the new oven. Right before they arrived, we received a call informing us that the cooktop would not be delivered until Monday and the microwave the following week! Remember, we had removed the old cooktop and microwave the night before! Rats, so much for being prepared...oh well, we could work around that.
The guys arrived Friday (different guys, actually) and they had not gotten the word as to the extent of the work needed to be done for installation. However, they had the new wall oven with them and we were excited to get things going. Until the guy says "it's gonna take alot of work to get this 30" oven to fit into this 27" oven space". OH NO!!! The wrong oven had been ordered!!!! Obviously, this was not going to work! So, off they went and call was made to make sure new oven was ordered. Supposedly, we will get the cooktop Monday, the wall oven Thursday and the above range microwave the next week.
WHEW...I'll be so glad when this is completed. Having several huge holes in my kitchen, and dishes spread out all over the house is a bummer. It's a good thing Ron doesn't eat much and I can get by without cooking for a while; we all need more fresh fruits and vegetables anyway, right? Salads, here we come!
Our next BIG Ticket item was to the dentist. We know living on TPN is not the ideal nutrition and long-term TPN has long-term ramifications; including causing problems with the teeth and gums. Add to that the consequences of frequent yakking and you're bound to have some dental issues. It had been over 4 years since either of us had been to the dentist. Two crowns and 2 fillings later; we'll be good as new! Believe it or not, other than alot of discoloration, Ron only issue was one crown; all the rest of the work is what I needed!! Go figure! BOO for no dental insurance.
The good news is....we're racking up those frequent flier miles! Before we know it, we'll be able to start dreaming of another vacation!
To catch up on our other summer happenings, check out our blog www.nordellnotes.blogspot.com . You can read about our 4th of July weekend trip to Presby, as well as our vacation to San Francisco and everything in between!
Although it's been an expensive couple of weeks, and it would be easy to give in to anxiety over our finances; we choose to trust in knowing that God would not take us someplace He will not provide for. And WE KNOW He ALWAYS provides!
More news to share soon!
Much love,
Christie
"...'Yes', says the Lord, 'I will do mighty miracles'...All the nations of the world will stand amazed at what the Lord will do." Micah 7:15-16 (selected) NLT
"You will show us Your faithfulness and unfailing love as You promised..." Micah 7:20
Holy Cow...the last few weeks we've been shelling out money like you'd think we had it!
We've known for several years that we needed to replace our kitchen appliances, so we've been diligently trying to save for this venture. New cooktop, oven and over the range microwave were ordered last week, to be delivered on Friday. Being that our appliances are as old as our home (30+ years), we knew going in there would be some work involved in installing the new wall oven. We opted to have the oven installed by the appliance store, since it would require more work than we could handle. Wednesday night, we set to work removing the old cooktop and microwave, as well as removing all the dishes, pots and pans in the cabinets/drawers surrounding in anticipation of the work to come; with Aaron agreeing to help put the new ones in.
Removal was a breeze and the excitement was building. Ahh, finally, a cooktop that we didn't have to worry about the burners falling off while cooking; and an oven that keeps an even temperature thereby avoiding over or undercooked food; and a microwave within easy reach instead of having to be on tiptoes to reach!!!! YIPPEE!!!
Guys came out Thursday to take measurements to make sure everything would fit properly and see what all needed to be done to install the new oven. Right before they arrived, we received a call informing us that the cooktop would not be delivered until Monday and the microwave the following week! Remember, we had removed the old cooktop and microwave the night before! Rats, so much for being prepared...oh well, we could work around that.
The guys arrived Friday (different guys, actually) and they had not gotten the word as to the extent of the work needed to be done for installation. However, they had the new wall oven with them and we were excited to get things going. Until the guy says "it's gonna take alot of work to get this 30" oven to fit into this 27" oven space". OH NO!!! The wrong oven had been ordered!!!! Obviously, this was not going to work! So, off they went and call was made to make sure new oven was ordered. Supposedly, we will get the cooktop Monday, the wall oven Thursday and the above range microwave the next week.
WHEW...I'll be so glad when this is completed. Having several huge holes in my kitchen, and dishes spread out all over the house is a bummer. It's a good thing Ron doesn't eat much and I can get by without cooking for a while; we all need more fresh fruits and vegetables anyway, right? Salads, here we come!
Our next BIG Ticket item was to the dentist. We know living on TPN is not the ideal nutrition and long-term TPN has long-term ramifications; including causing problems with the teeth and gums. Add to that the consequences of frequent yakking and you're bound to have some dental issues. It had been over 4 years since either of us had been to the dentist. Two crowns and 2 fillings later; we'll be good as new! Believe it or not, other than alot of discoloration, Ron only issue was one crown; all the rest of the work is what I needed!! Go figure! BOO for no dental insurance.
The good news is....we're racking up those frequent flier miles! Before we know it, we'll be able to start dreaming of another vacation!
To catch up on our other summer happenings, check out our blog www.nordellnotes.blogspot.com . You can read about our 4th of July weekend trip to Presby, as well as our vacation to San Francisco and everything in between!
Although it's been an expensive couple of weeks, and it would be easy to give in to anxiety over our finances; we choose to trust in knowing that God would not take us someplace He will not provide for. And WE KNOW He ALWAYS provides!
More news to share soon!
Much love,
Christie
"...'Yes', says the Lord, 'I will do mighty miracles'...All the nations of the world will stand amazed at what the Lord will do." Micah 7:15-16 (selected) NLT
"You will show us Your faithfulness and unfailing love as You promised..." Micah 7:20
Thursday, July 14, 2011
Back in Action
Sorry we've been MIA; it's been a C-RA-ZY couple of weeks.
Most of you know about Ron's episode over 4th of July resulting in a day trip to Presby. For those who don't, long story short - Ron spiked a 103.3 temp which wouldn't budge despite meds, cool shower, ice packs, etc. We then found he had a leak in his PICC, so off to Presby we went. IR changed out his PICC, sent it out for cultures and sent us on our way. Results from cultures confirm PICC was infected. As you can imagine he felt pretty crummy for a few days.
Just when things were getting back to "normal"; I was hit by the most awful stomach bug I've ever had! Five days later, I'm just now able to begin eating something other than crackers, water and/or potatoes. Let me tell ya, this experience has given me a greater appreciaiton for how much my sweet guy suffers when he's dealing with the yakking, digestive issues, etc.....and I know what I had doesn't come near to touching what he goes through!
Anywho, on to better things! Don and Marcie's daughter, Keely, is getting married this weekend!!! We will be spending the weekend in Waco helping out with all the wedding festivities. We leave Friday and return Sunday.
And yes, even though it's not that far from home, we do have to take all our supplies and have an emergency plan in place, just in case a medical event arises!
Most of you know about Ron's episode over 4th of July resulting in a day trip to Presby. For those who don't, long story short - Ron spiked a 103.3 temp which wouldn't budge despite meds, cool shower, ice packs, etc. We then found he had a leak in his PICC, so off to Presby we went. IR changed out his PICC, sent it out for cultures and sent us on our way. Results from cultures confirm PICC was infected. As you can imagine he felt pretty crummy for a few days.
Just when things were getting back to "normal"; I was hit by the most awful stomach bug I've ever had! Five days later, I'm just now able to begin eating something other than crackers, water and/or potatoes. Let me tell ya, this experience has given me a greater appreciaiton for how much my sweet guy suffers when he's dealing with the yakking, digestive issues, etc.....and I know what I had doesn't come near to touching what he goes through!
Anywho, on to better things! Don and Marcie's daughter, Keely, is getting married this weekend!!! We will be spending the weekend in Waco helping out with all the wedding festivities. We leave Friday and return Sunday.
And yes, even though it's not that far from home, we do have to take all our supplies and have an emergency plan in place, just in case a medical event arises!
Saturday, July 2, 2011
Hottie
Update on my hunka hunka burnin' love...
Small leak was found in PICC. Dr. A had contacted Dr. C at Presby's Interventional Radiology with his concerns and they agreed PICC needed to be replaced today. Dr. C called to tell us there were four other procedures ahead of him, so we were to just hang out at home and he'd call about an hour and a half before he was ready for Ron's procedure.
We are so blessed....first off, to have doctor's (not just doctor's but specialists!) who make themselves that accessible to us. Even when Dr. A is not on call (and he is not this weekend), he continues to answer my every call to his cell phone! And then to have them call us personally and tell us to stay home where Ron would be more comfortable until they were ready--WOW!
We did have to be admitted through ER but they knew we were coming and things went very smoothly. We left our house at 4. By 8:30ish we were home with temperature under control and the hubby resting in his recliner!
Best guess is bacteria got in through leak in PICC, which placed germs directly into the bloodstream; more specifically the superior vena cava. Yes, you're thinking correctly that's directly into the heart!
Thank you, Lord for watching over my hottie! And for blessing us with incredible doctors and faithful prayer warrior friends!
Small leak was found in PICC. Dr. A had contacted Dr. C at Presby's Interventional Radiology with his concerns and they agreed PICC needed to be replaced today. Dr. C called to tell us there were four other procedures ahead of him, so we were to just hang out at home and he'd call about an hour and a half before he was ready for Ron's procedure.
We are so blessed....first off, to have doctor's (not just doctor's but specialists!) who make themselves that accessible to us. Even when Dr. A is not on call (and he is not this weekend), he continues to answer my every call to his cell phone! And then to have them call us personally and tell us to stay home where Ron would be more comfortable until they were ready--WOW!
We did have to be admitted through ER but they knew we were coming and things went very smoothly. We left our house at 4. By 8:30ish we were home with temperature under control and the hubby resting in his recliner!
Best guess is bacteria got in through leak in PICC, which placed germs directly into the bloodstream; more specifically the superior vena cava. Yes, you're thinking correctly that's directly into the heart!
Thank you, Lord for watching over my hottie! And for blessing us with incredible doctors and faithful prayer warrior friends!
My hubby is so hot.....
Who needs fireworks when you have a hubby as hot as mine???
How hot is he?
He's so hot it requires a trip to Presby to cool him down! 103.3 for several hours...YOWZA!!! Cool shower, ice packs, other home remedies tried with no success.
You know how we enjoy spending holidays at our home away from home!
How hot is he?
He's so hot it requires a trip to Presby to cool him down! 103.3 for several hours...YOWZA!!! Cool shower, ice packs, other home remedies tried with no success.
You know how we enjoy spending holidays at our home away from home!
Monday, June 27, 2011
Tommy Teague ~ beloved pastor/treasured friend
Early Thursday, June 23, we received news that Tommy had unexpectedly passed from this life to eternity, on his 58th birthday while in Israel leading a group from our church on a tour of the Holy Land.
As our pastor and friend for the last 13 years, we shared in many life-changing events. Two of the three Teague children were the same age as our boys. Our Ryan and their Jonathan were both born Aug 13, 1980; while their Julie and our Aaron were best buds from 8th grade on --going off to college together and remaining close to this day.
We have vivid memories of Tommy and Rita being with us at Harris Hospital Trauma ICU as we awaited word on Aaron's condition following his tragic accident; then returning at midnight after getting the youth off to camp earlier that evening, in order to spend some time alone with us, praying over us and seeing to our needs. Their encouragement and support throughout Aaron's lengthy recovery was invaluable.
Tommy was an incredible mentor/spiritual adviser for Aaron throughout his high school and college years and especially over the last few years as life handed him some pretty hard blows. Aaron never doubted that Tommy loved him unconditionally and was only a phone call away.
Though Ryan was already headed off to college when Tommy came as our pastor; Tommy became a rock to him as well. Throughout the last few years in particular, they formed a bond as Tommy made himself available to help Ryan navigate the seas of change taking place in his life. He also provided support in joyous times by being Ryan and Stacee's premarital counselor and officiant at their wedding.
Tommy was at my side when doctor's called me in to that dreaded family conference room to inform me that, despite all their efforts, my sweet husband would not survive the trauma his body had endured over the last month. I remember many hospital visits from Tommy and Rita as they remained close at hand praying fervently that God would preserve Ron's life as, over many months, battle was waged! From that time to the present, they have been a constant source of encouragement and strength as we have learned to live in a new normal.
We had the honor of working on staff with Tommy at Children's Camp for many years and he and Rita even entrusted us with the furtherance of each of their daughters' spiritual growth as we served them in various areas of the the youth department, as well as tried to help flesh out faith together through Senior Bible Study.
Tommy loved His Lord and was passionate about sharing this love. He counted it a great joy to take groups to Israel to walk the roads Jesus had walked and I think it is so appropriate that he went to sleep after a day spent traveling these same paths and woke up in Heaven to walk the streets of Glory with Him.
We count it a great honor to have done life together...to have known and loved and to have been known and loved by this precious man! Thank you, Tommy, for your steadfast, faithful legacy of love, compassion, integrity, humility, and your unfailing passion for those things the Father is passionate about. We are but one of many who recount stories of your faithfulness to the people God entrusted to your care.
Please pray for Tommy's family: wife, Rita; daughters Julie and Joy; son, Jonathan, and wife Michelle; along with his three precious granddaughters.
We also ask you to pray for his extended family, friends and our church family. This has come as a tremendous shock to so many people. And, as you can imagine, the fact that his death took place in a foreign country has greatly complicated things causing the family to have to wade through alot of red tape in making of arrangements; compounding their grief. They are hoping his body will be home in the States on Monday allowing the funeral to take place on Thursday.
We love you, Tommy; you are already greatly missed!
Friday, June 17, 2011
10 years
"I am trusting You, O Lord, saying, 'You are my God!' My future is in Your hands." Psalm 31:14-15a
"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
Monday, June 13, 2011
San Francisco ~
What a great vacation! Worth every minute of detailed preparation for travel with my high medical needs guy. Staying at Embassy Suites is always such a treat. Having the two rooms allows Ron to get the sleep he needs, while allowing me to be up and about in the living area without disturbing him. It also gives us the added room we need for all his medical supplies; as well as a refrigerator for TPN storage. Ron did well; a couple of rough nights and one yakking episode but otherwise well. Fortunately, though we had a lot we wanted to do, we were on no timetable, making it easy to accommodate whatever pace he needed.
Thanks to those of you who responded to my request for suggested things to do while in San Francisco; I think we did just about ALL of them!
amazing audio tour of Alcatraz
strolling the quaint streets of Sausalito
trip to Muir Woods to see the giant redwoods
watch the sea lions just off Pier 39 and browse the shops there
pedicab along Fisherman’s Wharf
several trips down Lombard (crookedest) street
Kodak moment in front of the Painted Ladies
ride the cable cars (while singing Rice-A-Roni song, of course!)
yummy splurge at Scoma’s restaurant on Fisherman’s Wharf
Sunset Cruise on the Bay featuring close-up look at Golden Gate Bridge
visit several vineyards in Napa Valley
Rubicon Estates Vineyard
Thanks to those of you who responded to my request for suggested things to do while in San Francisco; I think we did just about ALL of them!
amazing audio tour of Alcatraz
strolling the quaint streets of Sausalito
trip to Muir Woods to see the giant redwoods
watch the sea lions just off Pier 39 and browse the shops there
pedicab along Fisherman’s Wharf
several trips down Lombard (crookedest) street
Kodak moment in front of the Painted Ladies
ride the cable cars (while singing Rice-A-Roni song, of course!)
yummy splurge at Scoma’s restaurant on Fisherman’s Wharf
Sunset Cruise on the Bay featuring close-up look at Golden Gate Bridge
visit several vineyards in Napa Valley
Rubicon Estates Vineyard
But, I must say, my favorite was experiencing Pebble Beach with my hubby! A bittersweet time for him, finally seeing his dream course in person; yet not being physically able to play it. On the advice of a friend, I explained Ron’s condition to those in the Pro Shop and they graciously allowed us to rent a cart and drive the entire course! It was fabulous! Just wish it had been a clear day. Only 2 out of our 6 days did we have blue skies and sunshine. The weather was refreshingly cool; in fact it got downright cold at times! The highest temp while we were there was 60.
It was so fun to have our Mavericks playing three nights that week. It made it easy to want to end the day early enough to be back to our hotel in time for tip off, which helped keep Ron from overexerting.
The Texas heat was pretty hard on Ron when we returned and he almost immediately began showing signs of dehydration. Fortunately, we were able to catch it quickly and get fluid in TPN increased before things got bad.
Of course, coming home to these sweet faces made returning to the heat much more bearable!
Thursday, June 9, 2011
Oh boy...
...it's a boy!!!!!
We got the call today, as we were on the course at Pebble Beach! Evidently our "proud" little one showed off, sonogram shows 100% that it's a boy!!! Our little guy's due date is October 31 and everything is measuring as it should.
Very proud Mama and Daddy (and Grammie and Papa!). Papa was so excited, he had to buy his grandson his first golf ball while at his dream course, so sweet!
Can't wait to welcome our new little guy to the family. And Papa can't wait to introduce him to his favorite game!
"Sons are a heritage from the Lord, children a reward from Him." Psalm 127:3
We got the call today, as we were on the course at Pebble Beach! Evidently our "proud" little one showed off, sonogram shows 100% that it's a boy!!! Our little guy's due date is October 31 and everything is measuring as it should.
Very proud Mama and Daddy (and Grammie and Papa!). Papa was so excited, he had to buy his grandson his first golf ball while at his dream course, so sweet!
Can't wait to welcome our new little guy to the family. And Papa can't wait to introduce him to his favorite game!
"Sons are a heritage from the Lord, children a reward from Him." Psalm 127:3
Saturday, June 4, 2011
Whew! Nothing like spontaniety!
It's been wild and woolly around here! Don't worry, not medically; Ron's been fairly stable the last 6 weeks or so! Good thing, since end of school year is always super busy; and this year was no exception!
Between semester exams, preparing work for summer school, a great family celebration of Grandma Nordell's 92nd birthday, graduation parties, wedding showers, etc., I feel I hardly saw my hubby the last week or so of school, except when I fell into bed at night!
In the midst of the fray, our 32nd anniversary came and went...I worked late, had a doctor appt after work, our department hosted a graduation party for two of our students but finally made it home just in time to give my sweetie a kiss and wish him a happy anniversary! Woo hoo!!!
Hallelujah summer officially began for me Sunday, May 30!
The big news around here is, we are always on the look out to do something special for our anniversary, and that opportunity arrived about 10 days ago. American Airlines had been celebrating their 30 year anniversary (just babies compared to us, haha!) and were running different specials each day...I happened upon the day they were having a GREAT discount on all vacation packages using frequent flier miles.
So....we are leaving bright and early Sunday (yes, tomorrow!) morning for San Francisco! We are super, super excited! God promises to work all things together for good, and one good thing that has come out of Ron's extensive medical bills is the miles we keep earning! Our airfare, hotel and car rental have ALL been covered by miles, thus far the cost to us has been a total of $85! The rest of the trip will be financed by the unexpected escrow overage check we recently received, as well as an anonymous gift Ron found in his Bible last month...thanks anonymous; what a blessing you are!!!
This entire week has been spent making all the necessary medical arrangements needed for travel for Ron. We have names of hospitals to contact in case of emergency, along with detailed, concise medical history synopsis in case we were to need to go to hospital, as well as name and number of one of Dr. A's med school classmates in Berkley (just across the bay from where we are staying); all medical paperwork in place for airline travel and to be able to pass security and the wheelchair ready to go. We typically have TPN and daily medical supplies shipped when we travel, however our insurance no longer covers this and the cost was going to be $200 (it HAS to be kept refrigerated and weighs around 40 lbs...UGH!); therefore, we have chosen to have it checked in along with our luggage. A major hassle when we get to San Francisco, but we won't have to worry about bringing it back since all the supplies will be used up by then. Praise God, Aaron will be taking us to the airport so he'll do all the luggage and box wrangling when we check in! Thanks, Aaron!!!
We will check our e-mail daily so if you have any fun ideas of things to do....e-mail them to us!!!
We'll take things pretty easy. With the exception of our one booked excursion, we will do things that we can mostly drive around and see. Anything else we have to assure wheelchair accessibility.
The one thing we have booked is a "Jail and Sail"; 90 minute audio walking tour (well walking for me, riding in wheelchair for Ron!) of Alcatraz and then a sunset cruise of the bay.
We hope to drive down Highway 1 to Pebble Beach one day; maybe drive to Napa another day; and Muir woods and Sausalito another day. We'll play each day by ear, seeing how Ron is doing that day. We'll spend mid-morning to afternoon doing the tourist thing and then spend our evenings back at the hotel chillin'. Of course Sunday, Tuesday and Thursday evenings will be spent cheering on our Mavericks!
Please pray for safe travel, as well as a medically uneventful vacation. We could really use a low-stress time of refreshment! It's always a huge step out of my comfort zone to be so far away from our fabulous doctors, hospital and our support group. But I also know how important it is that we put our trust in God, not man. He is with us wherever we are, not just here. And He will supply whatever needs we may have, even in California!!! I have to choose to "be anxious for nothing". It's also imperative that Ron have some semblance of "normal" enjoyment of life and things to look forward to. But I tell ya, it's hard to step out in faith sometimes...even when it's to do fun things!!!
Look forward to sharing great things with you from our visit to Northern California. Will think of you often as we enjoy highs of 60 each day!
Between semester exams, preparing work for summer school, a great family celebration of Grandma Nordell's 92nd birthday, graduation parties, wedding showers, etc., I feel I hardly saw my hubby the last week or so of school, except when I fell into bed at night!
In the midst of the fray, our 32nd anniversary came and went...I worked late, had a doctor appt after work, our department hosted a graduation party for two of our students but finally made it home just in time to give my sweetie a kiss and wish him a happy anniversary! Woo hoo!!!
Hallelujah summer officially began for me Sunday, May 30!
The big news around here is, we are always on the look out to do something special for our anniversary, and that opportunity arrived about 10 days ago. American Airlines had been celebrating their 30 year anniversary (just babies compared to us, haha!) and were running different specials each day...I happened upon the day they were having a GREAT discount on all vacation packages using frequent flier miles.
So....we are leaving bright and early Sunday (yes, tomorrow!) morning for San Francisco! We are super, super excited! God promises to work all things together for good, and one good thing that has come out of Ron's extensive medical bills is the miles we keep earning! Our airfare, hotel and car rental have ALL been covered by miles, thus far the cost to us has been a total of $85! The rest of the trip will be financed by the unexpected escrow overage check we recently received, as well as an anonymous gift Ron found in his Bible last month...thanks anonymous; what a blessing you are!!!
This entire week has been spent making all the necessary medical arrangements needed for travel for Ron. We have names of hospitals to contact in case of emergency, along with detailed, concise medical history synopsis in case we were to need to go to hospital, as well as name and number of one of Dr. A's med school classmates in Berkley (just across the bay from where we are staying); all medical paperwork in place for airline travel and to be able to pass security and the wheelchair ready to go. We typically have TPN and daily medical supplies shipped when we travel, however our insurance no longer covers this and the cost was going to be $200 (it HAS to be kept refrigerated and weighs around 40 lbs...UGH!); therefore, we have chosen to have it checked in along with our luggage. A major hassle when we get to San Francisco, but we won't have to worry about bringing it back since all the supplies will be used up by then. Praise God, Aaron will be taking us to the airport so he'll do all the luggage and box wrangling when we check in! Thanks, Aaron!!!
We will check our e-mail daily so if you have any fun ideas of things to do....e-mail them to us!!!
We'll take things pretty easy. With the exception of our one booked excursion, we will do things that we can mostly drive around and see. Anything else we have to assure wheelchair accessibility.
The one thing we have booked is a "Jail and Sail"; 90 minute audio walking tour (well walking for me, riding in wheelchair for Ron!) of Alcatraz and then a sunset cruise of the bay.
We hope to drive down Highway 1 to Pebble Beach one day; maybe drive to Napa another day; and Muir woods and Sausalito another day. We'll play each day by ear, seeing how Ron is doing that day. We'll spend mid-morning to afternoon doing the tourist thing and then spend our evenings back at the hotel chillin'. Of course Sunday, Tuesday and Thursday evenings will be spent cheering on our Mavericks!
Please pray for safe travel, as well as a medically uneventful vacation. We could really use a low-stress time of refreshment! It's always a huge step out of my comfort zone to be so far away from our fabulous doctors, hospital and our support group. But I also know how important it is that we put our trust in God, not man. He is with us wherever we are, not just here. And He will supply whatever needs we may have, even in California!!! I have to choose to "be anxious for nothing". It's also imperative that Ron have some semblance of "normal" enjoyment of life and things to look forward to. But I tell ya, it's hard to step out in faith sometimes...even when it's to do fun things!!!
Look forward to sharing great things with you from our visit to Northern California. Will think of you often as we enjoy highs of 60 each day!
Thursday, April 21, 2011
Where the rubber meets the road...
After much prayer, discussion, consultation, agony, and many other emotions we have come to realize it is time to shut down Nordell Equipment Service Co. (NESCO). We have actively been trying to sell the company for the past couple of years to no success. We have had three promising possibilities, but unfortunately all have fallen through. The business has had a major decline over the past eighteen months and the value of the company, on paper, does not look attractive enough to have a serious buyer. Larry, my employee, decided to leave this past January. The calls that have been coming in since that time have been diverted to other companies so there has been no income to pay bills, except for the existing outstanding accounts. These are now exhausted for the most part.
Financially, the business is in good order as far as vendors and day to day expenses are concerned. However, in 2006 we took out a rather large SBA loan in the anticipation of expanding the business. At the time, this seemed to be the direction God was leading. Little did we know that a year later we would have our world change drastically with my illness. We are trying to make the right decisions based on God's direction on how to handle this situation. Bankruptcy appears to be our best, and possibly the only, option at this point since the business has not sold. Unfortunately, because of SBA laws requiring personal guarantees, this means not only filing bankruptcy for the busines, but personal bankruptcy as well.
The hardest part of all of this is the fact that we are holding our own in the personal finance area. It's a stretch, but God is faithful and always provides for our every need. All of our credit cards are paid off so the only outstanding debt we have is past and present (and most likely future) medical bills, along with our home mortgage. Though we have lived in our home for 25+ years, we have had to refinance on a couple of occassions.
We ask for your prayers as we seek His wisdom; yearning to hear His voice on what to do next.
I read in my bible today that trials will either turn you away from God or cause you to grow closer to Him. We choose to adhere to the latter and are trusting that this is NOT a negative but will become a positive as tomorrow brings a new beginning to something greater than we can imagine or hope for. I only wish the process was not so darn hard.
We realize this is alot of very personal information; and opening up in this intimate of a way is extremely difficult. However, we've felt from the beginning God has called us to be completely transparent in all things. We expected that in this stage of life we'd be doting on our grandkids (which we do!) and looking forward to future retirement...yet once again we're reminded that God's ways are not our ways.
Please don't hesitate to say what's on your mind; your thoughts and ideas are cherished and appreciated and will help us in making these difficult decisions.
With much love,
Ron
Financially, the business is in good order as far as vendors and day to day expenses are concerned. However, in 2006 we took out a rather large SBA loan in the anticipation of expanding the business. At the time, this seemed to be the direction God was leading. Little did we know that a year later we would have our world change drastically with my illness. We are trying to make the right decisions based on God's direction on how to handle this situation. Bankruptcy appears to be our best, and possibly the only, option at this point since the business has not sold. Unfortunately, because of SBA laws requiring personal guarantees, this means not only filing bankruptcy for the busines, but personal bankruptcy as well.
The hardest part of all of this is the fact that we are holding our own in the personal finance area. It's a stretch, but God is faithful and always provides for our every need. All of our credit cards are paid off so the only outstanding debt we have is past and present (and most likely future) medical bills, along with our home mortgage. Though we have lived in our home for 25+ years, we have had to refinance on a couple of occassions.
We ask for your prayers as we seek His wisdom; yearning to hear His voice on what to do next.
I read in my bible today that trials will either turn you away from God or cause you to grow closer to Him. We choose to adhere to the latter and are trusting that this is NOT a negative but will become a positive as tomorrow brings a new beginning to something greater than we can imagine or hope for. I only wish the process was not so darn hard.
We realize this is alot of very personal information; and opening up in this intimate of a way is extremely difficult. However, we've felt from the beginning God has called us to be completely transparent in all things. We expected that in this stage of life we'd be doting on our grandkids (which we do!) and looking forward to future retirement...yet once again we're reminded that God's ways are not our ways.
Please don't hesitate to say what's on your mind; your thoughts and ideas are cherished and appreciated and will help us in making these difficult decisions.
With much love,
Ron
Friday, April 8, 2011
The best laid plans of mice and men...
Oh, how we appreciate the persistent advocacy of Ron's doctors, as well as their willingness to think outside the box.
Just a couple of days after j-tube procedure, Ron hit a bit of a snafu. Due to the presence of the j-tube within the g-tube, g-tube is now narrowed, causing the risk of clogging to go up significantly. And clogged g-tube leads to yakking. And so the vicious cycle begins...again.
Three time daily water feeding through j-tube was going well; however, he was never able to advance to nutritional feed because of the recurrence of yakking due to clogged tube. After a couple of weeks of this daily (and sometimes twice daily) yakking, we realized it was time to take a step back and reassess.
The original plan was to try to place g-tube for drainage and venting purposes in order to allow relief from reflux and yakking. Somewhere along the line it seems focus shifted from g-tube for decompression to j-tube for feeding. We were definitely not opposed to j-tube feeding; however, it became apparent we need to get back to priority of finding solution to yakking issue.
With the daily yakking came sleepless nights due to severe reflux, gagging, etc.; and so the slippery slope of regression begins. He wouldn't mind having the added benefit of feedings through j-tube but, again, relief from reflux and yakking enabling him to get some sleep needs to be the priority.
So where does that leave us now?
Options:
1. Remove J-tube
2. Retain J-tube within G-tube and attempt to add another G-tube strictly for decompression/drainage
3. Keep current G-tube for decompression/drainage but consider another J-tube (to be placed surgically) for feeding tube
Option 1 seemed to be the way to go for now. Get back to the basics...get the yakking under control. Therefore, as of Wednesday, the hubby is now j-tube-less!
When he went in to IR (early!) Wednesday morning, Dr. D told him "this is going to hurt me alot more than it hurts you!" I'm sure this is true for each of his doctors with all the time, research and mental anguish they've spent in coming up with a viable option and then several attempts to make it work. It's frustrating for everyone that despite their best efforts to make things better; things just didn't pan out.
So, we'll take a step back, take a deep breath; and remember "For My thoughts are not your thoughts. Neither are your ways My ways," declares the Lord. "For as the heavens are higher than the earth, so are My ways higher than your ways, and My thoughts than your thoughts." Isaiah 55:8
Here's to days (and nights) free of yakking! Day three of no yakking, thus far!
Love, Christie
Just a couple of days after j-tube procedure, Ron hit a bit of a snafu. Due to the presence of the j-tube within the g-tube, g-tube is now narrowed, causing the risk of clogging to go up significantly. And clogged g-tube leads to yakking. And so the vicious cycle begins...again.
Three time daily water feeding through j-tube was going well; however, he was never able to advance to nutritional feed because of the recurrence of yakking due to clogged tube. After a couple of weeks of this daily (and sometimes twice daily) yakking, we realized it was time to take a step back and reassess.
The original plan was to try to place g-tube for drainage and venting purposes in order to allow relief from reflux and yakking. Somewhere along the line it seems focus shifted from g-tube for decompression to j-tube for feeding. We were definitely not opposed to j-tube feeding; however, it became apparent we need to get back to priority of finding solution to yakking issue.
With the daily yakking came sleepless nights due to severe reflux, gagging, etc.; and so the slippery slope of regression begins. He wouldn't mind having the added benefit of feedings through j-tube but, again, relief from reflux and yakking enabling him to get some sleep needs to be the priority.
So where does that leave us now?
Options:
1. Remove J-tube
2. Retain J-tube within G-tube and attempt to add another G-tube strictly for decompression/drainage
3. Keep current G-tube for decompression/drainage but consider another J-tube (to be placed surgically) for feeding tube
Option 1 seemed to be the way to go for now. Get back to the basics...get the yakking under control. Therefore, as of Wednesday, the hubby is now j-tube-less!
When he went in to IR (early!) Wednesday morning, Dr. D told him "this is going to hurt me alot more than it hurts you!" I'm sure this is true for each of his doctors with all the time, research and mental anguish they've spent in coming up with a viable option and then several attempts to make it work. It's frustrating for everyone that despite their best efforts to make things better; things just didn't pan out.
So, we'll take a step back, take a deep breath; and remember "For My thoughts are not your thoughts. Neither are your ways My ways," declares the Lord. "For as the heavens are higher than the earth, so are My ways higher than your ways, and My thoughts than your thoughts." Isaiah 55:8
Here's to days (and nights) free of yakking! Day three of no yakking, thus far!
Love, Christie
Sunday, March 20, 2011
Spring Break Events
It's been a busy, busy week with rounds two and three of our Spring Break Presby-palooza on Monday and Wednesday respectively.
Monday's study revealed Ron's duodenum (first section of intestine just past stomach) collapses into itself when he's lying flat on his back, keeping things from passing from the stomach into his intestines. It will then periodically "burst open" releasing everything. Thus, one of the reasons insertion of j-tube was unsuccessful Friday. This is also a HUGE contributor to his nightly reflux.
Dr. D also said study showed he still had quite a bit of dye in his system from Friday's procedure and encouraged him to drink alot of water over the next couple of days to help flush out. Unfortunately, Wednesday's procedure also involved introducing more dye.
The high amounts of dye he was subjected to over a five day period really did a number on his system, thereby causing a need to stay close to home the remainder of the week; while also heightening the possibility of dehydration. Hopefully, by Monday it should all be behind him (sorry, just couldn't help myself!)
Wednesday's procedure was a success! Dr. D was confident it would go smoothly after having had a bird's eye view of how his digestive system works and said it would take 20-30 minutes...at most an hour. I was getting a little concerned once we reached the 2 hour mark and he was still in; then again, I should have expected it with my unique guy. . The j-tube insertion from stomach to duodenum did go smoothly; weaving his way through the rest of the duodenum and jejunum to get past the functionally blocked section was quite a challenge, since his does not take the normal path. The longest j-tube they have was b-a-r-e-l-y long enough to reach the area needed.
Recovery was a breeze, since he was awake throughout the entire procedure, and we were home by early afternoon. We're hoping for another added benefit - now that the j-tube is in place, it should help to keep the duodenum open (as opposed to collapsing into itself when he's sleeping), thus keeping the reflux at bay.
What now?
He is to inject 12 oz of water 3 times a day via j-tube for the next week to see how his body intestines tolerate. He is also to keep oral intake of food to a minimum since the j-tube is threaded through the g-tube (a tube within a tube); the g-tube will be more likely to clog thereby causing yakking. So far things are going ok. The tube feed (water) causes some cramping; he's had a couple of yakking episodes and one episode of tubing coming apart (that was a lovely mess to start St. Patrick's Day...what a way to go green!)
We are so very thankful both of these procedures were able to be performed as outpatient. Nothing beats sleeping in your own bed at night; and napping in your own recliner during the day!
We kept things pretty low-key the rest of the week, with the highlight of Spring Break being keeping our girls while both mommy and daddy worked Friday.
One of my favorite things I look forward to over Spring Break is planting flowers. With everything else going on, as well as finances being as they are, I didn't think I'd have the opportunity. However, we were blessed with an unexpected financial gift by some sweet friends which allowed us to pick up some flowers, potting soil and mulch today. I've been one dirty, sweaty, happy camper as I've pulled out the old, dead stuff and planted beautiful, blooming hibiscus, Mexican heather, alyssum and a few others. Tomorrow afternoon, I plan to weed my rose bed and spread mulch, yippee!!!
There's just something therapeutic about working in the soil. As we were making our selections; I was thinking how many analogies there are in the Bible making comparisons of our lives/hearts to plants/planting/soil:
"I am the true vine, and my Father is the gardener. He cuts off every branch in Me that bears no fruit; while very branch that does bear fruit He prunes so that it will be even more fruitful." John 15:1
"I am the vine, you are the branches. If a man remains in Me and I in him he will bear much fruit; apart from Me you can do nothing." John 15:5
The parable of the four soils: Luke 8:5-15 (selected):
"A farmer went out to sow his seeds. (The seed is the word of God) As he was scattering the seed, some fell along the path (the ones who hear and then the devil comes and takes away the word from their hearts, so that they may not believe and be saved)....Some fell on rock (those who receive the word with joy when they hear it, but they have no root...in the time of testing they fall away). Other seed fell among thorns (those who hear, but as they go on their way they are choked by life's worries, riches and pleasures, and they do not mature. Still other seed fell on good soil (those...who hear the word, retain it, and by persevering produce a crop).
John 12:24
"I tell you the truth, unless a kernel of wheat falls to the ground and dies, it remains only a single seed. But if it dies, it produces many seeds. The man who loves his life will lose it, while the man who hates his life in this world will keep it for eternal life."
1 Peter 1:23-24
"You have been born again, not of perishable seed, but of imperishable, through the living and enduring word of God. For, all men are like grass and all their glory is like the flowers of the field; the grass withers and the flowers fall, but the word of the Lord stands forever"
Thank you, Father, for speaking in ways that I may understand, and retain (some of the time!).
Happy Spring!
Christie
Monday's study revealed Ron's duodenum (first section of intestine just past stomach) collapses into itself when he's lying flat on his back, keeping things from passing from the stomach into his intestines. It will then periodically "burst open" releasing everything. Thus, one of the reasons insertion of j-tube was unsuccessful Friday. This is also a HUGE contributor to his nightly reflux.
Dr. D also said study showed he still had quite a bit of dye in his system from Friday's procedure and encouraged him to drink alot of water over the next couple of days to help flush out. Unfortunately, Wednesday's procedure also involved introducing more dye.
The high amounts of dye he was subjected to over a five day period really did a number on his system, thereby causing a need to stay close to home the remainder of the week; while also heightening the possibility of dehydration. Hopefully, by Monday it should all be behind him (sorry, just couldn't help myself!)
Wednesday's procedure was a success! Dr. D was confident it would go smoothly after having had a bird's eye view of how his digestive system works and said it would take 20-30 minutes...at most an hour. I was getting a little concerned once we reached the 2 hour mark and he was still in; then again, I should have expected it with my unique guy. . The j-tube insertion from stomach to duodenum did go smoothly; weaving his way through the rest of the duodenum and jejunum to get past the functionally blocked section was quite a challenge, since his does not take the normal path. The longest j-tube they have was b-a-r-e-l-y long enough to reach the area needed.
Recovery was a breeze, since he was awake throughout the entire procedure, and we were home by early afternoon. We're hoping for another added benefit - now that the j-tube is in place, it should help to keep the duodenum open (as opposed to collapsing into itself when he's sleeping), thus keeping the reflux at bay.
What now?
He is to inject 12 oz of water 3 times a day via j-tube for the next week to see how his body intestines tolerate. He is also to keep oral intake of food to a minimum since the j-tube is threaded through the g-tube (a tube within a tube); the g-tube will be more likely to clog thereby causing yakking. So far things are going ok. The tube feed (water) causes some cramping; he's had a couple of yakking episodes and one episode of tubing coming apart (that was a lovely mess to start St. Patrick's Day...what a way to go green!)
We are so very thankful both of these procedures were able to be performed as outpatient. Nothing beats sleeping in your own bed at night; and napping in your own recliner during the day!
We kept things pretty low-key the rest of the week, with the highlight of Spring Break being keeping our girls while both mommy and daddy worked Friday.
One of my favorite things I look forward to over Spring Break is planting flowers. With everything else going on, as well as finances being as they are, I didn't think I'd have the opportunity. However, we were blessed with an unexpected financial gift by some sweet friends which allowed us to pick up some flowers, potting soil and mulch today. I've been one dirty, sweaty, happy camper as I've pulled out the old, dead stuff and planted beautiful, blooming hibiscus, Mexican heather, alyssum and a few others. Tomorrow afternoon, I plan to weed my rose bed and spread mulch, yippee!!!
There's just something therapeutic about working in the soil. As we were making our selections; I was thinking how many analogies there are in the Bible making comparisons of our lives/hearts to plants/planting/soil:
"I am the true vine, and my Father is the gardener. He cuts off every branch in Me that bears no fruit; while very branch that does bear fruit He prunes so that it will be even more fruitful." John 15:1
"I am the vine, you are the branches. If a man remains in Me and I in him he will bear much fruit; apart from Me you can do nothing." John 15:5
The parable of the four soils: Luke 8:5-15 (selected):
"A farmer went out to sow his seeds. (The seed is the word of God) As he was scattering the seed, some fell along the path (the ones who hear and then the devil comes and takes away the word from their hearts, so that they may not believe and be saved)....Some fell on rock (those who receive the word with joy when they hear it, but they have no root...in the time of testing they fall away). Other seed fell among thorns (those who hear, but as they go on their way they are choked by life's worries, riches and pleasures, and they do not mature. Still other seed fell on good soil (those...who hear the word, retain it, and by persevering produce a crop).
John 12:24
"I tell you the truth, unless a kernel of wheat falls to the ground and dies, it remains only a single seed. But if it dies, it produces many seeds. The man who loves his life will lose it, while the man who hates his life in this world will keep it for eternal life."
1 Peter 1:23-24
"You have been born again, not of perishable seed, but of imperishable, through the living and enduring word of God. For, all men are like grass and all their glory is like the flowers of the field; the grass withers and the flowers fall, but the word of the Lord stands forever"
Thank you, Father, for speaking in ways that I may understand, and retain (some of the time!).
Happy Spring!
Christie
Sunday, March 13, 2011
Going Deeper
Thanks everyone for your sweet words of encouragement and care!
Ron was in quite a bit of pain for the first 24 hours, but is doing much better today and actually felt up to eating a little.
I know my last email caused some concern, but I want to assure you we are doing well emotionally and spiritually; evidence you've been praying and God has been answering!
We'll be off again bright and early to Presbyterian for swallow study tomorrow. Please pray things go smoothly and it provides definitive direction.
You are much appreciated and loved!
Christie
God may allow our hearts to be broken so He can get deeper into them.
"For though He wounds, He binds and heals again. He will deliver you again and again, so that no evil can touch you." Job 5:18 & 19 The Living Bible
Ron was in quite a bit of pain for the first 24 hours, but is doing much better today and actually felt up to eating a little.
I know my last email caused some concern, but I want to assure you we are doing well emotionally and spiritually; evidence you've been praying and God has been answering!
We'll be off again bright and early to Presbyterian for swallow study tomorrow. Please pray things go smoothly and it provides definitive direction.
You are much appreciated and loved!
Christie
God may allow our hearts to be broken so He can get deeper into them.
"For though He wounds, He binds and heals again. He will deliver you again and again, so that no evil can touch you." Job 5:18 & 19 The Living Bible
Saturday, March 12, 2011
I Still Believe
Friday proved to be a l-o-n-g day at Presby. We had to arrive by 8, however procedure didn't get started until 11:30. Dr. D said it would take about 2 hours to replace the PICC, super-size the G-tube and get J-tube inserted and threaded down to optimal area of intestines.
2 hours passed; then 3 and then 4...and I'm trolling the vending machines for some powdered-sugar donuts; my go to food when I'm feeling anxious at Presby. Fortunately/unfortunately, there were none to be found.
Finally, I'm told he's finished and has been taken to recovery. A few minutes later Dr. D comes out to talk with me. He was disappointed to report that he was unable to place the J-tube. He was able to get it into the stomach, however when trying to thread j-tube out of stomach, down the intestines, he kept running into dead ends. He finally gave up at the 4 hour mark.
Ron spent a little time in recovery and was then sent back up to his room in the outpatient unit with plans to be discharged; which he was after a couple of hours of observation, instructions for nothing by mouth for the next 24 hours and a lollipop for the ride home (love those lolli's!).
So, what now?
It's well known that my hubby's anatomy is quite unique due to the numerous surgeries, procedures and complications he's experienced. His intestines are not in the same position as most of us; nor does it follow the normal back and forth loopy pattern. He has many sharp turns and angles, add in all the tethering and it becomes a twisty, turny roller coaster. Dr. D feels when Ron is lying flat on his back his intestines lay over on themselves; which would contribute to the severe reflux he experiences.
Plan is to do a swallow study on Monday morning (at Presby, of course). This will give them a better idea of the path to take. They will then try again to insert the j-tube on Wednesday.
It was a very quiet car ride home. We were both disappointed, discouraged and felt totally beaten down. And, I confess, I wanted to stomp my feet, throw a little hissy fit and scream "REALLY, God? Can't we catch one little break????"
I want to be able to pray "Your will be done" and mean it; but there are times when we just want things to be less complicated and go according to the plans we've made.
But, God....
I could stop right there; that's all I should need to remember...but, God!
Now there's nothing wrong with wanting something; praying for something to go a certain way. Jesus didn't necessarily want to wait so long to go to His friend, Lazarus, before He died. And Lazarus's sisters prayed for God to heal their brother. But God had a different plan in mind. One that went far beyond healing Lazarus's sickness. (John 11:1-45) The key is whether we are willing to give up what we want and submit to His plan. To be able to pray "Your will be done" and really mean it!
No, He doesn't work according to what I want. But, He always works according to His eternal plan. And that plan, my friend, is P-E-R-F-E-C-T!
Please continue to keep my sweet guy in your prayers.
Much love,
Christie
As we were traveling home, this song came on and I felt it really spoke to our hearts. Yes,
believing is a choice.
Enjoy video link below.
I Still Believe - Jeremy Camp
http://www.youtube.com/watch?v=R4qPceadBMU
Scattered words and empty thoughts
seem to pour from my heart
I've never felt so torn before
seems I don't know where to start
but it's now that I feel Your grace falls like rain
from every fingertip, washing away my pain
'Cause I still believe in Your faithfulness
I still believe in Your truth
I still believe in Your holy word
even when I don't see, I still believe
Though the questions still fog up my mind
with promises I still seem to bear
even when answers slowly unwind
it's my heart I see You prepare
but its now that I feel Your grace fall like rain
from every finger tip, washing away my pain
Cause I still believe in Your faithfulness
I still believe in Your truth
I still believe in Your holy word
even when I don't see, I still believe
The only place I can go is into your arms
where I throw to you my feeble prayers
in brokenness I can see that this was your will for me
Help me to know You are near
'Cause I still believe in Your faithfulness
I still believe in Your truth
I still believe in Your holy word
even when I don't see, I still believe
'Cause I still believe
Well I still believe
I still believe
I still believe
2 hours passed; then 3 and then 4...and I'm trolling the vending machines for some powdered-sugar donuts; my go to food when I'm feeling anxious at Presby. Fortunately/unfortunately, there were none to be found.
Finally, I'm told he's finished and has been taken to recovery. A few minutes later Dr. D comes out to talk with me. He was disappointed to report that he was unable to place the J-tube. He was able to get it into the stomach, however when trying to thread j-tube out of stomach, down the intestines, he kept running into dead ends. He finally gave up at the 4 hour mark.
Ron spent a little time in recovery and was then sent back up to his room in the outpatient unit with plans to be discharged; which he was after a couple of hours of observation, instructions for nothing by mouth for the next 24 hours and a lollipop for the ride home (love those lolli's!).
So, what now?
It's well known that my hubby's anatomy is quite unique due to the numerous surgeries, procedures and complications he's experienced. His intestines are not in the same position as most of us; nor does it follow the normal back and forth loopy pattern. He has many sharp turns and angles, add in all the tethering and it becomes a twisty, turny roller coaster. Dr. D feels when Ron is lying flat on his back his intestines lay over on themselves; which would contribute to the severe reflux he experiences.
Plan is to do a swallow study on Monday morning (at Presby, of course). This will give them a better idea of the path to take. They will then try again to insert the j-tube on Wednesday.
It was a very quiet car ride home. We were both disappointed, discouraged and felt totally beaten down. And, I confess, I wanted to stomp my feet, throw a little hissy fit and scream "REALLY, God? Can't we catch one little break????"
I want to be able to pray "Your will be done" and mean it; but there are times when we just want things to be less complicated and go according to the plans we've made.
But, God....
I could stop right there; that's all I should need to remember...but, God!
Now there's nothing wrong with wanting something; praying for something to go a certain way. Jesus didn't necessarily want to wait so long to go to His friend, Lazarus, before He died. And Lazarus's sisters prayed for God to heal their brother. But God had a different plan in mind. One that went far beyond healing Lazarus's sickness. (John 11:1-45) The key is whether we are willing to give up what we want and submit to His plan. To be able to pray "Your will be done" and really mean it!
No, He doesn't work according to what I want. But, He always works according to His eternal plan. And that plan, my friend, is P-E-R-F-E-C-T!
Please continue to keep my sweet guy in your prayers.
Much love,
Christie
As we were traveling home, this song came on and I felt it really spoke to our hearts. Yes,
believing is a choice.
Enjoy video link below.
I Still Believe - Jeremy Camp
http://www.youtube.com/watch?v=R4qPceadBMU
Scattered words and empty thoughts
seem to pour from my heart
I've never felt so torn before
seems I don't know where to start
but it's now that I feel Your grace falls like rain
from every fingertip, washing away my pain
'Cause I still believe in Your faithfulness
I still believe in Your truth
I still believe in Your holy word
even when I don't see, I still believe
Though the questions still fog up my mind
with promises I still seem to bear
even when answers slowly unwind
it's my heart I see You prepare
but its now that I feel Your grace fall like rain
from every finger tip, washing away my pain
Cause I still believe in Your faithfulness
I still believe in Your truth
I still believe in Your holy word
even when I don't see, I still believe
The only place I can go is into your arms
where I throw to you my feeble prayers
in brokenness I can see that this was your will for me
Help me to know You are near
'Cause I still believe in Your faithfulness
I still believe in Your truth
I still believe in Your holy word
even when I don't see, I still believe
'Cause I still believe
Well I still believe
I still believe
I still believe
Thursday, March 10, 2011
Spring Break...Let the Fun Begin!!!
Ahhhhh....! I'm actually getting a head start on Spring Break by taking off tomorrow. Though it might make you jealous, I couldn't wait to share where I'm spending SB '11. Bright and early tomorrow morning, my sweetheart and I are headed out to ....Presbyterian!!!! Woohoo!!! What better way to spend a school break than with our friends at Presby??
Ron will have several procedures performed tomorrow and I'm so thankful I won't have to worry about missing any work next week as I tend to my guy.
Although the G-tube has been successful in keeping him from yakking, he's still unable to eat much without the tube getting clogged, so Dr. D will place a new, larger g-tube in the same location in hopes of alleviating this issue.
Dr. D willl also insert a new PICC line. Ron is having problems with his current PICC line -- one of the lines will not flush and the other has become very difficult to flush as well..not a good thing when your nutrition is dependent on IV access.
And last, but not least, he will be getting a J-tube (J- jejunal - which refers to a specific portion of your intestines). They will actually place a double lumen at the g-tube site. One of the tubes will be to drain the stomach; the other tube will be threaded down his intestines in order to give direct feeds. The intestines only receive nourishment from that which directly passes through them, unlike the rest of the body which can receive nourishment through artificial IV nutrition (TPN).
The goal is to get the bowel fed directly by placing the J-tube and hooking up liquid feeds directly to the intestines in order to get it "beefed up". Hopefully, as the lower portion gets "exercised" by this type of feeding, and that area becomes healthy, it will have a ripple effect with the upper portion of the intestines eventually getting healthier, as well.
Ron has a large section of bowel that is "functionally" blocked. It is not physically blocked, however, due to all the scar tissue, as well as nerve damage in that area, it acts as if there is a physical blockage. Dr. D will attempt to thread the J-tube down past this area to have the greatest chance of success.
He will continue to be hooked up to TPN at night and now add in the J-tube feed. He also has the option to take in food orally but is not dependent on oral foods being absorbed.
We are so very thankful for Dr. D, Dr. A and Dr. S. Their tenacity and persistance knows no bounds. They are always researching ways to get Ron healthier in order to ensure the best quality of life possible.
Enjoy your Spring Break. If we come to mind; please say a prayer on our behalf!
Much love,
Christie
"When you pass through the waters...they will not sweep over you." Isaiah 43:2
God does not open paths for us before we come to them, or provide help before help is needed. Yet when we are at our point of need, God's hand is outstretched.
J.R.M (not sure who this is, but love the quote!) Streams in the Desert
Ron will have several procedures performed tomorrow and I'm so thankful I won't have to worry about missing any work next week as I tend to my guy.
Although the G-tube has been successful in keeping him from yakking, he's still unable to eat much without the tube getting clogged, so Dr. D will place a new, larger g-tube in the same location in hopes of alleviating this issue.
Dr. D willl also insert a new PICC line. Ron is having problems with his current PICC line -- one of the lines will not flush and the other has become very difficult to flush as well..not a good thing when your nutrition is dependent on IV access.
And last, but not least, he will be getting a J-tube (J- jejunal - which refers to a specific portion of your intestines). They will actually place a double lumen at the g-tube site. One of the tubes will be to drain the stomach; the other tube will be threaded down his intestines in order to give direct feeds. The intestines only receive nourishment from that which directly passes through them, unlike the rest of the body which can receive nourishment through artificial IV nutrition (TPN).
The goal is to get the bowel fed directly by placing the J-tube and hooking up liquid feeds directly to the intestines in order to get it "beefed up". Hopefully, as the lower portion gets "exercised" by this type of feeding, and that area becomes healthy, it will have a ripple effect with the upper portion of the intestines eventually getting healthier, as well.
Ron has a large section of bowel that is "functionally" blocked. It is not physically blocked, however, due to all the scar tissue, as well as nerve damage in that area, it acts as if there is a physical blockage. Dr. D will attempt to thread the J-tube down past this area to have the greatest chance of success.
He will continue to be hooked up to TPN at night and now add in the J-tube feed. He also has the option to take in food orally but is not dependent on oral foods being absorbed.
We are so very thankful for Dr. D, Dr. A and Dr. S. Their tenacity and persistance knows no bounds. They are always researching ways to get Ron healthier in order to ensure the best quality of life possible.
Enjoy your Spring Break. If we come to mind; please say a prayer on our behalf!
Much love,
Christie
"When you pass through the waters...they will not sweep over you." Isaiah 43:2
God does not open paths for us before we come to them, or provide help before help is needed. Yet when we are at our point of need, God's hand is outstretched.
J.R.M (not sure who this is, but love the quote!) Streams in the Desert
Sunday, February 27, 2011
Your Will Be Done
We get so wrapped up in what's going on in the ups and downs of our own life that sometimes it seems we need a kick in the pants to to get our focus back where it belongs.
Though we don't make it to church often, we are always so blessed when we do. This morning's sermon "The Most Difficult Prayer We Will Ever Pray" really spoke to both of us..
Matthew 6:9-13 is commonly referred to as "The Lord's Prayer". Luke 11 references this passage as well and also records that the disciples wanted Jesus to teach them to pray just as John the Baptist taught his disciples to pray. Jesus responded, "This, then, is how you should pray:"
"Our Father in heaven,
Hallowed be Your name.
Your Kingdom come,
Your will be done,
On earth as it is in heaven
Give us today our daily bread.
And forgive us our debts,
As we also have forgiven our debtors.
And lead us not into temptation,
But deliver us from the evil one.
For Yours is the kingdom,
And the power and the glory forever.
Amen."
(New International Version)
The main focus of PT's sermon was in verse 10 "Your will be done". If we truly mean it when we pray "Your will be done" we're committing to take our hands off and allow Him to have free reign. The key is giving up control!
Ouch!! Anyone else feel their toes just got trampled all over?
That "c" word ranks right up there with the all too familiar "p" word (pride). In reality, control is only an illusion; and pride...well, you know the Proverb "pride goes before destruction". The crux of the matter is, Satan tries to fool us into thinking we know best, and then we begin to believe the lie that what we want is better than what God wants for us.
Many (most?) of our prayers are based around a desire for God to change our circumstances to our liking. "You know, God, I've got this handled. Everything's all lined out, ready to fall into place. If you would just take care of this one little circumstance and bless this plan, I'll take it from there". However, God's more interested in changing our hearts.....the way we relate to our circumstances; not necessarily changing the cirsumstance itself.
This kind of prayer demands total dependence and absolute trust! Yet, when we choose His path, we can pray "Your will be done" without reservation! The truth is, when we have an abiding, intimate relationship with God, He will change our desires to be in line with His desires for us.
It's not about us--what we want--it's about following His will and giving Him glory. Not always an easy task. Jesus knew this first hand; He faced tremendous pain and suffering in His obedience. He was confident in His commitment to do whatever was His Father's will!
In John 6:38 Jesus said: "For I have come down from heaven to do the will of God who sent me, not to do what I want."
Yes, God's will is sometimes hard to understand. It can be costly and often brings pain and suffering...but are you willing to consider the cost of living outside of His will?
"How can we understand the road we travel? It is the Lord who directs our steps." Proverbs 20:24
Thanks, PT! Needed the reminder that it's not about our circumstances being changed (tho we'd really like that!) but all about allowing Him to mold our hearts through the circumstances.
Though we don't make it to church often, we are always so blessed when we do. This morning's sermon "The Most Difficult Prayer We Will Ever Pray" really spoke to both of us..
Matthew 6:9-13 is commonly referred to as "The Lord's Prayer". Luke 11 references this passage as well and also records that the disciples wanted Jesus to teach them to pray just as John the Baptist taught his disciples to pray. Jesus responded, "This, then, is how you should pray:"
"Our Father in heaven,
Hallowed be Your name.
Your Kingdom come,
Your will be done,
On earth as it is in heaven
Give us today our daily bread.
And forgive us our debts,
As we also have forgiven our debtors.
And lead us not into temptation,
But deliver us from the evil one.
For Yours is the kingdom,
And the power and the glory forever.
Amen."
(New International Version)
The main focus of PT's sermon was in verse 10 "Your will be done". If we truly mean it when we pray "Your will be done" we're committing to take our hands off and allow Him to have free reign. The key is giving up control!
Ouch!! Anyone else feel their toes just got trampled all over?
That "c" word ranks right up there with the all too familiar "p" word (pride). In reality, control is only an illusion; and pride...well, you know the Proverb "pride goes before destruction". The crux of the matter is, Satan tries to fool us into thinking we know best, and then we begin to believe the lie that what we want is better than what God wants for us.
Many (most?) of our prayers are based around a desire for God to change our circumstances to our liking. "You know, God, I've got this handled. Everything's all lined out, ready to fall into place. If you would just take care of this one little circumstance and bless this plan, I'll take it from there". However, God's more interested in changing our hearts.....the way we relate to our circumstances; not necessarily changing the cirsumstance itself.
This kind of prayer demands total dependence and absolute trust! Yet, when we choose His path, we can pray "Your will be done" without reservation! The truth is, when we have an abiding, intimate relationship with God, He will change our desires to be in line with His desires for us.
It's not about us--what we want--it's about following His will and giving Him glory. Not always an easy task. Jesus knew this first hand; He faced tremendous pain and suffering in His obedience. He was confident in His commitment to do whatever was His Father's will!
In John 6:38 Jesus said: "For I have come down from heaven to do the will of God who sent me, not to do what I want."
Yes, God's will is sometimes hard to understand. It can be costly and often brings pain and suffering...but are you willing to consider the cost of living outside of His will?
"How can we understand the road we travel? It is the Lord who directs our steps." Proverbs 20:24
Thanks, PT! Needed the reminder that it's not about our circumstances being changed (tho we'd really like that!) but all about allowing Him to mold our hearts through the circumstances.
Thursday, February 10, 2011
February musings
We've been home from our last little stay at Presby for two weeks now and it's certainly been busy. I'm so thankful God blessed us with an extended break due to last week's winter weather and another unexpected day off Wednesday....the downtime has been much needed!
You'd think with all this extra time off; I'd do something productive; but to be honest...despite being off of work 4 days last week, and 1 this week; I'm still behind in my reading of my one-year chronological Bible and it's taken me two weeks to catch everyone up on what's going on around here.
However, we did spend a glorious weekend playing with our precious girls...who, by the way, are both now walking! That sweet little Frankenstein walk...both arms out, slow, stiff-legged, hilarious! They "talk", giggle and play together and also enjoy reading books, and have begun to imitate animal sounds as well as kisses. But my favorite is to see how they seem to truly love each other and can be so sweet to one another. I may be a little biased, but they are just the cutest baby girls!!! Most definitely double the blessing!
Sorry, got off on a rabbit trail; on to the news you really want to know:
We knew this latest procedure would not be a cure-all, but Ron was quite disappointed to wake up yakking the first morning home. However, I fear I'm to blame. Being the fabulous wife I am, (wink, wink), I decided to prepare a healthy, nutritious meal of salmon, pasta, steamed veggies , fresh cherries, and as an added treat, I stopped by Sprinkles to pick up his favorite--German Chocolate cupcake. Seems we were both so excited about this step forward, we forgot the first cardinal rule of someone with digestive issues...stick to easily digestible foods! No seeds, nuts, skins; etc. We found out the hard way that the g-tube is easily clogged, which, you guessed it, forces everything to come back up!
So, we've had to make several adjustments in eating habits. It's been a struggle but I'm happy to report, he has only yakked one other time...which had nothing to do with the g-tube/digestive issues!
We did have to make a little trip to Presby over the weekend...drain bag busted...quite a joy to wake up to...and since they had to construct apparatus specific to his unique needs; we had to make a trip in so they could reconstruct another. We were keeping the girls for the weekend so they were along for the ride. As soon as we entered the hospital we had to get a picture of them. You know you've been around a hospital too long when the first thing you do is take a picture to commemorate your grandbabies first trip there!
Sunday afternoon, Ron suddenly felt he'd been hit by a truck...more lethargic than usual, no appetite, stiff neck, body aches, joint pains and a monster headache. Anytime something comes on that suddenly, everyone worries that it might be an infection in his PICC; and being that it goes directly to his heart, well, you get the picture.
By Monday afternoon, he was running a fever. Per Dr. A's orders, off we went to have bloodwork and cultures run. Temp continued to climb all day so decision was made to go to the after-hours clinic for a full assessment. After being poked, prodded and having that nasty flu swab done, along with a sudden, random yakking episode; praise God, he tested negative for the flu. Clinic doctor said it looked to be a virus that should run it's course within about 5 days, however he would feel worse before he felt better...yippee! True to course, that night was a rough one with temp getting up to 102.3.
We found out Wednesday morning that the lab lost his blood vials and needed him to go back for another set of blood draws and cultures. Yes, this was the day schools were closed due to ice, snow and cold. We waited until afternoon when the roads had cleared up before we ventured out.
It's so good to see him finally feeling better - no fever in over 24 hours, good sleep the last couple of nights and he finally feels like eating a little.
I think I've covered just about everything now...hope you feel in the loop!
Much love,
Christie
Though I'm behind in my readings, God continues to speak to me in many ways. Exodus 10:2 (NLT) has been a sweet reminder of God's perfect plan regardless of what we're going through.
"You will be able to tell wonderful stories to your children and grandchildren about the marvelous things I am doing...to prove that I am the Lord"
along with Job 26:14 NLT
"These are just the beginning of all that He does, merely a whisper of His power"
When life gets complicated and you've dealt with difficult circumstances for an extended period of time you can easily feel abandoned. I'm so thankful we can rest in KNOWING God has promised to NEVER leave or forsake us! Even when we hurt so badly our disappointments cause us to doubt His plan and we turn from Him, He is ALWAYS there...loving us, washing us with His peace and grace. However, we have to CHOOSE to trust, CHOOSE to believe, CHOOSE to praise, CHOOSE to follow Him...no matter where the path takes us.
This great song by Heather Williams says it so well:
Hallelujah
http://www.youtube.com/watch?v=Ufof-XgwhOs
Jesus, please come
please come today
hear me
heal me
be near me I pray
I have fallen so far
flat on my face
I'm in need of your grace today
I stumble and fall
but in spite of it all
your love always stays the same
Hallelujah
Hallelujah
Jesus, please come
please come today
break me
mold me
use me I pray
but don't give up on me now
I'm so close to you now
I'm in need of your grace today
wipe the dirt off my face
hold me in your embrace
your love always saves the day
Hallelujah
Hallelujah
I have fallen so far
flat on my face
I'm in need of your grace today
Hallelujah
Hallelujah
Sing Hallelujah
Sing Hallelujah
Sing Hallelujah amen
On my knees here I fall
in spite of it all
Hallelujah
And though it seems hard
I'm still trusting you Lord
Hallelujah
Hallelujah
You'd think with all this extra time off; I'd do something productive; but to be honest...despite being off of work 4 days last week, and 1 this week; I'm still behind in my reading of my one-year chronological Bible and it's taken me two weeks to catch everyone up on what's going on around here.
However, we did spend a glorious weekend playing with our precious girls...who, by the way, are both now walking! That sweet little Frankenstein walk...both arms out, slow, stiff-legged, hilarious! They "talk", giggle and play together and also enjoy reading books, and have begun to imitate animal sounds as well as kisses. But my favorite is to see how they seem to truly love each other and can be so sweet to one another. I may be a little biased, but they are just the cutest baby girls!!! Most definitely double the blessing!
Sorry, got off on a rabbit trail; on to the news you really want to know:
We knew this latest procedure would not be a cure-all, but Ron was quite disappointed to wake up yakking the first morning home. However, I fear I'm to blame. Being the fabulous wife I am, (wink, wink), I decided to prepare a healthy, nutritious meal of salmon, pasta, steamed veggies , fresh cherries, and as an added treat, I stopped by Sprinkles to pick up his favorite--German Chocolate cupcake. Seems we were both so excited about this step forward, we forgot the first cardinal rule of someone with digestive issues...stick to easily digestible foods! No seeds, nuts, skins; etc. We found out the hard way that the g-tube is easily clogged, which, you guessed it, forces everything to come back up!
So, we've had to make several adjustments in eating habits. It's been a struggle but I'm happy to report, he has only yakked one other time...which had nothing to do with the g-tube/digestive issues!
We did have to make a little trip to Presby over the weekend...drain bag busted...quite a joy to wake up to...and since they had to construct apparatus specific to his unique needs; we had to make a trip in so they could reconstruct another. We were keeping the girls for the weekend so they were along for the ride. As soon as we entered the hospital we had to get a picture of them. You know you've been around a hospital too long when the first thing you do is take a picture to commemorate your grandbabies first trip there!
Sunday afternoon, Ron suddenly felt he'd been hit by a truck...more lethargic than usual, no appetite, stiff neck, body aches, joint pains and a monster headache. Anytime something comes on that suddenly, everyone worries that it might be an infection in his PICC; and being that it goes directly to his heart, well, you get the picture.
By Monday afternoon, he was running a fever. Per Dr. A's orders, off we went to have bloodwork and cultures run. Temp continued to climb all day so decision was made to go to the after-hours clinic for a full assessment. After being poked, prodded and having that nasty flu swab done, along with a sudden, random yakking episode; praise God, he tested negative for the flu. Clinic doctor said it looked to be a virus that should run it's course within about 5 days, however he would feel worse before he felt better...yippee! True to course, that night was a rough one with temp getting up to 102.3.
We found out Wednesday morning that the lab lost his blood vials and needed him to go back for another set of blood draws and cultures. Yes, this was the day schools were closed due to ice, snow and cold. We waited until afternoon when the roads had cleared up before we ventured out.
It's so good to see him finally feeling better - no fever in over 24 hours, good sleep the last couple of nights and he finally feels like eating a little.
I think I've covered just about everything now...hope you feel in the loop!
Much love,
Christie
Though I'm behind in my readings, God continues to speak to me in many ways. Exodus 10:2 (NLT) has been a sweet reminder of God's perfect plan regardless of what we're going through.
"You will be able to tell wonderful stories to your children and grandchildren about the marvelous things I am doing...to prove that I am the Lord"
along with Job 26:14 NLT
"These are just the beginning of all that He does, merely a whisper of His power"
When life gets complicated and you've dealt with difficult circumstances for an extended period of time you can easily feel abandoned. I'm so thankful we can rest in KNOWING God has promised to NEVER leave or forsake us! Even when we hurt so badly our disappointments cause us to doubt His plan and we turn from Him, He is ALWAYS there...loving us, washing us with His peace and grace. However, we have to CHOOSE to trust, CHOOSE to believe, CHOOSE to praise, CHOOSE to follow Him...no matter where the path takes us.
This great song by Heather Williams says it so well:
Hallelujah
http://www.youtube.com/watch?v=Ufof-XgwhOs
Jesus, please come
please come today
hear me
heal me
be near me I pray
I have fallen so far
flat on my face
I'm in need of your grace today
I stumble and fall
but in spite of it all
your love always stays the same
Hallelujah
Hallelujah
Jesus, please come
please come today
break me
mold me
use me I pray
but don't give up on me now
I'm so close to you now
I'm in need of your grace today
wipe the dirt off my face
hold me in your embrace
your love always saves the day
Hallelujah
Hallelujah
I have fallen so far
flat on my face
I'm in need of your grace today
Hallelujah
Hallelujah
Sing Hallelujah
Sing Hallelujah
Sing Hallelujah amen
On my knees here I fall
in spite of it all
Hallelujah
And though it seems hard
I'm still trusting you Lord
Hallelujah
Hallelujah
Wednesday, January 26, 2011
Gimme a G!
Procedure went well; 3+ hours of workin' on my guy but they were able to accomplish what they set out to do--G-tube is in place!
"In place" is a relative term for my unique guys anatomy. The only place they could access without piercing any loop of intestine was the tip end of his stomach; which in his case resides smack dab in the middle of his belly just barely below the sternum, a little off kilter from the rest of us due to extensive surgeries, scar tissue, etc.
Dr. D had to "get out the chisel and chisel away at scar tissue" in order to make this a viable option. As you can imagine, he's been one sore pup! Due to the extent of the procedure they opted to keep him overnight for observation and pain management.
Despite the fact he was off his blood thinner for 10 days prior, he has also developed a hematoma. Praise God it is not in the belly, but in his arm where they drew blood. A big ol' visibly raised hematoma...crazy! But if he's going to develop a hematoma, we'd prefer it be there! Blood thinner will not be resumed until hematoma has resolved.
Unfortunately, he's also suffering from a very sore throat from being intubated; and as a result of the heavy duty sedatives and pain meds, he had to be catheterized this morning to get some relief. He's feeling quite a bit better this afternoon; he's even gone for a couple walks around the floor and is now able to stay on top of the pain with oral meds as opposed to the Morphine pump. He's still hoping to go home today; however, it will all depend on (pardon the pun) whether or not he can "go" without the catheter.
Thank you for your continued prayers; evidenced by the peace we've experienced over the last couple of days.
"In place" is a relative term for my unique guys anatomy. The only place they could access without piercing any loop of intestine was the tip end of his stomach; which in his case resides smack dab in the middle of his belly just barely below the sternum, a little off kilter from the rest of us due to extensive surgeries, scar tissue, etc.
Dr. D had to "get out the chisel and chisel away at scar tissue" in order to make this a viable option. As you can imagine, he's been one sore pup! Due to the extent of the procedure they opted to keep him overnight for observation and pain management.
Despite the fact he was off his blood thinner for 10 days prior, he has also developed a hematoma. Praise God it is not in the belly, but in his arm where they drew blood. A big ol' visibly raised hematoma...crazy! But if he's going to develop a hematoma, we'd prefer it be there! Blood thinner will not be resumed until hematoma has resolved.
Unfortunately, he's also suffering from a very sore throat from being intubated; and as a result of the heavy duty sedatives and pain meds, he had to be catheterized this morning to get some relief. He's feeling quite a bit better this afternoon; he's even gone for a couple walks around the floor and is now able to stay on top of the pain with oral meds as opposed to the Morphine pump. He's still hoping to go home today; however, it will all depend on (pardon the pun) whether or not he can "go" without the catheter.
Thank you for your continued prayers; evidenced by the peace we've experienced over the last couple of days.
Sunday, January 23, 2011
Upcoming procedure
Just to let you know, Ron's procedure has been scheduled for Tuesday, Jan 25. Since Dr. D's first day back is Monday; he and Dr. A wanted to be able to meet to discuss Ron and come up with a game plan before tackling things on Tuesday. Dr. A also met with Dr. S to get his input (since he knows Ron's anatomy inside and out). All three doctors will be in hospital on Tuesday "just in case".
It's nice to hear they are being proactive in having everyone available if an issue arises; however, I confess it kind of FREAKS ME OUT that what is typically a simple procedure requires so much planning and foresight; and that the thought even arises that there could be complications.
I think things became more of a concern after his non-procedure last week; he developed a hematoma in his belly which put him out of commission for several days. Thankfully, it resolved on it's own with no intervention required (other than what we could do at home).
On another note, our sweet Ella and Mila were just about over their colds then it kicked back in with that awful cough, nasty noses and sleepless nights. On top of that, this weekend they also came down with a stomach bug. Mommy & Daddy say that despite continued yakking, they've been fairly happy little troopers.
Please pray:
for Dr. D as he prepares for and performs Tuesday's procedure, as well as Dr. A and Dr. S as they are on standby
for Ron-- he's been off blood thinner for 10 days in preparation and was also put on a clear liquid diet for 48 hours prior.
for the procedure to go smoothly
that success will provide Ron relief; including some much-needed, uninterrupted sleep!
We were told to come prepared to be admitted, but we're hoping that things will go so well this won't be necessary!
Choosing to "be anxious for nothing..."
Christie
"True wisdom and power are with God; counsel and understanding are His." Job 12:13 NLT
"You will have courage because you will have hope; you will be protected and will rest in safety. You will lie down unafraid...." Job 11:18-19 NLT
Thursday, January 13, 2011
update from today's procedure
Actually, I should have titled this "Update from today's NON-procedure". The day didn't go as everyone had hoped. Although we knew going into it this was a possibility, it was still disappointing.
The scope revealed there was too much scar tissue for Dr. A to see a viable spot to place the gastric tube (also known as PEG, feeding tube, and/or g-tube). Due to Ron's past extensive surgeries, things are all out of place in his belly, therefore extreme caution must be taken to ensure tube doesn't inadvertently go through an area of the intestines. The scope also revealed his esophagus looks worse than his last scope and he had a liter of fluid in his stomach. Upon suctioning this fluid out, the intestines dumped a stomach-full back in--not the way things should work.
So, where do we go from here? The results affirm g-tube is the direction to go...since his esophagus and digestive system do not function properly, it's imperative to have a way to empty the stomach in order to prevent yakking thus causing further damage. Though not the first choice, we now go to Plan B, which is Interventional Radiology. Dr. A and Dr. D (head of IR; who knows Ron's anatomy extensively) have been in consultation as to the best way to go about this. Unfortunately, they will not be able to do anything until the week of Jan 24. They will need to use CT machine (which was not functioning today) and since it will be "a complex, difficult procedure", consensus between the IR doctors was that they feel most comfortable/confident with Dr. D performing. Unfortunately, Dr. D is on vacation until the 24th.
The plan is Dr. D, with the use of ongoing CT and X-ray, will attempt to insert the PEG. We have been in consultation with his nurse who has told us she felt sure they would not want to do this as an outpatient due to the complexity, so to bring a packed bag and be prepared to stay.
Please continue to pray. Today's procedure was painful. All the poking, prodding and being stuck with needles in several areas in hopes of finding a spot to place tube into the stomach, has left Ron needing pain meds and ice packs to help with soreness and swelling.
Even though we feel we've been kicked in the stomach; we refuse to lose hope! Though sometimes it's more difficult than others, and I confess, times we want to shout "ENOUGH!"; we choose to trust God has a perfect plan AND time.
I'd love to leave you with some words of wisdom...but, honestly, tonight I'm spent. So, I'll simply say, goodnight.
Christie
The scope revealed there was too much scar tissue for Dr. A to see a viable spot to place the gastric tube (also known as PEG, feeding tube, and/or g-tube). Due to Ron's past extensive surgeries, things are all out of place in his belly, therefore extreme caution must be taken to ensure tube doesn't inadvertently go through an area of the intestines. The scope also revealed his esophagus looks worse than his last scope and he had a liter of fluid in his stomach. Upon suctioning this fluid out, the intestines dumped a stomach-full back in--not the way things should work.
So, where do we go from here? The results affirm g-tube is the direction to go...since his esophagus and digestive system do not function properly, it's imperative to have a way to empty the stomach in order to prevent yakking thus causing further damage. Though not the first choice, we now go to Plan B, which is Interventional Radiology. Dr. A and Dr. D (head of IR; who knows Ron's anatomy extensively) have been in consultation as to the best way to go about this. Unfortunately, they will not be able to do anything until the week of Jan 24. They will need to use CT machine (which was not functioning today) and since it will be "a complex, difficult procedure", consensus between the IR doctors was that they feel most comfortable/confident with Dr. D performing. Unfortunately, Dr. D is on vacation until the 24th.
The plan is Dr. D, with the use of ongoing CT and X-ray, will attempt to insert the PEG. We have been in consultation with his nurse who has told us she felt sure they would not want to do this as an outpatient due to the complexity, so to bring a packed bag and be prepared to stay.
Please continue to pray. Today's procedure was painful. All the poking, prodding and being stuck with needles in several areas in hopes of finding a spot to place tube into the stomach, has left Ron needing pain meds and ice packs to help with soreness and swelling.
Even though we feel we've been kicked in the stomach; we refuse to lose hope! Though sometimes it's more difficult than others, and I confess, times we want to shout "ENOUGH!"; we choose to trust God has a perfect plan AND time.
I'd love to leave you with some words of wisdom...but, honestly, tonight I'm spent. So, I'll simply say, goodnight.
Christie
Saturday, January 1, 2011
AWOL
Sorry we've been AWOL...busy times around here.
We've spent the last two weeks trekking back and forth to Dallas for numerous appointments, tests and procedures.
Tuesday, Dec 21, we were at UT Southwestern for annual CTA and appointment with neurosurgeon. I'm happy to report the brain aneurysm has had no change since last year, therefore, nothing to be done until this time next year. Yippee!
Wednesday, Dec 22 we were at Presbyterian for appointment with Dr A (gastroenterologist) to go over results from Esophageal Motility Study. Sad to report study shows Ron has NO motility past swallow; which means his esophagus is not functioning at all. The belief is this has been caused by all the damage from his excessive, prolonged yakking. We're at a point where his only option is to have a PEG tube placed. A PEG (percutaneous endoscope gastrostomy) tube rests in the stomach and exits through the skin of the abdomen.
This procedure will be performed Thursday, January 13 at Presbyterian. Dr. A will use an endoscope to go down Ron's throat to his stomach. When the correct spot in his stomach is reached; Dr. A will be able to see the spot due to a very bright light on the end of the scope which will show through the stomach. He will then make an incision in which to insert the tube through the skin and the stomach wall, directly into the stomach
Most of the time when you talk about having a PEG, it's for feeding purposes. Not so in Ron's case. He will continue on TPN and will also be able to take things orally. The PEG will allow him to "vent" the stomach in order to prevent yakking. He will attach the tube to a bag at night and can vent it at other times throughout the day as needed. This is not a permanent situation. The hope is, once the yakking stops, the esophagus will heal and eventually regain motility. Once this happens, he will eventually have the PEG removed.
He was really bummed about this at first. The only experiences he has had with a PEG were when he was unable to eat at all and previous to that was the awful fiasco with Aaron's feeding tube. So, in his mind; this was not a positive step. He was thinking he would no longer be able to take anything by mouth and would have to be fed through the PEG. After extensive talking with Dr. A and then having a couple of days to mull things over, he's feeling much better about it. We were told in the "typical" person; it takes about 8-12 weeks for the esophagus to heal; but would most likely be quite a bit longer for Ron considering the amount of damage in his esophagus. Dr. A will also be very cautious as to when to remove the PEG to ensure best outcome.
Wednesday, Dec 29 we received word Tuesday's labs showed a huge jump in his white count indicating infection. So we headed to Presby to be worked in to Interventional Radiology for PICC replacement. It wouldn't be Christmas without a "visit" to our friends, now would it? Thankfully, we were in and out in about 4 hours! And yes, it was good to visit with our friendly IR staff in their new digs...which I feel BCBS has probably financed on our behalf!
Speaking of which, we were thrilled to read in last weeks newspaper that Blue Cross Blue Shield had reached an agreement with Texas Health Resources! Now, if they would quickly reach an agreement with Digestive Health Associates of Texas; we'd really be happy campers.
Thursday, Dec 30 Ron had an appointment with his primary care physician to try to get some relief from these awful headaches. Unfortunately, though prescription was written, by the time pharmacy could get around to it, insurance company refused to fill until they could get more info from the doctor and their office was already closed and will be until Monday!
Poor guy, it was a really rough morning which also led into the afternoon. He finally ended up insisting on using a lollipop...which we save for emergency purposes. UGH!
In the midst of it all, we were able to get away and enjoy 4 days with the Nordell clan for our biennial Christmas reunion. This year we chose to stay local so we could spend as much time as possible with Grandma Nordell. Therefore, 31 out of our 41 family members descended upon the Embassy Suites Downtown Ft Worth. Though Ron was definitely not feeling his best, he was a real trooper. We always have a relaxing (though not necessarily restful!) time when we're together and this was no exception. Lots of family, food, game playing, swimming and just hanging out.
Ryan, Stacee and the girls made a last minute trip to Florida after receiving news that her grandpa was in the end stages of congestive heart failure. They were able to have a great Christmas with him. We're so thankful they made the decision to go. He passed away 2 days after Christmas and I know it was so meaningful to all of them to have this time together. Please keep Stacee, her mom (Diana) and all the Dimeglio family in your prayers. It's been a very difficult few months with Grandpa's death Monday, as well as the passing of Jack (Stacee's step-dad/Diana's husband) in October.
I think that's all the news from here. Please continue to pray for Ron, especially as he deals with these awful headaches and as we look toward Jan 13 and the next phase of this journey. I must confess, I'm a little anxious since our fabulous Dr. A is out of the country for the next 10 days...he's become our safety net that I'm sure we rely on way too much. This is also why his procedure will not take place until the 13th; we didn't want to do it right before he left and definitely wanted him to be the doctor to perform since he knows Ron's "guts" so well.
Though it may sound pretty gloom and doom; we're really doing fairly well. Yes, there are times, it seems overwhelming, yet when we purpose to keep our focus steady on Christ; we're renewed in knowing that whatever He calls us to, He'll provide the way.
We hope you have had a blessed Christmas and wish you a very Happy New Year!
Much love,
Christie & Ron
"Let us hold firmly to the faith we profess" Hebrews 4:14
We've spent the last two weeks trekking back and forth to Dallas for numerous appointments, tests and procedures.
Tuesday, Dec 21, we were at UT Southwestern for annual CTA and appointment with neurosurgeon. I'm happy to report the brain aneurysm has had no change since last year, therefore, nothing to be done until this time next year. Yippee!
Wednesday, Dec 22 we were at Presbyterian for appointment with Dr A (gastroenterologist) to go over results from Esophageal Motility Study. Sad to report study shows Ron has NO motility past swallow; which means his esophagus is not functioning at all. The belief is this has been caused by all the damage from his excessive, prolonged yakking. We're at a point where his only option is to have a PEG tube placed. A PEG (percutaneous endoscope gastrostomy) tube rests in the stomach and exits through the skin of the abdomen.
This procedure will be performed Thursday, January 13 at Presbyterian. Dr. A will use an endoscope to go down Ron's throat to his stomach. When the correct spot in his stomach is reached; Dr. A will be able to see the spot due to a very bright light on the end of the scope which will show through the stomach. He will then make an incision in which to insert the tube through the skin and the stomach wall, directly into the stomach
Most of the time when you talk about having a PEG, it's for feeding purposes. Not so in Ron's case. He will continue on TPN and will also be able to take things orally. The PEG will allow him to "vent" the stomach in order to prevent yakking. He will attach the tube to a bag at night and can vent it at other times throughout the day as needed. This is not a permanent situation. The hope is, once the yakking stops, the esophagus will heal and eventually regain motility. Once this happens, he will eventually have the PEG removed.
He was really bummed about this at first. The only experiences he has had with a PEG were when he was unable to eat at all and previous to that was the awful fiasco with Aaron's feeding tube. So, in his mind; this was not a positive step. He was thinking he would no longer be able to take anything by mouth and would have to be fed through the PEG. After extensive talking with Dr. A and then having a couple of days to mull things over, he's feeling much better about it. We were told in the "typical" person; it takes about 8-12 weeks for the esophagus to heal; but would most likely be quite a bit longer for Ron considering the amount of damage in his esophagus. Dr. A will also be very cautious as to when to remove the PEG to ensure best outcome.
Wednesday, Dec 29 we received word Tuesday's labs showed a huge jump in his white count indicating infection. So we headed to Presby to be worked in to Interventional Radiology for PICC replacement. It wouldn't be Christmas without a "visit" to our friends, now would it? Thankfully, we were in and out in about 4 hours! And yes, it was good to visit with our friendly IR staff in their new digs...which I feel BCBS has probably financed on our behalf!
Speaking of which, we were thrilled to read in last weeks newspaper that Blue Cross Blue Shield had reached an agreement with Texas Health Resources! Now, if they would quickly reach an agreement with Digestive Health Associates of Texas; we'd really be happy campers.
Thursday, Dec 30 Ron had an appointment with his primary care physician to try to get some relief from these awful headaches. Unfortunately, though prescription was written, by the time pharmacy could get around to it, insurance company refused to fill until they could get more info from the doctor and their office was already closed and will be until Monday!
Poor guy, it was a really rough morning which also led into the afternoon. He finally ended up insisting on using a lollipop...which we save for emergency purposes. UGH!
In the midst of it all, we were able to get away and enjoy 4 days with the Nordell clan for our biennial Christmas reunion. This year we chose to stay local so we could spend as much time as possible with Grandma Nordell. Therefore, 31 out of our 41 family members descended upon the Embassy Suites Downtown Ft Worth. Though Ron was definitely not feeling his best, he was a real trooper. We always have a relaxing (though not necessarily restful!) time when we're together and this was no exception. Lots of family, food, game playing, swimming and just hanging out.
Ryan, Stacee and the girls made a last minute trip to Florida after receiving news that her grandpa was in the end stages of congestive heart failure. They were able to have a great Christmas with him. We're so thankful they made the decision to go. He passed away 2 days after Christmas and I know it was so meaningful to all of them to have this time together. Please keep Stacee, her mom (Diana) and all the Dimeglio family in your prayers. It's been a very difficult few months with Grandpa's death Monday, as well as the passing of Jack (Stacee's step-dad/Diana's husband) in October.
I think that's all the news from here. Please continue to pray for Ron, especially as he deals with these awful headaches and as we look toward Jan 13 and the next phase of this journey. I must confess, I'm a little anxious since our fabulous Dr. A is out of the country for the next 10 days...he's become our safety net that I'm sure we rely on way too much. This is also why his procedure will not take place until the 13th; we didn't want to do it right before he left and definitely wanted him to be the doctor to perform since he knows Ron's "guts" so well.
Though it may sound pretty gloom and doom; we're really doing fairly well. Yes, there are times, it seems overwhelming, yet when we purpose to keep our focus steady on Christ; we're renewed in knowing that whatever He calls us to, He'll provide the way.
We hope you have had a blessed Christmas and wish you a very Happy New Year!
Much love,
Christie & Ron
"Let us hold firmly to the faith we profess" Hebrews 4:14
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