Dr. S was in this morning and decided, despite the vomiting, we can still go home! Thank you, Lord!! There's really not much more they would do for him at this point that we can't do at home. Dr. S said "you've used up all your tickets with me". And, "I know what it's like in there...and don't want to go in there again!" (at least any time in the forseeable future unless a DIRE emergency...his "innards" are extremely fragile!)
Ron has been backed off to liquids for a few more days and will begin a couple of new meds but I think the best medicine for him right now is to be home! This stay has really taken a toll on him (us!) mentally and emotionally.
We had a very long visit with Dr. Arslanlar this morning, have I ever said how sweet he is??
We discussed where we've been, where we are and where we are going....with patience the continued key. As always, timeframes aren't even discussed. Everyone had hoped by this time we would be much further down the road to recovery when in reality as we look back to where we were this time last year; it's a miracle we are even this far in the process! I have to keep reminding myself that the prediction was 18+ months of recovery and even then we had no idea as to what "normal" would look like.
*** Disclaimer: the following is an attempt on the behalf of my pea brain to break down the plethora of medical jargon into layman's terms so we can all make sense of it! No real medical personnel wrote this! ***
We think we may have added another piece or two to the puzzle. As we were talking about all that's going on Dr. A mentioned in passing that some of the issues Ron has would normally be seen in someone who has had lung surgery which was not the case with him. I reminded him that Ron HAD had lung surgery back in 1992....which took him very much by surprise. Evidently, he came on board far enough along in the process and at such a traumatic point that he had not been informed of Ron's long-term past medical history.
The type of surgery he had in 1992 (which was to adhere his left lung to his chest cavity after he had had a couple of episodes of lung collapse) also keeps the esophagus/stomach juncture from closing completely. As you breathe in and out there should be a separation between the lung and chest wall; his does not function this way because the "chemical wash" that they do to cause the lung to scar to chest wall can also cause the esophagus and stomach to adhere to the lung which causes everything to pull open as he breathes in and out; thus causing pretty major reflux. This is all hypothetical at this point but makes sense and could definitely account for some of the issues he's been dealing with.
And, when you are on powerful pain meds for any length of time it suppresses the stomach and intestines causing them to be sleepy and not function properly. Hopefully, as he comes off the lollipops they will begin to slowly "wake up" and things will improve (from what I've read it could take several weeks for effects of long term narcotic use to completely wear off!).
The Nexxium should cut down on acid production and the Reglan acts to stimulate the stomach and intestines to work. He will then be on a once daily med for bowel maintenance and another taken before each meal to reduce possible bloating.
We did receive some good news...what pancreas he does have remaining is functioning very well! His blood sugars are great and he requires no glucose checks or insulin! Thank you, Father!!!
Basically, the things that shouldn't be working...are working great; and the things that should be working...aren't! And as I've stated before, theoretically, he has short bowel (due to the large amount of intestine removed) so should deal with short bowel syndrome (which includes diarrhea, problems handling electrolyte balance, malnutrition, etc) but not Ron; he has short bowel without the syndrome! Crazy!
AND, his labs continue to look great; kidney function, liver function, white blood count, albumin....all great! Typical Ron! Or should I say A-typical Ron?!
Please pray these medicines will kick in and work well for him. He's had a tough time of it and I'm sure he's getting anxious about the wedding being only 10 days away and things still being out of sorts. Our goal is for him to not just survive the wedding and all the related activities; but for it to be a wonderful time of memory making for ALL of us. At this point, it doesn't matter if he's able to partake of the food as long as he's able to be there feeling good for the all the events!
We appreciate your continued prayer on our bahalf!
Love, Christie
"We wait for the Lord; He is our help and shield." Psalm 33:20
Wednesday, October 29, 2008
Tuesday, October 28, 2008
Delayed update
I haven't updated beause there really hasn't been anything to report since both Dr. Shires & Arslanlar were not here over the weekend.
But it's Monday and everyone is back in full force. Ron was seen by Dr. Shires, Dr. Arslanlar and his Physician's Assistant, Janelle, along with many other doctor's and nurses who just dropped by to visit with us once they heard he was back.
No clear answer as to cause of problem that brought him in. But it does seem his small intestines are not functioning normally, especially for someone who has short bowel. To be graphic, people who have had such a large section of small intestine removed will struggle with chronic diarrhea and/or typically have 3-6 bowel movements a day. But...we don't do normal; normal is just a setting on the dryer, right? We do know his small intestine was "full" and seems to get that way often. Dr. Shires says it is very unusual for this to happen; typically back up will occur in colon; not small intestine; but then again, he doesn't do anything typical. The back up could be contributing to the severe reflux (what goes down must continue to go down...or come up, right?) Any who...
So now, they are tweaking his melds: reducing the steroid, continuing the Nexis and Regal an (both to deal with nausea, reflux, heartburn, vomiting) and beginning him on something that will basically flush him out (daily) without stimulating the bowels because if they use a stimulant and it puts pressure on the area that is tethered or if there were to be a kink, that could be really bad news! They have also been using IV morphine instead of lollipops for pain and we are going to switch to Tylenol with codeine when we get home; no more weaning process.
He started on clear liquids yesterday afternoon and progressed up to solid food this evening. They decided if he could handle food, he could go home Tuesday. Unfortunately, he didn't do too well this evening. His "solids" dinner caused alto of bloating and nausea and came back up around 11PM. He had also had some vomiting Sunday night but he felt it was brought on by a coughing episode; tonight's was unprovoked. We're anxious to hear what they have to say after tonight's little episode.
Please pray whatever is going on will be revealed. Everyone seems to be stumped as to why he continues to have this problem.
Will update you when I know more!
Love, Christie
Stand firmly in the place where the Lord has put you and do your best there. God sends us trials or tests, and places life before us...It is through the pounding of a serious conflict that He expects us to grow strong...character is grown through hardship.
from Streams in the Desert
But it's Monday and everyone is back in full force. Ron was seen by Dr. Shires, Dr. Arslanlar and his Physician's Assistant, Janelle, along with many other doctor's and nurses who just dropped by to visit with us once they heard he was back.
No clear answer as to cause of problem that brought him in. But it does seem his small intestines are not functioning normally, especially for someone who has short bowel. To be graphic, people who have had such a large section of small intestine removed will struggle with chronic diarrhea and/or typically have 3-6 bowel movements a day. But...we don't do normal; normal is just a setting on the dryer, right? We do know his small intestine was "full" and seems to get that way often. Dr. Shires says it is very unusual for this to happen; typically back up will occur in colon; not small intestine; but then again, he doesn't do anything typical. The back up could be contributing to the severe reflux (what goes down must continue to go down...or come up, right?) Any who...
So now, they are tweaking his melds: reducing the steroid, continuing the Nexis and Regal an (both to deal with nausea, reflux, heartburn, vomiting) and beginning him on something that will basically flush him out (daily) without stimulating the bowels because if they use a stimulant and it puts pressure on the area that is tethered or if there were to be a kink, that could be really bad news! They have also been using IV morphine instead of lollipops for pain and we are going to switch to Tylenol with codeine when we get home; no more weaning process.
He started on clear liquids yesterday afternoon and progressed up to solid food this evening. They decided if he could handle food, he could go home Tuesday. Unfortunately, he didn't do too well this evening. His "solids" dinner caused alto of bloating and nausea and came back up around 11PM. He had also had some vomiting Sunday night but he felt it was brought on by a coughing episode; tonight's was unprovoked. We're anxious to hear what they have to say after tonight's little episode.
Please pray whatever is going on will be revealed. Everyone seems to be stumped as to why he continues to have this problem.
Will update you when I know more!
Love, Christie
Stand firmly in the place where the Lord has put you and do your best there. God sends us trials or tests, and places life before us...It is through the pounding of a serious conflict that He expects us to grow strong...character is grown through hardship.
from Streams in the Desert
Saturday, October 25, 2008
Ahhhh...our home away from home!
When Ron was admitted EARLY Friday morning, there were no rooms on the 6th floor so he had to be put on the 8th. It was so nice to be moved to 6 West today, surrounded by people we know and love, although being back on 6 is so familiar it kind of makes it feel like we never left! Staff has changed quite a bit in the almost 3 months since we were last inpatient. Sadly, several of our sweet friends are no longer here and it's just not the same without them!
Ron slept off and on most of Friday; thankfully both Dr. S and Dr. A were in fairly early so I headed to work after meeting with them and then home to take care of some things and stock up on supplies needed for our stay at Presby.
Ron's doing ok; very frustrated about being here. His pain is greatly decreased but he is still restricted to nothing by mouth. They started him back on TPN last night. Plan is to continue to watch him for several days and see if things clear up on their own; then slowly start back on clear liquids and progress from there.
Any number of things could be the cause--possible virus, barium from last upper GI study(sometimes system will react to barium and it will become "like concrete"!), the fact that there is no fiber in his diet, which is a double-edged sword--too much fiber could cause any weakness in intestines to cause a fistula, not enough causes things to get backed up---so basically, he's full of it! haha Dr. S says it's hard to pinpoint since his anatomy is "grossly abnormal".
Neither Dr. S nor Dr. A are on call this weekend; although Dr. A said to not hesitate to call him if I had any questions or concerns. He is so sweet; he told us he had slept with his phone on his pillow Thursday night so he'd be sure to hear it if I called or texted him once we got to Presby. What a blessing!
I'm very tired and my mind is mush so I'll close for now!
Ron slept off and on most of Friday; thankfully both Dr. S and Dr. A were in fairly early so I headed to work after meeting with them and then home to take care of some things and stock up on supplies needed for our stay at Presby.
Ron's doing ok; very frustrated about being here. His pain is greatly decreased but he is still restricted to nothing by mouth. They started him back on TPN last night. Plan is to continue to watch him for several days and see if things clear up on their own; then slowly start back on clear liquids and progress from there.
Any number of things could be the cause--possible virus, barium from last upper GI study(sometimes system will react to barium and it will become "like concrete"!), the fact that there is no fiber in his diet, which is a double-edged sword--too much fiber could cause any weakness in intestines to cause a fistula, not enough causes things to get backed up---so basically, he's full of it! haha Dr. S says it's hard to pinpoint since his anatomy is "grossly abnormal".
Neither Dr. S nor Dr. A are on call this weekend; although Dr. A said to not hesitate to call him if I had any questions or concerns. He is so sweet; he told us he had slept with his phone on his pillow Thursday night so he'd be sure to hear it if I called or texted him once we got to Presby. What a blessing!
I'm very tired and my mind is mush so I'll close for now!
Friday, October 24, 2008
Houston, we have a problem...
Oh the joys of spending the night in Presby's ER!
Ron started complaining of a "different" pain in his belly and back Thursday night, enough that doses of both Tylenol with Codeine and a lollipop did not diminish the level. We contacted Dr. A and decision was made to bring him in to Presby. Dr. A called to give them a head's up and to tell them what tests he wanted done. We arrived a little before midnight and they got him right in. Then began the process of blood work, EKG, xray, drinking the lovely contrast and then waiting an hour to do a CT. Looks like he has at least a partial bowel obstruction....BOOOOO!!!! But, at least we know the source of the problem.
Treament is to put him back on total bowel rest...nothing to eat or drink.....and we watch and wait and hope it resolves itself on it's own. If not....well, we don't want to go there, so please pray this will resolve on it's own, quickly! Ryan & Stacee's wedding is in 2 weeks and 1 day!
They are admitting him now and he'll be here for a few days or so.
Thanks, faithful ones!
Christie
"The Lord is with me, I will not be afraid." Psalm 118:6
Ron started complaining of a "different" pain in his belly and back Thursday night, enough that doses of both Tylenol with Codeine and a lollipop did not diminish the level. We contacted Dr. A and decision was made to bring him in to Presby. Dr. A called to give them a head's up and to tell them what tests he wanted done. We arrived a little before midnight and they got him right in. Then began the process of blood work, EKG, xray, drinking the lovely contrast and then waiting an hour to do a CT. Looks like he has at least a partial bowel obstruction....BOOOOO!!!! But, at least we know the source of the problem.
Treament is to put him back on total bowel rest...nothing to eat or drink.....and we watch and wait and hope it resolves itself on it's own. If not....well, we don't want to go there, so please pray this will resolve on it's own, quickly! Ryan & Stacee's wedding is in 2 weeks and 1 day!
They are admitting him now and he'll be here for a few days or so.
Thanks, faithful ones!
Christie
"The Lord is with me, I will not be afraid." Psalm 118:6
Wednesday, October 15, 2008
Survey Says.....
GOD IS SO GOOD! First off, we sailed through rush hour traffic with minimal snags and it took us right at the same time it typically takes to get to Presby. Then, as we went through admissions, they did not ask for any payment! Yahoo!!!
Last night we asked our friends and family to join us in praying for definitive answers and it is so nice to finally know something! . Praise God we received an email with some preliminary results from Dr. A this evening which says:
"Good news from the upper GI. I have not seen the images yet because I was out of the office but the report is heartening for some explanation.
The small intestine and colon are unchanged. No narrowing or blockages. No changes in previously noted "hanging of the small intestine." There is SIGNIFICANT reflux to the level of the clavicles...YIKES! That's a lot. The end of the esophagus has changes consistent with esophagitis. The stomach and duodenum emptied normally without ulcers or dilation.
All good news and explains a great deal. That is a lot of reflux and does explain the fairly spontaneous vomiting - it's reflux and regurgitation. Routine measures to decrease reflux include the usual - multiple small meals, liquids with meals, low fat-low cholesterol, avoid spicy foods, caffeine and chocolate(I can't even imagine these last three). The Nexxium twice daily will decrease acid production and help heal esophagitis - this in turn will let the esophagus work better. The metoclopramide will help empty the stomach to allow less reflux.
I hope this is helpful. I feel better. I have to admit that this is a more normal problem to deal with in view of the last year. Reflux I can fix or at least improve. I plan to look at the images tomorrow and see if I see anything else and will let you know."
Ok, so...let's see if I can explain what he wrote in layman's terms:
Results show intestinal "tethering" which we already knew; no new kinks, narrowing or blockages.
Great deal of reflux backing up in esophagus, not just a little but up to level of his collarbone! His lower esophageal sphincter is not functioning properly (the flap that opens to allow food from esophagus to stomach and should then close and keep bile and food from backing up into esophagus). I'm guessing the esophagus musculature is weakend because of lack of use over the last year.
Esophagitis is basically irritation/inflammation of the esophagus.
Now, where do we go from here? Sounds like we already have the appropriate meds; and outline for new dietary changes including eating even smaller amounts more frequently and:
No acidic, greasy or spicy foods
No caffeine
No chocolate
foods that are low fat and low cholesterol
And we assume he has to continue with old rules as well:
no seeds or skins
no fiber
soft-cooked veggies & fruits
stick with "junk" type cereals
avoid cheese
no roughage
And the big question: what CAN he eat? I'm running out of ideas! But will get busy researching what will fit within these guidelines. And I hope Dr. A will give me some suggestions.
Ron's really been wanting a salad, in fact he told me to ask specifically about lettuce! But since Dr. A said no roughage, so far I've not given in! I've asked and we'll see what he says.
By the way....did I tell you our rehearsal dinner is at Joe T. Garcia's??? (our favorite Mexican restaurant) Poor guy; think we can have this stuff whipped in 3 weeks? haha
Thanks for praying! God has faithfully heard and responded!
Love, Christie
"Do not fear anything except the Lord Almighty. He alone is the Holy One. If you fear Him, you need fear nothing else. He will keep you safe" Isaiah 8:13
"I will write down all these things as a testimony of what the Lord will do. I will entrust it to my disciples, who will pass it down to future generations. I will wait for the Lord to help us." Isaiah 8:16-17a
"Difficulty is actually the atmosphere surrounding a miracle, or a miracle in its initial stage. Yet if it is to be a great miracle, the surrounding condition will be not simply a difficulty but an utter impossibility. And it is the clinging hand of His child that makes a desperate situation a delight to God." Streams in the Desert
Last night we asked our friends and family to join us in praying for definitive answers and it is so nice to finally know something! . Praise God we received an email with some preliminary results from Dr. A this evening which says:
"Good news from the upper GI. I have not seen the images yet because I was out of the office but the report is heartening for some explanation.
The small intestine and colon are unchanged. No narrowing or blockages. No changes in previously noted "hanging of the small intestine." There is SIGNIFICANT reflux to the level of the clavicles...YIKES! That's a lot. The end of the esophagus has changes consistent with esophagitis. The stomach and duodenum emptied normally without ulcers or dilation.
All good news and explains a great deal. That is a lot of reflux and does explain the fairly spontaneous vomiting - it's reflux and regurgitation. Routine measures to decrease reflux include the usual - multiple small meals, liquids with meals, low fat-low cholesterol, avoid spicy foods, caffeine and chocolate(I can't even imagine these last three). The Nexxium twice daily will decrease acid production and help heal esophagitis - this in turn will let the esophagus work better. The metoclopramide will help empty the stomach to allow less reflux.
I hope this is helpful. I feel better. I have to admit that this is a more normal problem to deal with in view of the last year. Reflux I can fix or at least improve. I plan to look at the images tomorrow and see if I see anything else and will let you know."
Ok, so...let's see if I can explain what he wrote in layman's terms:
Results show intestinal "tethering" which we already knew; no new kinks, narrowing or blockages.
Great deal of reflux backing up in esophagus, not just a little but up to level of his collarbone! His lower esophageal sphincter is not functioning properly (the flap that opens to allow food from esophagus to stomach and should then close and keep bile and food from backing up into esophagus). I'm guessing the esophagus musculature is weakend because of lack of use over the last year.
Esophagitis is basically irritation/inflammation of the esophagus.
Now, where do we go from here? Sounds like we already have the appropriate meds; and outline for new dietary changes including eating even smaller amounts more frequently and:
No acidic, greasy or spicy foods
No caffeine
No chocolate
foods that are low fat and low cholesterol
And we assume he has to continue with old rules as well:
no seeds or skins
no fiber
soft-cooked veggies & fruits
stick with "junk" type cereals
avoid cheese
no roughage
And the big question: what CAN he eat? I'm running out of ideas! But will get busy researching what will fit within these guidelines. And I hope Dr. A will give me some suggestions.
Ron's really been wanting a salad, in fact he told me to ask specifically about lettuce! But since Dr. A said no roughage, so far I've not given in! I've asked and we'll see what he says.
By the way....did I tell you our rehearsal dinner is at Joe T. Garcia's??? (our favorite Mexican restaurant) Poor guy; think we can have this stuff whipped in 3 weeks? haha
Thanks for praying! God has faithfully heard and responded!
Love, Christie
"Do not fear anything except the Lord Almighty. He alone is the Holy One. If you fear Him, you need fear nothing else. He will keep you safe" Isaiah 8:13
"I will write down all these things as a testimony of what the Lord will do. I will entrust it to my disciples, who will pass it down to future generations. I will wait for the Lord to help us." Isaiah 8:16-17a
"Difficulty is actually the atmosphere surrounding a miracle, or a miracle in its initial stage. Yet if it is to be a great miracle, the surrounding condition will be not simply a difficulty but an utter impossibility. And it is the clinging hand of His child that makes a desperate situation a delight to God." Streams in the Desert
Tuesday, October 14, 2008
Upper GI
Tomorrow morning (Wednesday, October 15) Ron will have another upper GI with small bowel follow through. He will have to drink barium and have "pictures" (xrays) taken every 20 minutes to see how things are flowing through his system. We have to be at Presbyterian at 8:30 AM--UGH!!! Gonna be an early morning in the Nordell household. This is not typically done at Presbyterian on an outpatient basis (they usually have us go to someplace like HealthSouth) but Dr. A requested it since the radiologists there know his anatomy so well they'll be able to see even minuscule changes. It will be good to be able to see his anatomy without any extra tubes in him, the g-tube could have possibly been hiding something. They are looking for any place there might be a kink or narrowing or any abnormality.
Please pray we will get definitive results. Ron is beyond frustrated with the daily vomiting (or sometimes twice daily, like today) ; especially when it comes on so suddenly like it did early this morning waking him out of a sound sleep.
Also pray we will find favor with the billing department at Presbyterian. We had to fill out multiple forms and submit a mountain of paperwork in order to be considered a "charity case". Not sure yet when we'll hear anything and don't know if it will only cover hospital stays and other charges incurred before while hospitalized or if it will also cover expenses incurred each time we have to go there for a procedure. This will be the first time he's had any kind of procedure since our new insurance year began and I'm sure they'll require some kind of payment when we go to admissions. I'm a little anxious about all of this; but I know God will be faithful to provide, just as He has throughout this last year.
Yes, it's been a whole year! Ron was first admitted through ER to HEB October 8th, 2007; and he had his "simple, routine" gall bladder surgery October 10. He came home October 15 and then we were back at the ER on October 18th with complications...ERCP was performed October 20th and things went south from there!
But we have so many things to rejoice over, including:
.... this weeks blood work looks amazingly good! His white blood cell count is the lowest it's ever been at 8,500; and all the other numbers they look at including those for signs of dehydration and/or malnutrition look good as well (albumin, potassium, creatnine, hemoglobin, etc). Dr. A is baffled--numbers indicate he's doing well (except for the vomiting issue).
.... we have all of you faithful prayer warriors and encouragers
Thanks for listening and caring!
Christie
Today's devotion from Proverbs 31 devotions (online) is so appropriate for our situation. Thanks, Laurie, for sharing this with us!
"Then Jesus told his disciples a parable to show them that they should always pray and not give up."Luke 18:1 (NIV)Devotion:My oldest son Josh played offensive line on his football team when he was younger. Solid and strong, Josh's job on the line was to hold the opponents' defensive line back long enough for the quarterback to do his job. The offensive line isn't the most glamorous job on the field, but when they don't do their job well, everyone is quick to see the results. Normally, these steadfast players hold firm, protecting their guy.Sitting at the practices night after night, I noticed a common issue among the novice players on the field. They often stopped blocking too soon. Shouts of, "Block 'til the whistle blows!" filled the sweaty September nights, and time and again the tired players lined back up and tried again.The boys knew what they were supposed to do, but they often gave up when they thought the play was over. Sometimes they gave up because holding back a powerful defensive player was tiring. Unfortunately, the play wasn't over until the coach or referee blew the whistle. Until that whistle blew, anything could happen.The parallel to our prayer lives is astounding. Too often, I have given up praying about a concern, believing the play to be over. Perhaps I think God answered "no" when I don't see an answer in my timeline. Sometimes I see things with human eyes, and give up too soon. I wonder how many times we've stopped praying just shy of experiencing healing, freedom from addiction, or the salvation of someone we love. I'm thankful my family and I never stopped praying about my dad's salvation. He came to Christ two weeks before he died.Just as my son learned to block until the whistle blows, may we be encouraged to pray until the trumpet blows, revealing that Jesus has returned to earth. In other words - never give up!Heavenly Father, I praise You for Your power and majesty. There is nothing in the universe that is too big for You to handle. Help me to remember that You want to hear my prayers, and You delight in answering them when it brings glory to Your name. In Jesus' Name, Amen.
Please pray we will get definitive results. Ron is beyond frustrated with the daily vomiting (or sometimes twice daily, like today) ; especially when it comes on so suddenly like it did early this morning waking him out of a sound sleep.
Also pray we will find favor with the billing department at Presbyterian. We had to fill out multiple forms and submit a mountain of paperwork in order to be considered a "charity case". Not sure yet when we'll hear anything and don't know if it will only cover hospital stays and other charges incurred before while hospitalized or if it will also cover expenses incurred each time we have to go there for a procedure. This will be the first time he's had any kind of procedure since our new insurance year began and I'm sure they'll require some kind of payment when we go to admissions. I'm a little anxious about all of this; but I know God will be faithful to provide, just as He has throughout this last year.
Yes, it's been a whole year! Ron was first admitted through ER to HEB October 8th, 2007; and he had his "simple, routine" gall bladder surgery October 10. He came home October 15 and then we were back at the ER on October 18th with complications...ERCP was performed October 20th and things went south from there!
But we have so many things to rejoice over, including:
.... this weeks blood work looks amazingly good! His white blood cell count is the lowest it's ever been at 8,500; and all the other numbers they look at including those for signs of dehydration and/or malnutrition look good as well (albumin, potassium, creatnine, hemoglobin, etc). Dr. A is baffled--numbers indicate he's doing well (except for the vomiting issue).
.... we have all of you faithful prayer warriors and encouragers
Thanks for listening and caring!
Christie
Today's devotion from Proverbs 31 devotions (online) is so appropriate for our situation. Thanks, Laurie, for sharing this with us!
"Then Jesus told his disciples a parable to show them that they should always pray and not give up."Luke 18:1 (NIV)Devotion:My oldest son Josh played offensive line on his football team when he was younger. Solid and strong, Josh's job on the line was to hold the opponents' defensive line back long enough for the quarterback to do his job. The offensive line isn't the most glamorous job on the field, but when they don't do their job well, everyone is quick to see the results. Normally, these steadfast players hold firm, protecting their guy.Sitting at the practices night after night, I noticed a common issue among the novice players on the field. They often stopped blocking too soon. Shouts of, "Block 'til the whistle blows!" filled the sweaty September nights, and time and again the tired players lined back up and tried again.The boys knew what they were supposed to do, but they often gave up when they thought the play was over. Sometimes they gave up because holding back a powerful defensive player was tiring. Unfortunately, the play wasn't over until the coach or referee blew the whistle. Until that whistle blew, anything could happen.The parallel to our prayer lives is astounding. Too often, I have given up praying about a concern, believing the play to be over. Perhaps I think God answered "no" when I don't see an answer in my timeline. Sometimes I see things with human eyes, and give up too soon. I wonder how many times we've stopped praying just shy of experiencing healing, freedom from addiction, or the salvation of someone we love. I'm thankful my family and I never stopped praying about my dad's salvation. He came to Christ two weeks before he died.Just as my son learned to block until the whistle blows, may we be encouraged to pray until the trumpet blows, revealing that Jesus has returned to earth. In other words - never give up!Heavenly Father, I praise You for Your power and majesty. There is nothing in the universe that is too big for You to handle. Help me to remember that You want to hear my prayers, and You delight in answering them when it brings glory to Your name. In Jesus' Name, Amen.
Here we Go!
Welcome to Nordell Notes! We've had a website since November 2007 but after encountering several problems decided to take the blogging plunge and are in the process of transferring all our previous updates over from our website!
Thanks for joining us on this rollercoaster we call life!
Thanks for joining us on this rollercoaster we call life!
Sunday, October 12, 2008
Steppin' out....
Anyone at church today notice we were missing something??? We've been stepping out without "the baby"!!!
As of Friday, October 9 Ron is officially on a TPN "vacation". Yes, this means he is NOT getting ANY IV nutrition! Dr. Arslanlar decided it had to be tried sometime therefore he is now receiving all his fluids and nutrition orally. WOOOO HOOOOO!!!
It's exciting and scary at the same time. It's hard to believe Ron's been on TPN since October 29, 2007!!!! We continue to battle getting food down him and keep it down. He had done better, for about 10 days he was only vomiting every other day but now he's back to vomiting every day...no rhyme or reason for it which no one can understand since all his tests look fine. Frustrating!
We are now back on "high alert" around here! We have to watch for signs of dehydration and malnutrition by monitoring all input and output, as well as blood pressure, heartrate and temperature multiple times a day and watching for dizziness, shakiness, hot flashes/cold sweats, increased thirst and/or lack of energy (that's the hardest to determine since he feels lethargic most of the time).
The freedom for Ron has been great! Being able to do whatever he wants without a "leash" tethering him has been liberating. And the greatest thing, he can take a shower WHENEVER HE WANTS! That hasn't happened in over a year! It always had to be scheduled around TPN. And, he can change his shirt WHENEVER HE WANTS! Having the TPN hooked up to his PICC line kept him from being able to change his shirt without disconnecting the TPN and flushing the lines before reconnecting; all things he had to have assitance with. Now, more independence!! The PICC line will stay in for a while, and we still have to flush it daily but we'll take it!
PLEASE pray this TPN "vacation" will go well and we will have no emergency trips to Presby. And that things will resolve regarding the vomiting. It is imperative that he be able to get the nutritional value, calories, vitamins, fluids, etc from the foods he eats; and when you're throwing up as often as he is; you really aren't getting any of these.
Also pray, as we look towards Ryan & Stacee's wedding in less than a month. It will be a long, physically demanding, (as well as emotional) weekend for him. He really needs to have more energy and stamina.
On a positive note, after a week on the diuretic, the swelling is much improved. We discontinued the diuretic once he stopped the TPN, though--don't need his body flushing all the fluids he so desperately needs right now. Please pray against return of swelling.
It's late, so I'll close with this from "Daily Inspirations from Women":
"Let's keep a firm grip on the promises that keep us going. He always keeps His word."
Hebrews 10:23 The Message
As we face the challenges that are part of life here on earth, we must not become discouraged. We must, instead, arm ourselves with the promises of God.
"The meaning of hope isn't just some flimsy wishing. It's a firm confidence in God's promises--that He will ultimately set things right." Sheila Walsh
As of Friday, October 9 Ron is officially on a TPN "vacation". Yes, this means he is NOT getting ANY IV nutrition! Dr. Arslanlar decided it had to be tried sometime therefore he is now receiving all his fluids and nutrition orally. WOOOO HOOOOO!!!
It's exciting and scary at the same time. It's hard to believe Ron's been on TPN since October 29, 2007!!!! We continue to battle getting food down him and keep it down. He had done better, for about 10 days he was only vomiting every other day but now he's back to vomiting every day...no rhyme or reason for it which no one can understand since all his tests look fine. Frustrating!
We are now back on "high alert" around here! We have to watch for signs of dehydration and malnutrition by monitoring all input and output, as well as blood pressure, heartrate and temperature multiple times a day and watching for dizziness, shakiness, hot flashes/cold sweats, increased thirst and/or lack of energy (that's the hardest to determine since he feels lethargic most of the time).
The freedom for Ron has been great! Being able to do whatever he wants without a "leash" tethering him has been liberating. And the greatest thing, he can take a shower WHENEVER HE WANTS! That hasn't happened in over a year! It always had to be scheduled around TPN. And, he can change his shirt WHENEVER HE WANTS! Having the TPN hooked up to his PICC line kept him from being able to change his shirt without disconnecting the TPN and flushing the lines before reconnecting; all things he had to have assitance with. Now, more independence!! The PICC line will stay in for a while, and we still have to flush it daily but we'll take it!
PLEASE pray this TPN "vacation" will go well and we will have no emergency trips to Presby. And that things will resolve regarding the vomiting. It is imperative that he be able to get the nutritional value, calories, vitamins, fluids, etc from the foods he eats; and when you're throwing up as often as he is; you really aren't getting any of these.
Also pray, as we look towards Ryan & Stacee's wedding in less than a month. It will be a long, physically demanding, (as well as emotional) weekend for him. He really needs to have more energy and stamina.
On a positive note, after a week on the diuretic, the swelling is much improved. We discontinued the diuretic once he stopped the TPN, though--don't need his body flushing all the fluids he so desperately needs right now. Please pray against return of swelling.
It's late, so I'll close with this from "Daily Inspirations from Women":
"Let's keep a firm grip on the promises that keep us going. He always keeps His word."
Hebrews 10:23 The Message
As we face the challenges that are part of life here on earth, we must not become discouraged. We must, instead, arm ourselves with the promises of God.
"The meaning of hope isn't just some flimsy wishing. It's a firm confidence in God's promises--that He will ultimately set things right." Sheila Walsh
Saturday, October 4, 2008
G-tube-less!
I know, I know...it's been too long since I sent out an update! Working really puts a cramp in my ability to keep everyone updated! I don't know where the days go but it seems I'm never for want of something to do! But on to what you all want...an update on Ron!
The last couple of weeks have been up and down. Thursday, September 25, he had his g-tube removed! YIPPEE!!! He has had either a naso-gastric tube (down nose to stomach) or gastric tube (directly into stomach through skin) since October 26, 2007. WOW! 11 months. Last line he has in is his PICC line but I'm sure that will stay awhile since that's how he gets his TPN and they do blood draw through it.
He has had vomiting daily (sometimes twice a day). The vomiting causes him to feel really puny and when you feel you are always on the verge of puking; you have no desire to eat. So it's been a battle to get him to eat and a battle to keep it down! Otherwise, numbers have looked good; now if he could just gain some strength, energy, stamina....
Sunday, Sept 28 we celebrated my birthday by finally being able to go to church! What a glorious day, to be back amongst our church family and to have Ryan, Stacee, Aaron & Kristin with us! One week shy of a year since we were last there (last Sunday to attend was October 7, 2007...and Ron refereed Pigskin Classic that afternoon for our youth). Afterwards, we went home to rest for a couple of hours then met Laurie & Tony who had picked up G'ma from her rehab facility and Papa from assisted living facility for a late lunch at our favorite Italian restaurant, LaBistro. It was very nice to be there after the Sunday rush...we enjoyed a quiet, relaxing meal together. We then headed over to Papa's to relax and watch the football game, have Sprinkles cupcakes & presents and give G'ma her first tour of where her new home will be. It was an exhausting but very fun day! It really took a toll on Ron and it took him until Wednesday to recover.
Our insurance plan year with my school district runs from October 1 to September 30 so we started over with all new deductibles and out of pocket expenses as of Wednesday. YIKES!!!
I headed to Dallas Monday afternoon to stock up on another month's worth of prescriptions before d-day; some of our scripts can only be filled at a specific pharmacy over by Presby. It was a frustrating afternoon; one where I had to keep reminding myself that my circumstances do not determine my joy. I ran into a glitch and had to argue with the insurance company over paying $1900 for his lollipops; ended up coming home empty-handed and spent the next couple of days going through all of our hidden stash--I typically keep a couple in my purse, a couple in the truck, and a couple in "the baby" backpack and fortunately I had some stashed away in another "hospital bag". God bless Dr. Arslanlar and his compassion and willingness to step in and help whenever and however needed; and for listening to this stressed out woman calling on his cell phone (yes, he has given me his cell phone number to use whenever I feel necessary!) 4 minutes after hours...that's when I received word insurance wouldn't pay! But, with his help and of course the fact God goes before us and prepares the way; it was handled and they mailed them to us the next day at the covered price of $10. WHEW!!!!
For my actual birthday (Wed, Oct 1), Ron stepped up to the plate and kept up his tradition of making my favorite carrot cake (from scratch!). Bless his heart, it took him ALL day and he had to do it in stages with napping in between. I was also treated to lunch and gifts by my sweet co-workers. Our friends Ken & Barbie came over to visit in the evening, then Ryan & Stacee brought in dinner; we opened more presents and had the most delicious cake ever. I received the Wii Fit so we had to try that out, as well. I had several calls from the Presby nurses singing and wishing me happy birthday and my good friend, Cindy, came by on her way home from work bearing a card from the nurses on 6West and 3ICU as well as a sweet note from Dr. Shires to Ron. And of course many calls and well wishes from extended family. I AM SO BLESSED!
But the best present of all was that Ron had NO vomiting....first in at least 10 days or more! He then spent Thursday and Friday recuperating from all the festivities.
Nordell life in a nutshell....along with staying busy, busy, busy with wedding plans....5 weeks from the big day!!!
Thanks for your continued prayers and encouragement. We couldn't make it without you!
Love, Christie
"If you understand what I'm telling you, act like it--and live a blessed life."
John 13:17 The Message
If you sincerely wish to feel blessed, make thanksgiving a habit, a regular part of your daily routine.
How has God blessed you? Today take time to make a list of His gifts to you: the talents, the opportunities, the possessions and the relationships that you may take for granted. Then, when you've spent sufficient time listing your blessings, offer a prayer of gratitude to the Giver of all good things. And to the best of your ability, use your gifts for the betterment of yourself, your family, your friends, and your world. Then you'll truly live a blessed life.
"Thanksgiving or complaining--these words express two contrasting attitudes of the souls of God's children in regard to His dealings with them. The soul that gives thanks can find comfort in everything; the soul that complains can find comfort in nothing."
Hannah Whitall Smith
The last couple of weeks have been up and down. Thursday, September 25, he had his g-tube removed! YIPPEE!!! He has had either a naso-gastric tube (down nose to stomach) or gastric tube (directly into stomach through skin) since October 26, 2007. WOW! 11 months. Last line he has in is his PICC line but I'm sure that will stay awhile since that's how he gets his TPN and they do blood draw through it.
He has had vomiting daily (sometimes twice a day). The vomiting causes him to feel really puny and when you feel you are always on the verge of puking; you have no desire to eat. So it's been a battle to get him to eat and a battle to keep it down! Otherwise, numbers have looked good; now if he could just gain some strength, energy, stamina....
Sunday, Sept 28 we celebrated my birthday by finally being able to go to church! What a glorious day, to be back amongst our church family and to have Ryan, Stacee, Aaron & Kristin with us! One week shy of a year since we were last there (last Sunday to attend was October 7, 2007...and Ron refereed Pigskin Classic that afternoon for our youth). Afterwards, we went home to rest for a couple of hours then met Laurie & Tony who had picked up G'ma from her rehab facility and Papa from assisted living facility for a late lunch at our favorite Italian restaurant, LaBistro. It was very nice to be there after the Sunday rush...we enjoyed a quiet, relaxing meal together. We then headed over to Papa's to relax and watch the football game, have Sprinkles cupcakes & presents and give G'ma her first tour of where her new home will be. It was an exhausting but very fun day! It really took a toll on Ron and it took him until Wednesday to recover.
Our insurance plan year with my school district runs from October 1 to September 30 so we started over with all new deductibles and out of pocket expenses as of Wednesday. YIKES!!!
I headed to Dallas Monday afternoon to stock up on another month's worth of prescriptions before d-day; some of our scripts can only be filled at a specific pharmacy over by Presby. It was a frustrating afternoon; one where I had to keep reminding myself that my circumstances do not determine my joy. I ran into a glitch and had to argue with the insurance company over paying $1900 for his lollipops; ended up coming home empty-handed and spent the next couple of days going through all of our hidden stash--I typically keep a couple in my purse, a couple in the truck, and a couple in "the baby" backpack and fortunately I had some stashed away in another "hospital bag". God bless Dr. Arslanlar and his compassion and willingness to step in and help whenever and however needed; and for listening to this stressed out woman calling on his cell phone (yes, he has given me his cell phone number to use whenever I feel necessary!) 4 minutes after hours...that's when I received word insurance wouldn't pay! But, with his help and of course the fact God goes before us and prepares the way; it was handled and they mailed them to us the next day at the covered price of $10. WHEW!!!!
For my actual birthday (Wed, Oct 1), Ron stepped up to the plate and kept up his tradition of making my favorite carrot cake (from scratch!). Bless his heart, it took him ALL day and he had to do it in stages with napping in between. I was also treated to lunch and gifts by my sweet co-workers. Our friends Ken & Barbie came over to visit in the evening, then Ryan & Stacee brought in dinner; we opened more presents and had the most delicious cake ever. I received the Wii Fit so we had to try that out, as well. I had several calls from the Presby nurses singing and wishing me happy birthday and my good friend, Cindy, came by on her way home from work bearing a card from the nurses on 6West and 3ICU as well as a sweet note from Dr. Shires to Ron. And of course many calls and well wishes from extended family. I AM SO BLESSED!
But the best present of all was that Ron had NO vomiting....first in at least 10 days or more! He then spent Thursday and Friday recuperating from all the festivities.
Nordell life in a nutshell....along with staying busy, busy, busy with wedding plans....5 weeks from the big day!!!
Thanks for your continued prayers and encouragement. We couldn't make it without you!
Love, Christie
"If you understand what I'm telling you, act like it--and live a blessed life."
John 13:17 The Message
If you sincerely wish to feel blessed, make thanksgiving a habit, a regular part of your daily routine.
How has God blessed you? Today take time to make a list of His gifts to you: the talents, the opportunities, the possessions and the relationships that you may take for granted. Then, when you've spent sufficient time listing your blessings, offer a prayer of gratitude to the Giver of all good things. And to the best of your ability, use your gifts for the betterment of yourself, your family, your friends, and your world. Then you'll truly live a blessed life.
"Thanksgiving or complaining--these words express two contrasting attitudes of the souls of God's children in regard to His dealings with them. The soul that gives thanks can find comfort in everything; the soul that complains can find comfort in nothing."
Hannah Whitall Smith
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