It's been mentioned by many of the masses that it's been a while since I sent out an update...Sorry!!! Lots of excuses but the fact is, I've been purely lazy, therefore it's a pretty long one...it's also late, and I'm tired so it might include some totally random stuff.
Three hospital stays in less than three months definitely took a toll on us, but, I believe we're beginning to get back on an even keel.
Tuesday (Dec 15), we had a bit of a disconcerting report from Dr. A regarding Ron's labs from the previous day. Once again his potassium was way too high (6.1) and his glucose was too low (46). The only variable we could come up with is being back on Heparin therefore Dr. A discontinued his 3xdaily Heparin injections and did another blood draw that Wednesday (16th); results showed everything back to normal. CRAZY! Dr. A decided until we can come up with another plan, Ron is to stay off the Heparin. The following Monday's labs were completely normal.
It's such a fine balance when you live on TPN, the delicate intricacies of our bodies that God created, man has a hard time replicating. Add on Ron's penchant to develop blood clots and having so many side effects develop due to blood thinners brings on a heightened level of complication.
Here's the problem:
blood clots can be deadly, optimally requiring some type of blood thinner therapy
BUT, Ron's body doesn't metabolize oral blood thinners properly; he develops hematomas with subcutaneous Lovenox (blood thinner) injections and now we find Heparin (blood thinner) administered through his PICC seems to elevate his potassium level as well as decrease his glucose level.
So...it's back to the drawing board for Dr. A and Dr. M as everyone holds their breath and prays fervently that Ron will not develop any clots while off blood thinners. I must say though, it's been a great break for both of us; this means 3 less times a day that I have to flush, inject therapeutic Heparin, flush again, and inject heparin lock. Not that I'm counting...but that's 12 less syringes I have to deal with each day!
Wednesday, December 16, Ron had his appointment with the neurosurgeon at UT Southwestern. Dr. S is referred to as the "cowboy" of neurosurgeons (the preeminent neurosurgeon around with his training being with the best of the best, in Zurich). We felt very comfortable and confident of his assessment. Diagnosis: he definitely has an abnormality (That's my guy AB-normal!) but it is under 5mm, therefore, Dr. S feels good about doing nothing other than to continue to monitor for a while. Ron will go back in a year for testing to see if there are any changes. As long as things remain stable, he'll continue to go yearly (for several years) and as long as things stay the same, after these several years the time frame will then be lengthened. Even though Ron has a history of aneurysms, this will not effect the course of treatment. Aneurysms in the brain are totally unique from aneurysms in any other part of the body. They share the same name but the characteristics, the way they act and grow are completely different.
(By the way, this has absolutely nothing to do with why he passed out Thanksgiving.)
On Friday, December 18, he had his followup with Dr. A who was happy to see that he has pretty much regained all the weight he had lost during the last few months. We talked more about the importance of Ron concentrating on physical therapy and healing therefore the recommendation is to take a much lighter load this next semester, keeping his body from becoming overly fatigued and hopefully helping to keep his immune system up so that he doesn't have any crazy medical episodes.
Christmas preparations and celebrations have kept us busy. We've really enjoyed spending time with various family members, yet pacing ourselves by also getting a lot of R&R. We've slept in alot, taken naps and even spent all day in our jammies once...it's been GLORIOUS! The first couple of days of my break, when the weather was wonderfully warm, I was able to enjoy getting outside to catch up on some much-needed yard work. And, of course, the Christmas Eve snowstorm ushering in a White Christmas was great!
That's our recap of the last few weeks...other than the little glitch with heparin-induced potassium and glucose problems, they've been pretty good ones. Busy, but good. Ron does continue to have yakking episodes, although he had a stretch of 7 days (woo hoo!) without yakking, it's been back to daily for the last 4 or 5 days :(
I was super-excited to be able to post on my facebook Dec 26th that we were home therefore breaking our "holiday hospital" streak! We're planning on going 2 for 2 with New Year's Eve coming up, so please join us in praying for a continued medically uneventful Christmas/New Year's season.
Blessings to you!!
Christie
PS: Please know we LOVE receiving your cards, e-mails, texts, facebook messages, etc. You are all so encouraging to us and I am such a slacker for not returning, but, what can I say....life often gets in the way of our best intentions. Please know YOU are VERY MUCH appreciated!!!
Sunday, December 27, 2009
Thursday, December 3, 2009
Free at last....
We're home!!! Very tired, but oh so glad to be home! As soon as we arrived home, I unloaded the car, ate a sandwich and then hit the bed for a good long nap.
Ron was asleep in the recliner before I could complete my sandwich!
Final results: all the testing revealed...no definitive answer as to why Thanksgiving's trauma took place. The best guess is he had a vasovagal syncope. (Aren't you impressed by my ever-increasing medical knowledge??? )
My best understanding is: Syncope is a temporary loss of consciousness and posture (fainting or passing out). Vasovagal refers to the vagus nerve which, among many other things, is responsible for heart rate, keeping the larynx open for breathing, gastrointestinal stuff, etc.
Vasovagal syncope is not an uncommon occurrence. It happens to many people in a variety of circumstances: people passing out at the sight of blood, fainting due to dehydration and/or forceful yakking, etc. But, Ron's a "professional" yakker, so, why did it happen now? Not sure; could have been the result of elevated potassium, force of yakking, possible dehydration, or the cutoff of blood circulation due to the positioning as he was yakking (similar to reaction when you stand with your legs locked, blood pressure drops and you don't get enough blood/oxygen to your heart and brain); or a combination of all of these things.
Will it happen again? No one can say.
Some of our biggest concerns are: what would have happened had Ryan not found him, why was he unresponsive for such a long period of time and what can we do to guard from this happening again? No one has any answers to these questions. The only thing Ron can try to control is his position/posture when he yaks; try not to get into such a compressed crouching position. He tried that this afternoon when he yakked and ended up pulling a muscle in his back....poor guy, feels he can't win for losing!
I have to confess, it would be very easy to give in to fear and never want to leave Ron alone, but this is what faith is all about isn't it? We can't spend our days living in fear, being consumed by the what if's of life. Jesus came that we might live an abundant, victorious life...He never said it would be easy.
"For every child of God defeats this evil world by trusting Christ to give the victory. And the ones who win this battle against the world are the ones who believe that Jesus is the Son of God." I John 5:5
Choosing to trust that God's strength is perfected through our trials,
Christie
From Streams in the Desert 2
"Weeping may endure for a night, but joy comes in the morning: Psalm 30:5
A.W. Dixon wrote: "It is better to have darkness with stars...than all sunshine and no stars"
"Any man can sing by day; but only he whose heart has been turned by the gracious hand of Jehovah can sing in the darkness...only the peace of God can give gladness in the darkness of adversity. God gives joy in sorrow; and when the sad one sings through his tears, then the Lord comes to him with new and more tender assurances....that which is born of trust rises in rapture" ~ Wm. M. Taylor
Ron was asleep in the recliner before I could complete my sandwich!
Final results: all the testing revealed...no definitive answer as to why Thanksgiving's trauma took place. The best guess is he had a vasovagal syncope. (Aren't you impressed by my ever-increasing medical knowledge??? )
My best understanding is: Syncope is a temporary loss of consciousness and posture (fainting or passing out). Vasovagal refers to the vagus nerve which, among many other things, is responsible for heart rate, keeping the larynx open for breathing, gastrointestinal stuff, etc.
Vasovagal syncope is not an uncommon occurrence. It happens to many people in a variety of circumstances: people passing out at the sight of blood, fainting due to dehydration and/or forceful yakking, etc. But, Ron's a "professional" yakker, so, why did it happen now? Not sure; could have been the result of elevated potassium, force of yakking, possible dehydration, or the cutoff of blood circulation due to the positioning as he was yakking (similar to reaction when you stand with your legs locked, blood pressure drops and you don't get enough blood/oxygen to your heart and brain); or a combination of all of these things.
Will it happen again? No one can say.
Some of our biggest concerns are: what would have happened had Ryan not found him, why was he unresponsive for such a long period of time and what can we do to guard from this happening again? No one has any answers to these questions. The only thing Ron can try to control is his position/posture when he yaks; try not to get into such a compressed crouching position. He tried that this afternoon when he yakked and ended up pulling a muscle in his back....poor guy, feels he can't win for losing!
I have to confess, it would be very easy to give in to fear and never want to leave Ron alone, but this is what faith is all about isn't it? We can't spend our days living in fear, being consumed by the what if's of life. Jesus came that we might live an abundant, victorious life...He never said it would be easy.
"For every child of God defeats this evil world by trusting Christ to give the victory. And the ones who win this battle against the world are the ones who believe that Jesus is the Son of God." I John 5:5
Choosing to trust that God's strength is perfected through our trials,
Christie
From Streams in the Desert 2
"Weeping may endure for a night, but joy comes in the morning: Psalm 30:5
A.W. Dixon wrote: "It is better to have darkness with stars...than all sunshine and no stars"
"Any man can sing by day; but only he whose heart has been turned by the gracious hand of Jehovah can sing in the darkness...only the peace of God can give gladness in the darkness of adversity. God gives joy in sorrow; and when the sad one sings through his tears, then the Lord comes to him with new and more tender assurances....that which is born of trust rises in rapture" ~ Wm. M. Taylor
Tuesday, December 1, 2009
Overcoming fear of the unknown
The last two days have been ones of hurry up and wait. Yesterday was busy with CT angiogram and small bowel follow through; while today, has been incredibly slow waiting on test results. On top of that we were thinking we would get to go home today, however, we are now waiting to have PICC replaced. Yes, his less than a month old PICC is not drawing so they want to replace it before sending him home. IR's schedule is incredibly full so they will not be able to get to him until 8 or 9 tonight. And seeing that he has to be monitored for at least 2 hours afterwords, he will have to stay another night.
The small bowel follow through looked markedly better from his most recent one in the spring, which is very good. The contrast made it's way through in a timely manner and motility looked much improved. Now, why does he continue to have the bloating and yakking? Quite the puzzlement, my hubby.
This afternoon we finally received results from CT angiogram and there is definitely something there, but it is undetermined as to what it is. It could be just a loop in a vessel, or it could be a small aneurysm, they can't tell. The neurologist, in consultation with Dr. A, decided to refer Ron's case to UT Southwestern. Presby will send the information over to UT Southwestern to be studied by their neuro team, which is supposed to be the best around. They will then, most likely, have him come in for further testing.
You'd think we'd be a little freaked out by all that's taken place over the last few days and now this possible diagnosis; but, honestly, we are doing very well. As we were discussing the possibility of these results, we wondered if all this other stuff happened just so we would have all these tests in order to find this possible aneurysm. Again, God always goes before us; and we're choosing to trust him for whatever the results may be.
This morning as I was reading a devotional I wasn't able to get to last week, it struck me how appropriate the timing was for today. I hope it ministers to you as much as it has to us.
Much love, Christie
Overcoming the Fear of the Unknown
20 Nov 2009
Micca Monda Campbell
"Then you will know which way to go, since you have never been this way before." Joshua 3:4a (NIV)
Do you have a fear of the unknown? If so, then you know how nerve-racking it can be. Fearing the unknown can cause us to live on pins and needles as we spend precious energy anticipating the worst-case scenario. There are two problems with this type of fear:
1. The future is not here.
2. The future is not ours.
While the future may be out of our hands, it's not out of the hands of an adequate and trustworthy God. When we face a worrisome unknown situation, we can look to Joshua as an example.
It's recorded in the first chapter of Joshua that before Moses died, God passed the baton of leadership to Joshua. The Israelites had been wandering in the desert for 40 years under the guidance of Moses. Now, their journey was almost over. Just beyond the Jordan River was their promised land—the land that God had guaranteed to Abraham and his descendants.
Upon reaching the Jordan River, Joshua and the Israelites set up camp by the stream and awaited God's direction. Much like their meeting with the Red Sea, God had to make a way for them to cross over the river. On the third day, God told the officers to instruct the people that when they saw the Ark of the Covenant (where God's Presence abided) to follow it because they had "never passed this way before" (Joshua 3:4). In essence God was saying, Follow Me and I'll see you through this unknown territory.
That's not all. The people were instructed on how closely they should follow the ark. Without this instruction, the people would have crowded the ark and God wanted every person to be able to see His presence ever faithfully leading them through the unknown valley. What greater encouragement could they have than this, that the Lord was their God, a God who was with them?
You see, friend, the Lord understands our fear of the unknown. He realizes that you may be in a situation that you've never passed through before and you're afraid. It may be the first time you've been without employment. Maybe you've just been diagnosed with an illness or your child is in rebellion. You've never been down this road before and you don't know which way to go or what to do. God will guide the way.
Joshua's life was unpredictable and full of unknowns much like yours and mine. Yet, he successfully resisted fear by keeping his focus on God rather than the events surrounding him. Just as God guided the Israelites through unknown territory, He will guide you and me too. When we come to a place we've never passed through before, God is always present to help us.
"When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the LORD, your God,the Holy One of Israel, your Savior; (Isaiah 43:2,3b, NIV).
Even though the children of Israel were not told how they would pass over the river, the people went forth in faith. We too can move forward in faith sharing in the promised presence of God leading the way through our unknown circumstances.
Dear Lord, thank You for Your promised presence. It comforts my heart to know that I am not alone. Lead me, Lord, through the unknown in my life. Make Your path clear and I will follow it. In Jesus' Name, Amen.
Related Resources:
Visit Micca's blog – Reflections
Today's devotion was taken from Micca's book, An Untroubled Heart: Finding Faith that is Stronger Than All Your Fears. Order your copy by clicking here.
Do You Know Him?
Application Steps:
The Bible calls us to walk by faith not by sight. God doesn't always give us the details we desire.
He does give us Himself. Believing is certainty that He's laid out a path and He goes before us.
Reflections:
Have you ever run from fear? Where and when?
Where did you find comfort from your fear?
How can God's promised presence soothe your fears?
Power Verses:
Psalm 32:8, "I will instruct you and teach you in the way you should go; I will counsel you and watch over you." (NIV)
Jeremiah 29:11, "'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future.'" (NIV)
© 2009 by Micca Campbell. All rights reserved.
The small bowel follow through looked markedly better from his most recent one in the spring, which is very good. The contrast made it's way through in a timely manner and motility looked much improved. Now, why does he continue to have the bloating and yakking? Quite the puzzlement, my hubby.
This afternoon we finally received results from CT angiogram and there is definitely something there, but it is undetermined as to what it is. It could be just a loop in a vessel, or it could be a small aneurysm, they can't tell. The neurologist, in consultation with Dr. A, decided to refer Ron's case to UT Southwestern. Presby will send the information over to UT Southwestern to be studied by their neuro team, which is supposed to be the best around. They will then, most likely, have him come in for further testing.
You'd think we'd be a little freaked out by all that's taken place over the last few days and now this possible diagnosis; but, honestly, we are doing very well. As we were discussing the possibility of these results, we wondered if all this other stuff happened just so we would have all these tests in order to find this possible aneurysm. Again, God always goes before us; and we're choosing to trust him for whatever the results may be.
This morning as I was reading a devotional I wasn't able to get to last week, it struck me how appropriate the timing was for today. I hope it ministers to you as much as it has to us.
Much love, Christie
Overcoming the Fear of the Unknown
20 Nov 2009
Micca Monda Campbell
"Then you will know which way to go, since you have never been this way before." Joshua 3:4a (NIV)
Do you have a fear of the unknown? If so, then you know how nerve-racking it can be. Fearing the unknown can cause us to live on pins and needles as we spend precious energy anticipating the worst-case scenario. There are two problems with this type of fear:
1. The future is not here.
2. The future is not ours.
While the future may be out of our hands, it's not out of the hands of an adequate and trustworthy God. When we face a worrisome unknown situation, we can look to Joshua as an example.
It's recorded in the first chapter of Joshua that before Moses died, God passed the baton of leadership to Joshua. The Israelites had been wandering in the desert for 40 years under the guidance of Moses. Now, their journey was almost over. Just beyond the Jordan River was their promised land—the land that God had guaranteed to Abraham and his descendants.
Upon reaching the Jordan River, Joshua and the Israelites set up camp by the stream and awaited God's direction. Much like their meeting with the Red Sea, God had to make a way for them to cross over the river. On the third day, God told the officers to instruct the people that when they saw the Ark of the Covenant (where God's Presence abided) to follow it because they had "never passed this way before" (Joshua 3:4). In essence God was saying, Follow Me and I'll see you through this unknown territory.
That's not all. The people were instructed on how closely they should follow the ark. Without this instruction, the people would have crowded the ark and God wanted every person to be able to see His presence ever faithfully leading them through the unknown valley. What greater encouragement could they have than this, that the Lord was their God, a God who was with them?
You see, friend, the Lord understands our fear of the unknown. He realizes that you may be in a situation that you've never passed through before and you're afraid. It may be the first time you've been without employment. Maybe you've just been diagnosed with an illness or your child is in rebellion. You've never been down this road before and you don't know which way to go or what to do. God will guide the way.
Joshua's life was unpredictable and full of unknowns much like yours and mine. Yet, he successfully resisted fear by keeping his focus on God rather than the events surrounding him. Just as God guided the Israelites through unknown territory, He will guide you and me too. When we come to a place we've never passed through before, God is always present to help us.
"When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the LORD, your God,the Holy One of Israel, your Savior; (Isaiah 43:2,3b, NIV).
Even though the children of Israel were not told how they would pass over the river, the people went forth in faith. We too can move forward in faith sharing in the promised presence of God leading the way through our unknown circumstances.
Dear Lord, thank You for Your promised presence. It comforts my heart to know that I am not alone. Lead me, Lord, through the unknown in my life. Make Your path clear and I will follow it. In Jesus' Name, Amen.
Related Resources:
Visit Micca's blog – Reflections
Today's devotion was taken from Micca's book, An Untroubled Heart: Finding Faith that is Stronger Than All Your Fears. Order your copy by clicking here.
Do You Know Him?
Application Steps:
The Bible calls us to walk by faith not by sight. God doesn't always give us the details we desire.
He does give us Himself. Believing is certainty that He's laid out a path and He goes before us.
Reflections:
Have you ever run from fear? Where and when?
Where did you find comfort from your fear?
How can God's promised presence soothe your fears?
Power Verses:
Psalm 32:8, "I will instruct you and teach you in the way you should go; I will counsel you and watch over you." (NIV)
Jeremiah 29:11, "'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future.'" (NIV)
© 2009 by Micca Campbell. All rights reserved.
Sunday, November 29, 2009
Sit still...
Much-needed lazy day here at Presby. Last night was rough, Ron's IV seemed to be going off constantly...I was beginning to wonder if they had done it on purpose to evoke a seizure for the EEG!
Neurologist was in and said not all the data from the EEG had downloaded as yet, but what had, looks normal. He also said the MRI looked good, but the MRA of his brain showed what is either an artifact or could possibly be an aneurysm in the right front lobe of Ron's brain. From what I understand, an artifact is when you see something on an image that may not actually be there; could be a coil of vessels that take on the shape of something foreign or some other oddity. (Leave it to Ron to have this little phenomenon happen!) Given Ron's history of aneurysms, they feel it should be further examined, so he will be scheduled for a CT angiogram tomorrow.
I hadn't realized they were doing any MRA and didn't exactly know what it was, but now I know an MRA specifically produces images of blood vessels whereas an MRI produces images of organs, muscles, bones, nerves.
Ron is also to have a small bowel follow-through. Since both the CT angiogram and the small bowel follow-through require dye (contrast), which puts stress on the kidneys and he only has one; they aren't sure they will be able to do both on Monday. They will first check his kidney function from his early morning labs; if all looks well, they will try to schedule the CT angiogram first thing in the morning and small bowel follow-through later in the afternoon; in the meantime running alot of IV fluid through him. Obviously the CT angiogram takes precedence, if scheduling doesn't work that way, they will wait until Tuesday for small bowel test. So, no word as to when he'll be able to go home. We were told this afternoon he will also have to prove he can hold food down before being allowed to go home, therefore this evening's yakking was disappointing!
Whew, lot of technical stuff in this one! May be too much information, but as I always say; these e-mails are my therapy session...writing it out helps me get my head wrapped around what's going on.
By the way, this new information has absolutely nothing to do with what brought him here! Aye, aye aye...my unique husband! I call him my walking time bomb, never know what's going to go off next!
Please continue to pray for definitive answers and that we will be at rest as we wait.
As I was reading today, this verse and the commentary on it really spoke to me
"Sit still, my daughter, until you know how the matter will turn out.” Ruth 3:18
Waiting on God involves a time of testing.
Waiting on God assumes that God is working, with our best interest in mind.
When you must wait for God to work, what is the quality of your waiting time? Are you anxious, trying to make things work out, or are you resting in the better plan of God?
“Be still in the presence of the Lord and wait patiently for Him to act" Psalm 37:7
Neurologist was in and said not all the data from the EEG had downloaded as yet, but what had, looks normal. He also said the MRI looked good, but the MRA of his brain showed what is either an artifact or could possibly be an aneurysm in the right front lobe of Ron's brain. From what I understand, an artifact is when you see something on an image that may not actually be there; could be a coil of vessels that take on the shape of something foreign or some other oddity. (Leave it to Ron to have this little phenomenon happen!) Given Ron's history of aneurysms, they feel it should be further examined, so he will be scheduled for a CT angiogram tomorrow.
I hadn't realized they were doing any MRA and didn't exactly know what it was, but now I know an MRA specifically produces images of blood vessels whereas an MRI produces images of organs, muscles, bones, nerves.
Ron is also to have a small bowel follow-through. Since both the CT angiogram and the small bowel follow-through require dye (contrast), which puts stress on the kidneys and he only has one; they aren't sure they will be able to do both on Monday. They will first check his kidney function from his early morning labs; if all looks well, they will try to schedule the CT angiogram first thing in the morning and small bowel follow-through later in the afternoon; in the meantime running alot of IV fluid through him. Obviously the CT angiogram takes precedence, if scheduling doesn't work that way, they will wait until Tuesday for small bowel test. So, no word as to when he'll be able to go home. We were told this afternoon he will also have to prove he can hold food down before being allowed to go home, therefore this evening's yakking was disappointing!
Whew, lot of technical stuff in this one! May be too much information, but as I always say; these e-mails are my therapy session...writing it out helps me get my head wrapped around what's going on.
By the way, this new information has absolutely nothing to do with what brought him here! Aye, aye aye...my unique husband! I call him my walking time bomb, never know what's going to go off next!
Please continue to pray for definitive answers and that we will be at rest as we wait.
As I was reading today, this verse and the commentary on it really spoke to me
"Sit still, my daughter, until you know how the matter will turn out.” Ruth 3:18
Waiting on God involves a time of testing.
Waiting on God assumes that God is working, with our best interest in mind.
When you must wait for God to work, what is the quality of your waiting time? Are you anxious, trying to make things work out, or are you resting in the better plan of God?
“Be still in the presence of the Lord and wait patiently for Him to act" Psalm 37:7
Saturday, November 28, 2009
It's all good...
Another busy day here at Presby!
The Cardiologist came by and said that Ron's echo/stress test looked good, no problems there. They will continue to keep him on the heart monitor through tonight though. Then neurologist was in to do an evaluation and ordered an MRI of his head and neck and also has set him up for a 24 hour EEG. I wish I was able to download the photos off my phone so you could see how he looks with all those probes coming out of his head, quite comical. He has to wear these continually for the next 24 hours. It also has a video monitor recording him...looking for any signs of seizures. And he's had a multitude of blood draws.
Ron is so ready to be out of here. It's been difficult to have to miss out on all the family activities of the weekend. On Friday, the family had a pool party celebrating Papa's 90th birthday with 27 family members scheduled to attend. Then today, we were all going to the Texas Tech/Baylor game at the new Cowboy Stadium.
Other than being tired he's feeling ok and thinks all the tests are unnecessary; so what, he just passed out and was unresponsive for about 1/2 an hour...what's the big deal? He'll just have to suck it up, though, because he'll be here at least until Monday.
Nothing else to report from here. Good night all!
Christie
The Cardiologist came by and said that Ron's echo/stress test looked good, no problems there. They will continue to keep him on the heart monitor through tonight though. Then neurologist was in to do an evaluation and ordered an MRI of his head and neck and also has set him up for a 24 hour EEG. I wish I was able to download the photos off my phone so you could see how he looks with all those probes coming out of his head, quite comical. He has to wear these continually for the next 24 hours. It also has a video monitor recording him...looking for any signs of seizures. And he's had a multitude of blood draws.
Ron is so ready to be out of here. It's been difficult to have to miss out on all the family activities of the weekend. On Friday, the family had a pool party celebrating Papa's 90th birthday with 27 family members scheduled to attend. Then today, we were all going to the Texas Tech/Baylor game at the new Cowboy Stadium.
Other than being tired he's feeling ok and thinks all the tests are unnecessary; so what, he just passed out and was unresponsive for about 1/2 an hour...what's the big deal? He'll just have to suck it up, though, because he'll be here at least until Monday.
Nothing else to report from here. Good night all!
Christie
Friday, November 27, 2009
Oh the Drama
Lots of poking and prodding throughout the night/morning but thankfully Ron's been sleeping in between. He is responsive, cognitive, looks like CRUD, but, all things considered doing ok. Docs are fervently trying to figure out what exactly happened and, most importantly, why.
Only thing they've found thus far is that his potassium level was very elevated, though other electrolytes were fine. Elevated potassium can indicate heart problem, but his EKG looked good, and he's been on a heart monitor all night with no remarkable instances. Consult with cardiologist confers they don't think it's his heart, but they are doing a nuclear stress test (medically induced) to be doubly sure. We are down in nuclear medicine right now.
When Dr. A was in this morning Ron remembered after yakking and flushing last night, his body spasmed and muscles began drawing up into a fetal position and he could not stop it...next thing he knows; the paramedics were transporting him. In the ER he was experiencing tingling in his right arm and both legs, but moreso in the right.
These issues are definitely not the norm, but not unheard of in patients with adrenal insufficiency. There are also instances where heparin (the blood thinner he is on) will act as a steroid and cause adrenal issues to be exacerbated.
Thanks for your prayers, emails, posts and text messages. We're hanging tight, so thankful I'm able to stay in Ron's room with him. I also slept off and on as they were in and out (I actually think we had about a 1 1/2 hour stretch in there at some point and it was glorious!!!!) Aaron was able to go by the house and get the bag I keep packed for emergencies (note to self: packed bag goes with us anytime we leave the house; along with computer...my lifeline of communication!)
I've been able to have a hot shower, put on clean clothes and even a little makeup...you know the old saying, when you look good, you feel good! At least it's worth a try. And since Ron was not able to eat before the stress test, I ate his yummy lunch; so, yes, I am trying to take care of myself.
Sorry, I'm not able to have my phone on down here but will check for messages/texts when procedure is complete (they said it would take 1 1/2 - 2 hours for stress test).
So thankful for Dr. A and the awesome nurses/staff here at Presby. "Sometimes you wanna go, where everybody knows your name!" (as well as your extensive medical history!)
Christie
Only thing they've found thus far is that his potassium level was very elevated, though other electrolytes were fine. Elevated potassium can indicate heart problem, but his EKG looked good, and he's been on a heart monitor all night with no remarkable instances. Consult with cardiologist confers they don't think it's his heart, but they are doing a nuclear stress test (medically induced) to be doubly sure. We are down in nuclear medicine right now.
When Dr. A was in this morning Ron remembered after yakking and flushing last night, his body spasmed and muscles began drawing up into a fetal position and he could not stop it...next thing he knows; the paramedics were transporting him. In the ER he was experiencing tingling in his right arm and both legs, but moreso in the right.
These issues are definitely not the norm, but not unheard of in patients with adrenal insufficiency. There are also instances where heparin (the blood thinner he is on) will act as a steroid and cause adrenal issues to be exacerbated.
Thanks for your prayers, emails, posts and text messages. We're hanging tight, so thankful I'm able to stay in Ron's room with him. I also slept off and on as they were in and out (I actually think we had about a 1 1/2 hour stretch in there at some point and it was glorious!!!!) Aaron was able to go by the house and get the bag I keep packed for emergencies (note to self: packed bag goes with us anytime we leave the house; along with computer...my lifeline of communication!)
I've been able to have a hot shower, put on clean clothes and even a little makeup...you know the old saying, when you look good, you feel good! At least it's worth a try. And since Ron was not able to eat before the stress test, I ate his yummy lunch; so, yes, I am trying to take care of myself.
Sorry, I'm not able to have my phone on down here but will check for messages/texts when procedure is complete (they said it would take 1 1/2 - 2 hours for stress test).
So thankful for Dr. A and the awesome nurses/staff here at Presby. "Sometimes you wanna go, where everybody knows your name!" (as well as your extensive medical history!)
Christie
Much to be thankful for...
Great Thanksgiving spent with family at Ryan and Stacee's. Good food, and very relaxing time.
That is until we found Ron passed out in the bathroom, unresponsive.
WARNING: Following details may be disturbing to some of you; use your own judgment as to whether to continue.
Evidently Ron had become ill and was in the bathroom yakking. At least the last thing he remembers is yakking, flushing the toilet and then the paramedics moving him onto the stretcher...we don't know what happened but we believe he was out for about 10 minutes before Ryan found him and was completely unresponsive another 10+ minutes after that, with the paramedics arriving shortly.
It was incredibly scary!! The bathroom is one of those little toilet rooms in the master; Ron was crouched over the toilet with his arms draped over the rim and his head hanging in the toilet; thank God it's one of those low water toilets or he would have drowned. He was white as a sheet, eyes rolled back and not responding to anything. Ryan had to crawl in there with him (Ron's body was keeping the doorway from opening more than a crack), sweep his throat, check his pulse and respiration's and hold his head in a more stable position while Aaron and Tony worked to get the door off it's hinges so they could remove it and get Ron fully laid out in order to do a more thorough assessment. Meanwhile, I'm on the phone with the 911 dispatcher (who was very calm, patient, and soothing).
EMS arrived quickly and we headed to Harris downtown. En route I was on the phone with our fabulous Dr. A who advised we were to go to a nearby hospital, let them run some tests and stabilize him, then transfer via ambulance to Presby for continuity of care.
PTL!!! Ron's CT revealed no signs of stroke, no signs of pulmonary embolism (blockage in artery to lung), lung x-ray looks a little sketchy but labs look ok. Once he was stable and initial tests were completed, he was transferred to Presby...arriving at 2:30 AM. Now tucked in for the "night"; with more tests to come.
Please pray, the entire family (as well as friends) have been pretty shaken up by this; especially those who were there and witnessed how bad things looked. And especially pray for definitive test results.
I'll update as I know details.
Christie
That is until we found Ron passed out in the bathroom, unresponsive.
WARNING: Following details may be disturbing to some of you; use your own judgment as to whether to continue.
Evidently Ron had become ill and was in the bathroom yakking. At least the last thing he remembers is yakking, flushing the toilet and then the paramedics moving him onto the stretcher...we don't know what happened but we believe he was out for about 10 minutes before Ryan found him and was completely unresponsive another 10+ minutes after that, with the paramedics arriving shortly.
It was incredibly scary!! The bathroom is one of those little toilet rooms in the master; Ron was crouched over the toilet with his arms draped over the rim and his head hanging in the toilet; thank God it's one of those low water toilets or he would have drowned. He was white as a sheet, eyes rolled back and not responding to anything. Ryan had to crawl in there with him (Ron's body was keeping the doorway from opening more than a crack), sweep his throat, check his pulse and respiration's and hold his head in a more stable position while Aaron and Tony worked to get the door off it's hinges so they could remove it and get Ron fully laid out in order to do a more thorough assessment. Meanwhile, I'm on the phone with the 911 dispatcher (who was very calm, patient, and soothing).
EMS arrived quickly and we headed to Harris downtown. En route I was on the phone with our fabulous Dr. A who advised we were to go to a nearby hospital, let them run some tests and stabilize him, then transfer via ambulance to Presby for continuity of care.
PTL!!! Ron's CT revealed no signs of stroke, no signs of pulmonary embolism (blockage in artery to lung), lung x-ray looks a little sketchy but labs look ok. Once he was stable and initial tests were completed, he was transferred to Presby...arriving at 2:30 AM. Now tucked in for the "night"; with more tests to come.
Please pray, the entire family (as well as friends) have been pretty shaken up by this; especially those who were there and witnessed how bad things looked. And especially pray for definitive test results.
I'll update as I know details.
Christie
Sunday, November 22, 2009
Giving Thanks
I had an epiphany (I love this word!) this week. Now, some of you will probably think, well isn't she quick to catch on! But, what can I say...
Working in my flower beds, or long walks alone, are my best prayer times. There's just something about being outdoors; quiet, all alone, away from distractions, that clears my head and opens my heart and mind to my Father's words of wisdom and instruction.
As I was out on a walk the latter part of my week (no, I wasn't working in my flower beds...as much as they need some attention and no matter how much I enjoy it, the idea of more "work" was not something I wanted to consider), I was finally still enough and quiet enough to really hear God speak to me. Of course, He speaks more gently and with greater compassion, but what it boils down to is: we're idiots!
How foolish we've been; we really set ourselves up for disappointment. Ron has only been home a week from a 12 day hospital stay-with 4 of those being in Intensive Care-and is still recovering from a nasty case of pneumonia and here we've been so depressed over his lack of energy and motivation; as well as his overall despondency? Why is it taking him so long to get back to where he was previous to this episode? Not very realistic is it?
We are so used to these little hospital "visits" that we often overlook the ramifications. Typically, when you've had a hospital stay you are prepared for a 4 to 6 week recovery period, yet Ron's been in for so many "minor" things, hospital stays are just part of our routine, therefore, our mindset is warped. A couple of days in the hospital is a huge difference from 2 major procedures, 4 days in ICU, 2 minor procedures and a case of pneumonia!
We tend to see ourselves as one of those "bop bags" we had as kids, you knock 'em down and they pop right back up. Amazing that no matter how often he was punched, that scary clown always had a smile on his face!
Remember, though, after days or weeks of punching, he seemed to lose his "umph", becoming droopy and more reluctant to pop back up so quickly? Typically, all he required was a little extra air, other times a major patching was needed; so we called on someone wiser and more experienced for assistance. We're the same, we can't handle repeated knock-downs without the assistance of those who have gone before us, experienced the hard punches of life and are there to help us bounce back. Most importantly, we need to rely on the Holy Spirit to intercede on our behalf; He stands in the gap when we can't even muster up the strength to look up!
As I was reading this week in Psalm 107:22
"...offer sacrifices of thanksgiving and sing joyfully about His glorious acts"
these words from L.B. Cowman spoke to me:
"...a sacrifice of thanksgiving is to praise God when you don't feel like it; when you are depressed and despondent; when your life is covered with thick clouds..."
And I Thessalonians 5:18 says:
"Give thanks in all circumstances, for this is God's will for you..."
Notice, it doesn't say FOR all things but IN all things; yet we can be certain God has a plan IN all things FOR all things!
A plethora (my other favorite word I hardly ever get to use!) of lessons here:
* the more times we get knocked down, the slower we are to get up
* the importance of calling on our Father when we need "inflation"
* we need each other
* why so many kids are afraid of clowns -- no matter how hard you try to push him away, he jumps right back at you with that maniacal smile...just like that clown jack-in-the-box! (Ok, not so spiritual, but am I right?!)
Hmmm, what an appropriate epiphany (there's that fun word again!) as we go into this week of Thanksgiving. We are to offer praise no matter the "season" of our life. As I'm often reminded (when I get still enough to listen), our internal well-being should not be dependent on our external circumstances. Elementary lessons of our faith, but sometimes the most easily forgotten!
As you approach this Thanksgiving season, reflect on all you have to be thankful for; yet don't overlook the importance of offering praise even during the difficult times of life when you just don't feel like it!
Giving thanks with a grateful heart with YOU in mind!
Working in my flower beds, or long walks alone, are my best prayer times. There's just something about being outdoors; quiet, all alone, away from distractions, that clears my head and opens my heart and mind to my Father's words of wisdom and instruction.
As I was out on a walk the latter part of my week (no, I wasn't working in my flower beds...as much as they need some attention and no matter how much I enjoy it, the idea of more "work" was not something I wanted to consider), I was finally still enough and quiet enough to really hear God speak to me. Of course, He speaks more gently and with greater compassion, but what it boils down to is: we're idiots!
How foolish we've been; we really set ourselves up for disappointment. Ron has only been home a week from a 12 day hospital stay-with 4 of those being in Intensive Care-and is still recovering from a nasty case of pneumonia and here we've been so depressed over his lack of energy and motivation; as well as his overall despondency? Why is it taking him so long to get back to where he was previous to this episode? Not very realistic is it?
We are so used to these little hospital "visits" that we often overlook the ramifications. Typically, when you've had a hospital stay you are prepared for a 4 to 6 week recovery period, yet Ron's been in for so many "minor" things, hospital stays are just part of our routine, therefore, our mindset is warped. A couple of days in the hospital is a huge difference from 2 major procedures, 4 days in ICU, 2 minor procedures and a case of pneumonia!
We tend to see ourselves as one of those "bop bags" we had as kids, you knock 'em down and they pop right back up. Amazing that no matter how often he was punched, that scary clown always had a smile on his face!
Remember, though, after days or weeks of punching, he seemed to lose his "umph", becoming droopy and more reluctant to pop back up so quickly? Typically, all he required was a little extra air, other times a major patching was needed; so we called on someone wiser and more experienced for assistance. We're the same, we can't handle repeated knock-downs without the assistance of those who have gone before us, experienced the hard punches of life and are there to help us bounce back. Most importantly, we need to rely on the Holy Spirit to intercede on our behalf; He stands in the gap when we can't even muster up the strength to look up!
As I was reading this week in Psalm 107:22
"...offer sacrifices of thanksgiving and sing joyfully about His glorious acts"
these words from L.B. Cowman spoke to me:
"...a sacrifice of thanksgiving is to praise God when you don't feel like it; when you are depressed and despondent; when your life is covered with thick clouds..."
And I Thessalonians 5:18 says:
"Give thanks in all circumstances, for this is God's will for you..."
Notice, it doesn't say FOR all things but IN all things; yet we can be certain God has a plan IN all things FOR all things!
A plethora (my other favorite word I hardly ever get to use!) of lessons here:
* the more times we get knocked down, the slower we are to get up
* the importance of calling on our Father when we need "inflation"
* we need each other
* why so many kids are afraid of clowns -- no matter how hard you try to push him away, he jumps right back at you with that maniacal smile...just like that clown jack-in-the-box! (Ok, not so spiritual, but am I right?!)
Hmmm, what an appropriate epiphany (there's that fun word again!) as we go into this week of Thanksgiving. We are to offer praise no matter the "season" of our life. As I'm often reminded (when I get still enough to listen), our internal well-being should not be dependent on our external circumstances. Elementary lessons of our faith, but sometimes the most easily forgotten!
As you approach this Thanksgiving season, reflect on all you have to be thankful for; yet don't overlook the importance of offering praise even during the difficult times of life when you just don't feel like it!
Giving thanks with a grateful heart with YOU in mind!
Wednesday, November 18, 2009
Strength
Things have been quite difficult lately, but thanks to your prayers, and God's grace, we are beginning to find our way to a better place now. The circumstances have not necessarily changed, but we have definitely been bathed in His comfort and peace. We may feel we are back at square one, nevertheless, we are right where God wants us to be.
I have to confess, I had a major meltdown after this last emergency trip to Interventional Radiology. Going there was no big deal, we're used to these little hiccups along the way; don't like them, but try to deal with them and go on. However, after we met with the chief of IR and he showed us the pictures and extent of the clots, it became apparent that if we had not gone in, this would have quickly become a life-threatening situation. Clots in your carotid, jugular and superior vena cava, with one being the size of your thumb, is definitely not a good thing!
Once the procedure was over (at least what they could do for that day) and Ron was settled in ICU, I was spent. I found my mind wandering to that "what if" place. Fear got a grip on me and wouldn't let go. I'm sure this was enhanced by the fact that I was having flashbacks to just 2 years ago on Nov 4 with Ron taking a sudden nosedive, being rushed to the ICU and doctors telling me to gather family and friends. At one point his heart had stopped out, he was having great difficulty breathing therefore was intubated, he had septic shock and needed emergency surgery and they weren't certain he'd pull through. Then after surgery, being told it was worse than they had thought; everything they touched started bleeding and they could not contain it, so they packed him and sewed him back up in hopes of keeping him alive until the boys arrived.
Funny, how our minds and bodies respond to memories of things that are over and done with, yet continue to impact us physically, mentally and emotionally in such a significant way.
It was difficult to once again see the person I love most (this side of heaven) trembling from the pain. Then to be yanked out of my comfort zone of being able to stay there, and having to drive the 45 minutes away from him to try to sleep once visiting hours ended...oh, so hard!
As I was driving home, I was a wreck! I kept thinking, I can't do this again, I can't do this again! And then realizing, but what choice do I have? This is where we are; what's my alternative? Tell Ron, sorry honey, but I'm out of here...I've had my share and I just can't handle it any more? Tell the boys, ok, it's your turn to be in charge; I'm going home and go about my regular routine? You guys handle this.
As I cried out...please, God, I can't do this anymore; these words resonated in my soul "You're right, you can't do this. I'm not asking you to. But I am asking you to trust Me. Haven't I shown myself to be faithful in the past? Didn't I promise to never leave or forsake those who are mine?" Yes, but I'm still afraid...what if you gave us these two years only to....ugh, that awful "what if" rearing it's ugly head again!
I was comforted in knowing He only speaks truth. When I try to be in control of the situation, I may think I'm able to handle it for a while; but in reality, if it were up to me; I'd be an out-of-control, weepy, fearful mess! I'm so thankful I don't have to rely on my ability (or lack thereof).
This is such a humbling place to be in. We don't share our struggles in order to receive any recognition or accolades. We don't know why God has called us to this journey, but can assure you, it's definitely not us doing anything; we're not strong enough to get through this on our own. It's His strength and His grace that gets us through. We're just trying to figure out how to flesh out this faith we claim to cling so firmly to; believing that He has called us to be transparent and share all the ups and downs of this journey with each of you; while striving to bring Him glory.
"My grace is sufficient for you, for My power is made perfect in weakness"
2 Corinthians 12:9
"The Lord is near to the brokenhearted and saves the crushed in spirit"
Psalm 34:18
Looking up,
Christie
"God is most glorified in us when we are most satisfied in Him" John Piper
"Pursue the pleasure of knowing God intimately!" Patsy Clairmont
I have to confess, I had a major meltdown after this last emergency trip to Interventional Radiology. Going there was no big deal, we're used to these little hiccups along the way; don't like them, but try to deal with them and go on. However, after we met with the chief of IR and he showed us the pictures and extent of the clots, it became apparent that if we had not gone in, this would have quickly become a life-threatening situation. Clots in your carotid, jugular and superior vena cava, with one being the size of your thumb, is definitely not a good thing!
Once the procedure was over (at least what they could do for that day) and Ron was settled in ICU, I was spent. I found my mind wandering to that "what if" place. Fear got a grip on me and wouldn't let go. I'm sure this was enhanced by the fact that I was having flashbacks to just 2 years ago on Nov 4 with Ron taking a sudden nosedive, being rushed to the ICU and doctors telling me to gather family and friends. At one point his heart had stopped out, he was having great difficulty breathing therefore was intubated, he had septic shock and needed emergency surgery and they weren't certain he'd pull through. Then after surgery, being told it was worse than they had thought; everything they touched started bleeding and they could not contain it, so they packed him and sewed him back up in hopes of keeping him alive until the boys arrived.
Funny, how our minds and bodies respond to memories of things that are over and done with, yet continue to impact us physically, mentally and emotionally in such a significant way.
It was difficult to once again see the person I love most (this side of heaven) trembling from the pain. Then to be yanked out of my comfort zone of being able to stay there, and having to drive the 45 minutes away from him to try to sleep once visiting hours ended...oh, so hard!
As I was driving home, I was a wreck! I kept thinking, I can't do this again, I can't do this again! And then realizing, but what choice do I have? This is where we are; what's my alternative? Tell Ron, sorry honey, but I'm out of here...I've had my share and I just can't handle it any more? Tell the boys, ok, it's your turn to be in charge; I'm going home and go about my regular routine? You guys handle this.
As I cried out...please, God, I can't do this anymore; these words resonated in my soul "You're right, you can't do this. I'm not asking you to. But I am asking you to trust Me. Haven't I shown myself to be faithful in the past? Didn't I promise to never leave or forsake those who are mine?" Yes, but I'm still afraid...what if you gave us these two years only to....ugh, that awful "what if" rearing it's ugly head again!
I was comforted in knowing He only speaks truth. When I try to be in control of the situation, I may think I'm able to handle it for a while; but in reality, if it were up to me; I'd be an out-of-control, weepy, fearful mess! I'm so thankful I don't have to rely on my ability (or lack thereof).
This is such a humbling place to be in. We don't share our struggles in order to receive any recognition or accolades. We don't know why God has called us to this journey, but can assure you, it's definitely not us doing anything; we're not strong enough to get through this on our own. It's His strength and His grace that gets us through. We're just trying to figure out how to flesh out this faith we claim to cling so firmly to; believing that He has called us to be transparent and share all the ups and downs of this journey with each of you; while striving to bring Him glory.
"My grace is sufficient for you, for My power is made perfect in weakness"
2 Corinthians 12:9
"The Lord is near to the brokenhearted and saves the crushed in spirit"
Psalm 34:18
Looking up,
Christie
"God is most glorified in us when we are most satisfied in Him" John Piper
"Pursue the pleasure of knowing God intimately!" Patsy Clairmont
Sunday, November 15, 2009
Weary
It's been a rough few days around here. I'm tired, Ron's EXHAUSTED and we're both rather soul-weary.
Ron has had trouble sleeping at night but slept until 2:45 yesterday afternoon and today he slept until noon, woke up long enough for a protein drink and then slept in recliner until 2. When he's awake he's been very lethargic and seems quite down. He's had yakking episodes daily, which causes his small appetite to diminish even more. His vitals are fine but he looks gaunt and feels weak. In all he's lost 9.5 lbs since he was admitted to Presby 2 weeks ago (8 while there, 1.5 while home).
As we've talked (or as I've pulled teeth trying to get anything out of him), he finally admits he feels useless and is questioning everything. We've prayed and prayed and believed we were on the right track with Ron and school and life in general around here, but now.....
Please pray.
Christie
"O Lord, how long will you forget me?
Forever?
How long will you look the other way?
How long must I struggle with anguish in my soul, with sorrow in my heart every day?
How long will my enemy have the upper hand?
Turn and answer me, O Lord my God!
Restore the light to my eyes, or I will die.
Don't let my enemies gloat, saying 'We have defeated him!'
Don't let them rejoice at my downfall.
But I trust (even when I don't feel like it) in Your unfailing love.
I will rejoice (even when I don't feel like it) because You have rescued me.
I will sing to the Lord (even when I don't feel like it) because He has been so good to me."
Psalm 13 New Living Translation (parenthesis mine)
Ron has had trouble sleeping at night but slept until 2:45 yesterday afternoon and today he slept until noon, woke up long enough for a protein drink and then slept in recliner until 2. When he's awake he's been very lethargic and seems quite down. He's had yakking episodes daily, which causes his small appetite to diminish even more. His vitals are fine but he looks gaunt and feels weak. In all he's lost 9.5 lbs since he was admitted to Presby 2 weeks ago (8 while there, 1.5 while home).
As we've talked (or as I've pulled teeth trying to get anything out of him), he finally admits he feels useless and is questioning everything. We've prayed and prayed and believed we were on the right track with Ron and school and life in general around here, but now.....
Please pray.
Christie
"O Lord, how long will you forget me?
Forever?
How long will you look the other way?
How long must I struggle with anguish in my soul, with sorrow in my heart every day?
How long will my enemy have the upper hand?
Turn and answer me, O Lord my God!
Restore the light to my eyes, or I will die.
Don't let my enemies gloat, saying 'We have defeated him!'
Don't let them rejoice at my downfall.
But I trust (even when I don't feel like it) in Your unfailing love.
I will rejoice (even when I don't feel like it) because You have rescued me.
I will sing to the Lord (even when I don't feel like it) because He has been so good to me."
Psalm 13 New Living Translation (parenthesis mine)
Wednesday, November 11, 2009
No place like home!
Holy Cow....Finally, we are home!!!
It's been a very, very long day but we arrived home around 8:30 ish. Ron was on target to be dismissed around 10 AM, all his doctors had been in and signed off, home health had been arranged, prescriptions filled, etc. BUT, when they came to do a last blood draw, his PICC would not draw, nor would it flush...not a good thing since he's only had it for a little over a week. They tried every trick in the book to troubleshoot but he ended up having to go back to Interventional Radiology this afternoon to have a new PICC placed. After placement, he had to be monitored for 2 hours with vitals taken every 30 minutes; UGH!!!
In the midst of this frustrating, hurry up and wait situation; we received a huge blessing. As I spoke with the pharmacist who formulates Ron's TPN (specialized pharmacy, not retail); we were going over all the medications he will be taking when she asked how he would be receiving the heparin. After I explained the process she told me that because of the specialization of her pharmacy they could actually pre-fill our syringes with the Heparin. Now, instead of a 6 step process where I have to handle filling the syringes from a vial, it goes down to a 3 step process. I'm sure this doesn't sound like that big of a deal to you, but it is HUGE for me! Anywho, I had to come home to pick up the vials and take them to their pharmacy in Dallas then go back to Presby to wait for Ron to go to IR. They then delivered them to our house, as they do our weekly supplies.
Whew!!!! Quite a day; but as Dorothy said, "There's no place like home!"
Christie
It's been a very, very long day but we arrived home around 8:30 ish. Ron was on target to be dismissed around 10 AM, all his doctors had been in and signed off, home health had been arranged, prescriptions filled, etc. BUT, when they came to do a last blood draw, his PICC would not draw, nor would it flush...not a good thing since he's only had it for a little over a week. They tried every trick in the book to troubleshoot but he ended up having to go back to Interventional Radiology this afternoon to have a new PICC placed. After placement, he had to be monitored for 2 hours with vitals taken every 30 minutes; UGH!!!
In the midst of this frustrating, hurry up and wait situation; we received a huge blessing. As I spoke with the pharmacist who formulates Ron's TPN (specialized pharmacy, not retail); we were going over all the medications he will be taking when she asked how he would be receiving the heparin. After I explained the process she told me that because of the specialization of her pharmacy they could actually pre-fill our syringes with the Heparin. Now, instead of a 6 step process where I have to handle filling the syringes from a vial, it goes down to a 3 step process. I'm sure this doesn't sound like that big of a deal to you, but it is HUGE for me! Anywho, I had to come home to pick up the vials and take them to their pharmacy in Dallas then go back to Presby to wait for Ron to go to IR. They then delivered them to our house, as they do our weekly supplies.
Whew!!!! Quite a day; but as Dorothy said, "There's no place like home!"
Christie
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