Boy, am I glad it's Spring Break! I can't imagine what it would be like just getting home and having to work, too. Things are going pretty well, a few little hiccups that we will address with doctors tomorrow when we go back to Presby for Interventional Radiology and visit with Dr. Shires. It promises to be a long day. Ron doesn't usually get up 'til noon or later, but we'll have to do drain flushes, wound care and dressing change (plus get me ready!) and be out the door by 9:30 at the latest. He will still be hooked up to his TPN which is connected to a portable pump in a back pack. He's scheduled for IR at 11 but we have to go through hospital admissions first, ugh!!! Pray things go smoothly!
Things to pray for:
- quick resolution to beginning of bed sore
- medication changes (insurance does not cover his under-the-tongue Prevacid but they will
cover Nexxium or Prilosec...we had to purchase a 5 day supply to get us through the
weekend at a cost of $50!) - insurance will come up with a plan for covering Imitrex..so far they say they will only cover 9 per month and he's been needing 1(and up to 3) each day
- definitive results from bloodwork, he's lost 4.5 lbs since we've been home, we think he's a
little dehydrated which would also account for blood pressure running low and heart rate a little high...his blood pressure has always run a little low but he's been getting
extremely lightheaded - energy and stamina
- good rest!
- we'll be able to get into a routine before I head back to work next Monday
We've really enjoyed having the kids around...they've all been here each day to hang out with us and were able to receive instructions from home health care nurse for TPN preparations. It's also nice to know if I need help, they're just a shout down the hallway!
And for our Sunday family fun day, the boys' went and stood in line at 7AM to purchase a Wii video game system! If you've never played one, it's incredibly fun! We've all bowled, played tennis and many other games. Ron is able to do each of them from the comfort of his recliner! It's a blast!!!! And as physically active as you want it to be, great workout.
Thanks for keeping us in your prayers!
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